The American Journal of Bioethics | 2021
A Value-Oriented Framework for Precision Medicine
Abstract
2020.1851813. Le Rouzic, M. A., and F. Claudot. 2020. Characteristics of parental decision-making for children with advanced cancer who are offered enrollment in early-phase clinical trials: A systematic review. Pediatric Hematology and Oncology 37 (6):500–29. doi:10.1080/08880018.2020.1759738. Marron, J. M., S. G. DuBois, J. Glade Bender, A. Kim, B. D. Crompton, S. C. Meyer, K. A. Janeway, and J. W. Mack. 2016. Patient/parent perspectives on genomic tumor profiling of pediatric solid tumors: The Individualized Cancer Therapy (iCat) experience. Pediatric Blood & Cancer 63 (11):1974–82. doi:10.1002/pbc.26137. Morain, S. R., S. Joffe, and E. A. Largent. 2019. When is it ethical for physician-investigators to seek consent from their own patients? The American Journal of Bioethics 19 (4):11–18. doi:10.1080/15265161.2019.1572811. Scollon, S., K. Bergstrom, R. A. Kerstein, T. Wang, S. G. Hilsenbeck, U. Ramamurthy, R. A. Gibbs, C. M. Eng, M. M. Chintagumpala, S. L. Berg, et al. 2014. Obtaining informed consent for clinical tumor and germline exome sequencing of newly diagnosed childhood cancer patients. Genome Medicine 6 (9):69. doi:10.1186/s13073-014-0069-3. Wolf, S. M., L. M. Amendola, J. S. Berg, W. K. Chung, E. W. Clayton, R. C. Green, J. Harris-Wai, G. E. Henderson, G. P. Jarvik, B. A. Koenig, et al. 2018. Navigating the research-clinical interface in genomic medicine: Analysis from the CSER Consortium. Genetics in Medicine 20 (5):545–53. doi:10.1038/gim.2017.137.