Amelia Hyatt

Protocol for the ProCare Trial: a phase II randomised controlled trial of shared care for follow-up of men with prostate cancer

Introduction Men with prostate cancer require long-term follow-up to monitor disease progression and manage common adverse physical and psychosocial consequences of treatment. There is growing recognition of the potential role of primary care in cancer follow-up. This paper describes the protocol for a phase II multisite randomised controlled trial of a novel model of shared care for the follow-up of men after completing treatment for low-moderate risk prostate cancer. Methods and analysis The intervention is a shared care model of follow-up visits in the first 12 months after completing treatment for prostate cancer with the following specific components: a survivorship care plan, general practitioner (GP) management guidelines, register and recall systems, screening for distress and unmet needs and patient information resources. Eligible men will have completed surgery and/or radiotherapy for low-moderate risk prostate cancer within the previous 8 weeks and have a GP who consents to participate. Ninety men will be randomised to the intervention or current hospital follow-up care. Study outcome measures will be collected at baseline, 3, 6 and 12 months and include anxiety, depression, unmet needs, prostate cancer-specific quality of life and satisfaction with care. Clinical processes and healthcare resource usage will also be measured. The principal emphasis of the analysis will be on obtaining estimates of the treatment effect size and assessing feasibility in order to inform the design of a subsequent phase III trial. Ethics and dissemination Ethics approval has been granted by the University of Western Australia and from all hospital recruitment sites in Western Australia and Victoria. Results of this phase II trial will be reported in peer-reviewed publications and in conference presentations. Trial Registration Australian New Zealand Clinical Trial Registry ACTRN12610000938000

ProCare Trial: a phase II randomized controlled trial of shared care for follow-up of men with prostate cancer

To test the feasibility and efficacy of a multifaceted model of shared care for men after completion of treatment for prostate cancer.

Communication challenges experienced by migrants with cancer: A comparison of migrant and English-speaking Australian-born cancer patients

Understanding the difficulties faced by different migrant groups is vital to address disparities and inform targeted health‐care service delivery. Migrant oncology patients experience increased morbidity, mortality and psychological distress, with this tentatively linked to language and communication difficulties. The objective of this exploratory study was to investigate the communication barriers and challenges experienced by Arabic, Greek and Chinese (Mandarin and Cantonese) speaking oncology patients in Australia.

Are audio recordings the answer? - a pilot study of a communication intervention for non-English speaking patients with cancer

Ruby Lipson-Smith, Amelia Hyatt, Phyllis Butow, Thomas F. Hack, Michael Jefford, Sandra Hale, Alison Hocking, Michela Sirianni, Uldis Ozolins, Dorothy Yiu and Penelope Schofield* Cancer Experiences Research, Peter MacCallum Cancer Centre, Melbourne, Australia School of Psychology, University of Sydney, Sydney, Australia Centre of Medical Psychology and Evidence-Based Decision-Making, University of Sydney, Sydney, Australia Psycho-Oncology Cooperative Research Group, University of Sydney, Sydney, Australia College of Nursing, University of Manitoba, Winnipeg, Canada Canadian Breast Cancer Foundation, Prairies/NWT, Canada Sir Peter MacCallum Department of Oncology, University of Melbourne, Melbourne, Australia Humanities and Languages, University of New South Wales, Sydney, Australia Social Work, Peter MacCallum Cancer Centre, Melbourne, Australia Chinese Cancer Society of Victoria, Melbourne, Australia Psychology, Swinburne University of Technology, Melbourne, Australia

Culturally and linguistically diverse oncology patients' perspectives of consultation audio-recordings and question prompt lists

Ethnicity and migrant status result in disparities with cancer burden and survival, with communication difficulties cited as the main barrier to access. Our research team tested a communication intervention package comprising consultation audio‐recordings (ARs) and question prompt lists (QPLs) for low English‐speaking (LES) patients with cancer. This study explored LES patient experiences, preferences, and recommendations regarding the communication package.

Measuring recall of medical information in non-English-speaking people with cancer: A methodology

Many patients who require an interpreter have difficulty remembering information from their medical consultations. Memory aids such as consultation audio‐recordings may be of benefit to these patients. However, there is no established means of measuring patients’ memory of medical information.

The SecondEars app: Co-design of a consultation audio-recording mobile app for people with cancer (Preprint)

Background Many patients choose to audio-record their medical consultations so that they can relisten to them at home and share them with family. Consultation audio-recordings can improve patients’ recall and understanding of medical information and increase their involvement in decision making. A hospital-endorsed consultation audio-recording mobile app would provide patients with the permission and means to audio-record their consultations. The Theory of Planned Behavior provides a framework for understanding how patients can be encouraged to appropriately audio-record consultations. Objective The aim of this study was to use a co-design process to develop a consultation audio-recording mobile app called SecondEars. Methods App development began with stakeholder engagement, followed by a series of 6 co-design workshops and then user acceptance testing. Stakeholder engagement included advice from legal, information technology (IT), clinical and allied health leads; digital strategy; and medical records. he co-design workshops were attended by: patient consumers, members of the research team, IT staff, the app designers, clinicians, and staff from medical records. During workshops 1 to 4, the purpose and scope of the app were refined, possible pitfalls were addressed, and design features were discussed. The app designers then incorporated the results from these workshops to produce a wireframe mock-up of the proposed SecondEars app, which was presented for feedback at workshops 5 and 6. Results The stakeholders identified 6 requirements for the app, including that it be patient driven, secure, clear in terms of legal responsibilities, linked to the patient’s medical record, and that it should require minimal upfront and ongoing resources. These requirements informed the scope of the co-design workshops. The workshops were attended by between 4 and 13 people. The workshop attendees developed a list of required features and suggestions for user interface design. The app developers used these requirements and recommendations to develop a prototype of the SecondEars app in iOS, which was then refined through user acceptance testing. Conclusions The SecondEars app allows patients to have control and autonomy over audio-recording and sharing their consultations while maintaining privacy and safety for medical information and legal protection for clinicians. The app has been designed to have low upkeep and minimal impact on clinical processes. The SecondEars prototype is currently being tested with patients in a clinical setting.