Adriana Arcia

Facebook Advertisements for Inexpensive Participant Recruitment Among Women in Early Pregnancy

Facebook advertisements were used to recruit nulliparous women in the first 20 weeks of pregnancy for an online survey about their childbirth preferences. A campaign of ads was targeted to women, aged 18 to 44 years, residing in the United States. The ads were viewed 10,577,381 times by 7,248,985 unique Facebook users over 18 weeks in 2011. The ad campaign yielded 6,094 clicks by 5,963 unique users at a mean cost of

Using structural equation modeling to identify predictors of sexual behaviors among Hispanic men who have sex with men.

0.63 per click and a unique click-through rate of 0.08%. Of those who clicked through to the study site, 18% (n = 1,075) consented to participate. The participant pool was reduced to 344 women after application of strict eligibility criteria. Participants represented 43 states and the District of Columbia, their mean age was 20.9 years (Mdn = 19.0, SD = 4.0), and their mean weeks’ gestation was 11.5 (SD = 5.8). The campaign cost was

Style Guide: An Interdisciplinary Communication Tool to Support the Process of Generating Tailored Infographics From Electronic Health Data Using EnTICE3

3,821.81 or

Urban-Dwelling Community Members’ Views on Biomedical Research Engagement

11.11 per eligible participant.

A Systematic Method for Exploring Data Attributes in Preparation for Designing Tailored Infographics of Patient Reported Outcomes

Hispanic men who have sex with men (MSM) are at risk for HIV and other sexually transmitted infections related to high-risk sexual behaviors. The aim of this study was to test a model that predicts the sexual behaviors of Hispanic MSM that is based on an epidemiologic framework. The results of this study provide some important new information regarding the predictors of sexual behaviors among Hispanic MSM. The final model suggests that mental health is a significant predictor of sexual behaviors in this sample. Major implications for the development of interventions to address high-risk sexual behaviors highlight the need for health care providers and researchers to be cognizant of the influence of mental health issues on sexual behaviors.

U.S. Nulliparas' Reasons for Expected Provider Type and Childbirth Setting.

Purpose: In this case study we describe key features of the structured communication tool—a style guide—used to support interdisciplinary collaboration, and we propose the use of such a tool for research teams engaged in similar projects. We employ tailored infographics to present patient reported outcome data from a community health survey back, in a comprehensible and actionable manner, to the individuals who provided it. The style guide was developed to bridge the semantic gap between the domain and programming experts engaged in this effort. Innovation: The style guide supports the communication of complex design specifications in a highly structured format that is nevertheless flexible enough to accommodate project growth. Unlike the typical corporate style guide that has a more narrative format, our style guide is innovative in its use of consistent fields across multiple, standalone entries. Credibility: The process of populating the style guide prompted the designer toward greater design efficiency and led to consistent and specific instructions that met the framework architect’s stated information needs. Discussion and Conclusion: The guiding values in the creation of the style guide were consistency, clarity, and flexibility. It serves as a durable reference to the desired look and functionality of the final infographic product without dictating an implementation strategy. The style guide format can be adapted to meet the communication needs of other interdisciplinary teams facing a semantic gap.

Benefits and Risks in Secondary Use of Digitized Clinical Data: Views of Community Members Living in a Predominantly Ethnic Minority Urban Neighborhood

In this study, we explore community members’ overall understanding and experience with biomedical research engagement. We conducted a qualitative analysis to explore a concept that emerged but was not specifically addressed in a pre-existing dataset obtained using four focus group sessions with 30 urban-dwelling community members. Transcripts were read in an iterative process, and an emergent content analysis was performed. Five main themes were identified: (a) engaging in research to contribute to personal or greater good, (b) hierarchy of trust, (c) the importance of disclosure and transparency, (d) practical barriers to research engagement, and (e) fear of research procedures. Community members view research engagement as a collaborative process whereby community members and researchers are involved in all stages of the investigation. Focusing on research engagement, and not merely participation, may enhance community knowledge of the research process and advance scientific knowledge.

Time to Push: Use of Gestational Age in the Electronic Health Record to Support Delivery of Relevant Prenatal Education Content

Context: Tailored visualizations of patient reported outcomes (PROs) are valuable health communication tools to support shared decision making, health self-management, and engagement with research participants, such as cohorts in the NIH Precision Medicine Initiative. The automation of visualizations presents some unique design challenges. Efficient design processes depend upon gaining a thorough understanding of the data prior to prototyping. Case Description: We present a systematic method to exploring data attributes, with a specific focus on application to self-reported health data. The method entails a) determining the meaning of the variable to be visualized, b) identifying the possible and likely values, and c) understanding how values are interpreted. Findings: We present two case studies to illustrate how this method affected our design decisions particularly with respect to outlier and non-missing zero values. Major Themes: The use of a systematic method made our process of exploring data attributes easily manageable. The limitations of the data can narrow design options but can also prompt creative solutions and innovative design opportunities. Conclusion: A systematic method of exploration of data contributes to an efficient design process, uncovers design opportunities, and alerts the designer to design challenges.

What the rest of the world should know about HIV: Perceptions from adults living with HIV in the Dominican Republic

ABSTRACT The objective of this study was to describe nulliparas’ reasons for the type of provider (i.e., midwife, physician) and childbirth setting (i.e., home, hospital, hospital-based birth center) that respondents expected for their births. Data were collected via a cross-sectional, descriptive, self-administered, Web-based survey including both close- and open-ended questions and were analyzed using conventional content analysis. Respondents were 220 nulliparous women aged 18–40 years, living in the United States, and pregnant at 20 or fewer weeks’ gestation. Women’s reasons were categorized broadly as relating to provider/setting attributes, relationship with provider/setting, normative choices, respondent attributes, and practical considerations. Respondents’ reasons highlight misconceptions about childbirth care options, especially regarding midwifery and nonhospital settings, which may be addressed by childbirth education.

Sometimes more is more: iterative participatory design of infographics for engagement of community members with varying levels of health literacy

Background: There is potential to increase the speed of scientific discovery and implement personalized health care by using digitized clinical data collected on the patient care experience. The use of these data in research raises concerns about the privacy and confidentiality of personal health information. This study explored community members’ views on the secondary use of digitized clinical data to (1) recruit participants for clinical studies; (2) recruit family members of persons with an index condition for primary studies; and (3) conduct studies of information related to stored biospecimens. Methods: A qualitative descriptive design was used to examine the bioethical issues outlined from the perspective of urban-dwelling community members. Focus groups were used for data collection, and emergent content analysis was employed to organize and interpret the data. Results: Thirty community members attended one of four focus groups ranging in size from 4 to 11 participants. Five critical themes emerged from the focus-group material: (1) perceived motivators for research participation; (2) objective or “real-life” barriers to research participation; (3) a psychological component of uncertainty and mistrust; (4) preferred mechanisms for recruitment and participation; and (5) cultural characteristics that can impact understanding and willingness to engage in research. Conclusions: The overriding concern of community members regarding research participation and/or secondary clinical and nonclinical use of digitized information was that their involvement would be safe and the outcome would be meaningful to them and to others. According to participants, biospecimens acquired during routine clinical visits or for research are no longer possessions of the participant. Although the loss of privacy was a concern for participants, they preferred that researchers access their personal health information using a digitized clinical file rather than through a paper-based medical record.