Satisfaction with Information Provision and Health-related Quality of Life in Basal and Squamous Cell Carcinoma Patients: A Cross-sectional Population-based Study.

Abstract

This study aims to determine the satisfaction with information provision received by basal cell carcinoma (BCC) and squamous cell carcinoma (SCC) patients and associations with health-related quality of life (HRQoL). 1,173 patients from the Netherlands Cancer Registry, received questionnaires on BCC/SCC-specific HRQoL (BaSQoL), cancer-specific HRQoL (EORTC QLQ-C30), information provision (EORTC QLQ-INFO25) and general satisfaction (EORTC INPATSAT-32). 721 (61%) patients participated. The HRQoL impact (BaSQoL) was higher among female and younger patients. One third (N=237) of all patients indicated to be dissatisfied with the information provision. Dissatisfaction with information provision was associated with younger age, facial tumour, not having a partner and multiple comorbidities. HRQoL was worse in patients dissatisfied with information provision (e.g. BaSQoL-worries mean score satisfied patients: 0.54 (95%CI:0.48–0.59 ), dissatisfied patients: 0.77 (95%CI:0.67–0.87 ), p=0.001). Dissatisfaction with provided information was associated with an impact on HRQoL. Possibly, HRQoL could be improved by improving the information provision. 2 Erasmus Medical Center Rotterdam