Archive | 2019
In Trust, Data: The Trust as a Data Management Tool
Abstract
This Essay explores the trust’s potential as a data management tool. It argues that trusts can support delegated management of secondary uses for clinical data; long-term data governance that protects research subjects; complex value allocations among members of a data collaboration; and the isolation of data from an researcher’s insolvency risks. Although this Essay uses health data as an animating application, the functions presented here may be applicable to other fields.