Andrew Estefan

A Return to Methodological Commitment: Reflections on Narrative Inquiry

In the 25 years since narrative inquiry emerged as a social science research methodology, it has been rapidly taken up in the social sciences. In what is sometimes called a “narrative revolution,” researchers with diverse understandings have co-opted the concept of narrative inquiry and used narrative inquiry or narrative research to name their methodology. In this paper, we lay out more clearly the ontological and epistemological commitments that underlay the methodological commitments of narrative inquiry. Within narrative inquiry, experience is viewed narratively and necessitates considerations of relational knowing and being, attention to the artistry of and within experience, and sensitivity to the overlapping stories that bring people together in research relationships. Working within the relational three-dimensional narrative inquiry space with dimensions of temporality, sociality, and place, we attend to the living, telling, retelling, and reliving of stories of experience.

The Experience of Waiting: Inquiry Into the Long-term Relational Responsibilities in Narrative Inquiry

Researchers’ experiences as narrative inquirers remind them that stories are important; they sustain and remind people that lives are lived, told, retold, and relived in storied ways. Stories are what people know, how people know, and stories are how people live. Stories are people’s obligation to others, and stories create obligations for these authors as researchers. There are two starting points for narrative inquiry: listening to individuals tell their stories and living alongside participants in the field. It is the living alongside our participants that the authors attend to in this article. To be able to live alongside participants requires researchers to engage in research in profoundly relational ways and calls forth their long-term relational responsibilities.

Families Parenting Adolescents With Substance Abuse—Recovering the Mother’s Voice A Narrative Literature Review

Alcohol and substance dependency are complex, problematic phenomena, which are growing worldwide. In particular, drug use and abuse among young people is a significant concern. Although addiction presents as a problem of dependent individuals, families are also profoundly affected by the family member’s addiction. In this narrative literature review, we review published research from 1937 to 2014 to capture a narrative and historical perspective of addiction and family. We condense and analyze the experiences of parents with alcohol- and drug-dependent children, to emphasize the need for a more specific, in-depth exploration of mothers’ experiences. Such exploration may advance nurses’ understandings of individual, familial, and social complexities of parenting an addicted child.

Exploring the Purposes of Fictionalization in Narrative Inquiry

Drawing on several studies we take up question about fictionalization in this article. In particular, we are interested in the intentions and purposes of fictionalization and discus these within the context of narrative inquiry. We draw attention to how fictionalizing has become a common and often unquestioned part of responding to concerns about anonymity raised by research ethics boards. We see three purposes for fictionalization: (a) protection of the identities of participants, (b) creation of distance between ourselves and our experiences, and (c) a way to engage in imagination that enriches inquiry spaces and research understandings.

Examining the Effects of Childhood Cancer on the Parental Subsystem: Implications for Parents and Health Care Professionals—Part 3

This article is the third part of a hermeneutic research study examining the impact of childhood cancer experiences on the parental relationship. In Part 1, we offered an exploration of the phenomenon with background literature; a description of the research question, method, and design; and finally a discussion of relationships that survived, thrived, or demised, with an emphasis on the notions of difference and trading. In Part 2, we furthered the interpretations to look at the complexities of issues such as teams, roles, focus, protection, intimacy, grieving, putting relationships on hold, and reclaiming them. In this article, we discuss the advice that the participants offered us and how that advice might have implications for other parents in similar situations and health care professionals working with families experiencing childhood cancer.

Differences and Trading: Examining the Effects of Childhood Cancer on the Parental Subsystem-Part 1.

This article is the first of a three-part report of a research study that used hermeneutic inquiry to examine the effects of childhood cancer on the relationship between the parents of the child. In Part 1, we identity the topic of investigation and the relevant literature; describe the research question, method, and design; and begin our interpretations of the data with a focus on the couples who remained together and those who experienced relationship demise. In this analysis, we discovered that issues of difference and trading played a strong role in how the couples fared in their relationships. In Part 2 of this series, we focus on further interpretations, and in Part 3, we discuss the implications of the study for other parents and for health care professionals.

Taking One for the Team Examining the Effects of Childhood Cancer on the Parental Subsystem—Part 2

In this Part 2 of a three-part research paper, we further our interpretations from our hermeneutic study examining how having a child who has experienced cancer had an impact on the relationship between the parents. In Part 1, we identified the focus of the study and provided background to the topic. We also described the research question, method, and design before offering an interpretive analysis of couples whose relationships survived, thrived, or demised. In this article, we extend the interpretations under an overarching theme of “taking one for the team.” Here, we discuss issues of changes in focus and roles, and the notions of tag teaming, protection, intimacy, and grieving. We examine the phenomenon of putting relationships on hold, then finding reclamation later. In Part 3, we offer implications of these findings for other parents in similar situations and for health care professionals working with these families.

Stories That Heal: Understanding the Effects of Creating Digital Stories With Pediatric and Adolescent/Young Adult Oncology Patients:

The purpose of this philosophical hermeneutic study was to determine if, and understand how, digital stories might be effective therapeutic tools to use with children and adolescents/young adults (AYA) with cancer, thus helping mitigate suffering. Sixteen participants made digital stories with the help of a research assistant trained in digital storytelling and were interviewed following the completion of their stories. Findings from this research revealed that digital stories were a way to have others understand their experiences of cancer, allowed for further healing from their sometimes traumatic experiences, had unexpected therapeutic effects, and were a way to reconcile past experiences with current life. Digital stories, we conclude, show great promise with the pediatric and AYA oncology community and we believe are a way in which the psychosocial effects of cancer treatment may be addressed. Recommendations for incorporating digital stories into clinical practice and follow-up programs are offered.

“A Tribe Apart”: Sexuality and Cancer in Adolescence:

This qualitative study employed hermeneutic phenomenology and narrative inquiry to examine the topic of sexuality and adolescents with cancer from the perspectives of survivors who had experienced cancer as adolescents. This investigation examined the potentially sensitive, disquieting, and often taboo issue of sexuality in the interest of optimizing wellness in young people, and, ultimately, in the health of adults. Understanding the adolescent body as a sensitive, sexual, and developing self can enrich our understanding of adolescent cancer and promote best health care and practices, examining ways that we might mitigate the long-term effects of arrested or delayed development of sexual identity. In this article, we discuss phase 1 of the study, which used hermeneutics as the method of inquiry. Findings included a general experience of adolescents having a sense of “losing themselves” while at the same time finding themselves in a new light. Other findings include the connection between sexuality, self, and identity; the unique “tribe” of adolescents with cancer; the necessity for sexuality to take a backseat to cancer; the changing mirror images from self and others; sexuality and fertility; and, ultimately, that sexuality is a relational experience.

“Stories Take Your Role Away From You”: Understanding the Impact on Health Care Professionals of Viewing Digital Stories of Pediatric and Adolescent/Young Adult Oncology Patients:

The purpose of this philosophical hermeneutic study was to understand the effects on health care providers (HCPs) of watching digital stories made by (past and present) pediatric and adolescent/young adult (AYA) oncology patients. Twelve HCPs participated in a focus group where they watched digital stories made by pediatric/AYA oncology patients and participated in a discussion related to the impact the stories had on them personally and professionally. Findings from this research revealed that HCPs found digital stories to be powerful, therapeutic, and educational tools. Health care providers described uses for digital stories ranging from education of newly diagnosed families to training of new staff. Digital stories, we conclude, can be an efficient and effective way through which to understand the patient experience, implications from which can range from more efficient patient care delivery to decision making. Recommendations for incorporating digital storytelling into healthcare delivery are offered.