Andrea MacLeod

International review of the evidence on best practice in educational provision for children on the autism spectrum

There is considerable debate regarding the most appropriate and effective ways of supporting the learning of children and young people on the autism spectrum. This international review provides a synthesis of empirical research and expert evidence (dated 2002–2008) to identify best practice in educational provision for these children. Five bibliographic databases were systematically searched using clearly defined keywords, and abstracts assessed according to explicit inclusion and exclusion criteria; 92 research papers that focused on children and young people were included. Expert evidence was drawn from policy documents and government strategies, or research reports, from the UK and Ireland. Findings show that there is insufficiently strong evidence regarding the effectiveness of one type of intervention approach compared with another. A range of educational provision should be maintained in order to cater appropriately for a wide diversity of needs. Interventions most often researched were those involving intensive behavioural techniques and some studies showed these can be successful in teaching specific skills to some children. There was limited evidence regarding the needs of older children as well as consideration of educational provision more widely, including the effects of type of setting (as distinct from a specific type of intervention or learning approach). More research is needed on other types of educational interventions currently used by parents and in schools as well as greater collaboration between researchers and practitioners to establish what works best for children and young people on the autism spectrum.

Beyond the Books: Case Study of a Collaborative and Holistic Support Model for University Students with Asperger Syndrome.

This article reflects on the experience of one UK higher education institution in its efforts to develop more effective support mechanisms for the growing numbers of students with Asperger syndrome and autism, in collaboration with a specialist support organisation. Case studies are used to illustrate the complex needs of this group of students. The authors found that this collaborative model was useful in enabling a very stretched student support service to offer an individualised and holistic model of support, in keeping with the needs associated with Asperger syndrome and autism. It is proposed that the model described here, although not without its own limitations, follows the best practice guidance laid down by the UK Disability Discrimination Act, and could be beneficial to students with other disabilities. Of particular note is the need for student support services to view pastoral, non‐academic support as being central to the support that they offer.

‘Why should I be like bloody Rain Man?!’ Navigating the autistic identity

This article explores the views of six higher education students with autism/Asperger syndrome. The research draws upon social identity theory to explore how participants made meaning of their label. There was consensus that information given at the point of diagnosis generally did not reflect their individual experiences. First-hand accounts tended to be perceived as more personally relevant. The ‘Asperger’ identity was generally framed as fragile and inconsistent, leading some individuals to distance themselves from it. This may be problematic for a group that is already disadvantaged and isolated. However, participants conveyed strong self-images regardless of how and whether they identified with their diagnosis, which was attributed to their relative privilege in achieving higher education and therefore experiencing success and achievement related to their personal strengths. In this article, Andrea MacLeod, Ann Lewis and Christopher Robertson, from the University of Birmingham, call for researchers and relevant services to involve autistic individuals directly in fostering a constructive ‘autism identity’.

Implications for practice from ‘International review of the evidence on best practice in educational provision for children on the autism spectrum’

This paper summarises the implications for practice arising from the ‘International review of the evidence on best practice in educational provision for children on the autism spectrum’ and it focuses on key priorities for policy makers, families, practitioners and researchers. Findings highlight that there is little evidence to indicate how different types of provision deliver education or to identify how they impact on outcomes for individual children. Furthermore, the process of deciding on an educational intervention is clearly more complex than the results of individual research papers can tell us. Choice of intervention needs to take account of what is best suited to the child and adults concerned, including the childs characteristics, parental preference, staff expertise and the goals selected. There is a need to focus on the developmental areas of functional spontaneous communication and language, social understanding and joint attention, peer interaction and appropriate toy play. Ongoing parent and teacher collaboration is essential as is a need to develop good collaboration between different professionals, both within and outside settings. Wider inclusion of the perspectives of individuals on the autism spectrum would be welcomed. Training is an important priority as practitioners and parents need specialist knowledge and understanding of the specific needs of children and young people on the autism spectrum. Finally, there is a need for researchers, practitioners, parents and individuals on the autism spectrum to work together much more closely than they do currently in order to determine jointly research agendas and methodologies and to discuss the implications of research findings.

The Birmingham Community Support Scheme for Adults with Asperger Syndrome

The community support scheme for adults with Asperger syndrome began in Birmingham, United Kingdom, in January 1996. The scheme is funded by a joint Health and Social Services grant and ran as a pilot project until January 1999. This article reports on the progress made during the first 15 months of the scheme by examining the philosophy behind the scheme and the practicalities of providing effective community support to people with a diagnosis of Asperger syndrome. Case studies have been included to illustrate support methods in practice, and all names have been changed to maintain confidentiality. Measures of progress within the first year of the scheme were evaluated through attendance rates, observation, reviews, and the comments of the clients and carers themselves.

‘Here I come again’: the cost of success for higher education students diagnosed with autism

ABSTRACT This qualitative study used Interpretative Phenomenological Analysis to consult with 16 autistic UK higher education (HE) students about their experiences of success. An in-depth participatory approach encouraged participants to become co-analysts of their data. Participants offered counter-narratives to deficit-based interpretations of autism, giving accounts of making themselves ‘extra-visible’ as autistic in order to assert their rights. The autism diagnosis was perceived both as an aid to self-understanding and a cause of additional barriers. In raising awareness of their own needs, participants contributed to broader understandings of autism within their academic communities, inadvertently becoming educators and role models. The research highlights the extra effort required by autistic students to thrive within higher education and the barriers imposed by current requirements to both pursue formal diagnosis, and to disclose it in order to receive adjustments. The research was novel in its approach and in its focus on success, revealing original findings in relation to the challenges and barriers faced by high-achieving autistic students, and the implications for a more inclusive higher education curriculum and environment are considered.