Annemarie E. Luchtenburg
Erasmus University Rotterdam
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Featured researches published by Annemarie E. Luchtenburg.
American Journal of Transplantation | 2014
Sohal Y. Ismail; Annemarie E. Luchtenburg; Reinier Timman; Wilij Zuidema; C. Boonstra; Willem Weimar; Jan van Busschbach; Emma K. Massey
Our aim was to develop and test an educational program to support well‐informed decision making among patients and their social network regarding living donor kidney transplantation (LDKT). One hundred sixty‐three patients who were unable to find a living donor were randomized to standard care or standard care plus home‐based education. In the education condition, patients and members of their social network participated in home‐based educational meetings and discussed renal replacement therapy options. Patients and invitees completed pre–post self‐report questionnaires measuring knowledge, risk perception, communication, self‐efficacy and subjective norm. LDKT activities were observed for 6 months postintervention. Patients in the experimental group showed significantly more improvements in knowledge (p < 0.001) and communication (p = 0.012) compared with the control group. The invitees showed pre–post increases in knowledge (p < 0.001), attitude toward discussing renal replacement therapies (p = 0.020), attitude toward donating a kidney (p = 0.023) and willingness to donate a kidney (p = 0.039) and a decrease in risk perception (p = 0.003). Finally, there were significantly more inquiries (29/39 vs. 13/41, p < 0.001), evaluations (25/39 vs. 7/41, p < 0.001) and actual LDKTs (17/39 vs. 4/41, p = 0.003) in the experimental group compared with the control group. Home‐based family education supports well‐informed decision making and promotes access to LDKT.
Transplantation | 2013
Sohal Y. Ismail; Annemarie E. Luchtenburg; Judith A. Kal-V Gestel; W. Zuidema; Willem Weimar; Jan J. V. Busschbach; Emma K. Massey
Background We have observed a significant inequality in the number of living-donor kidney transplants (LDKT) performed between patients of non-Western European origin and those of Western European origin. The aim of this study was to investigate modifiable factors that could be used as potential targets for an intervention in an attempt to reduce this inequality. Methods A questionnaire on knowledge, risk perception, communication, subjective norm, and willingness to accept LDKT was completed by 160 end-stage renal patients who were referred to the pretransplantation outpatient clinic (participation rate of 92%). The questionnaire was available in nine languages. Multivariate analyses of variance were conducted to explore differences between patients with and without a living donor. Results There were significantly fewer patients of non-Western descent (11 of 82) that brought a living donor to the outpatient clinic than patients of Western descent (38 of 78). After correcting for the unmodifiable sociodemographic factors non-Western descent, low knowledge, little communication about their kidney disease, and low willingness to communicate with individuals from the social network about LDKT were significantly associated with the absence of a living donor. Conclusions Knowledge and communication are identified as modifiable factors that are associated with the likelihood of identifying a potential living donor for LDKT. This observation makes knowledge and communication targets for interventions to reduce inequality in access to LDKT.
Medicine Health Care and Philosophy | 2012
Sohal Y. Ismail; Emma K. Massey; Annemarie E. Luchtenburg; Lily Claassens; W. Zuidema; Jan J. V. Busschbach; Willem Weimar
Terminal kidney patients are faced with lower quality of life, restricted diets and higher morbidity and mortality rates while waiting for deceased donor kidney transplantation. Fortunately, living kidney donation has proven to be a better treatment alternative (e.g. in terms of waiting time and graft survival rates). We observed an inequality in the number of living kidney transplantations performed between the non-European and the European patients in our center. Such inequality has been also observed elsewhere in this field and it has been suggested that this inequality relates to, among other things, attitude differences towards donation based on religious beliefs. In this qualitative research we investigated whether religion might indeed (partly) be the explanation of the inequalities in living donor kidney transplants (LDKT) among non-European patients. Fifty patients participated in focus group discussions and in-depth interviews. The interviews were conducted following the focus group method and analyzed in line with Grounded Theory. The qualitative data analyses were performed in Atlas.ti. We found that religion is not perceived as an obstacle to living donation and that religion actually promotes helping and saving the life of a person. Issues such as integrity of the body were not seen as barriers to LDKT. We observed also that there are still uncertainties and a lack of awareness about the position of religion regarding living organ donation within communities, confusion due to varying interpretations of Holy Scriptures and misconceptions regarding the process of donation. Faith leaders play an important educational role and their opinion is influential. This study has identified modifiable factors which may contribute to the ethnic disparity in our living donation program. We argue that we need to strive for more clarity and awareness regarding the stance of religion on the issue of living donation in the local community. Faith leaders could be key figures in increasing awareness and alleviating uncertainty regarding living donation and transplantation.
Transplant International | 2013
Sohal Y. Ismail; Lotte Timmerman; Reinier Timman; Annemarie E. Luchtenburg; Peter J. H. Smak Gregoor; Robert W. Nette; Ren e M. A. van den Dorpel; W. Zuidema; Willem Weimar; Emma K. Massey; Jan J. V. Busschbach
Knowledge is a prerequisite for promoting well‐informed decision‐making. Nevertheless, there is no validated and standardized test to assess the level of knowledge among renal patients regarding kidney disease and all treatment options. Therefore, the objective of this study was to investigate the psychometric properties of such a questionnaire for use in research and practice. A 30‐item list was validated in four groups: (1) 187 patients on dialysis, (2) 82 patients who were undergoing living donor kidney transplantation the following day, (3) the general population of Dutch residents (n = 515) and (4) North American residents (n = 550). The psychometric properties of the questionnaire were examined using multidimensional item response theory (MIRT). Norm references were also calculated. Five items were found to distort ability estimates (Differential item functioning; DIF). MIRT analyses were subsequently carried out for the remaining 25 items. Almost all items showed good discrimination and difficulty parameters based on the fitted model. Two stable dimensions with 21 items were retrieved for which norm references for the Dutch and North American, dialysis and transplantation groups were calculated. This study resulted in a thorough questionnaire, the Rotterdam renal replacement knowledge‐test, which enables reliable testing of patients knowledge on kidney disease and treatment options in clinic and research.
BMC Nephrology | 2012
Sohal Y. Ismail; Annemarie E. Luchtenburg; W. Zuidema; Charlotte Boonstra; Willem Weimar; Emma K. Massey; Jan J. V. Busschbach
BackgroundLiving donor kidney transplantation (LDKT) is the most successful form of renal replacement therapy in terms of wait time and survival rates. However, we observed a significant inequality in the number of LDKT performed between the Dutch and the non-Dutch patients. The objective of this study is to adapt, implement and test an educational home-based intervention to contribute to the reduction of this inequality. Our aim is to establish this through guided communication together with the social network of the patients in an attempt that well-informed decisions regarding renal replacement therapy can be made: Multisystemic Engagement & Nephrology. This manuscript is a detailed description of the Kidney Team At Home-study protocol.Methods and designAll patients (>18 yrs) that are referred to the pre-transplantation outpatient clinic are eligible to participate in the study. Patients will be randomly assigned to either an experimental or a control group. The control group will continue to receive standard care. The experimental group will receive standard care plus a home-based educational intervention. The intervention consists of two sessions at the patient’s home, an initial session with the patient and a second session for which individuals from their social network are invited to take part. Based on the literature and behavioural change theories we hypothesize that reducing hurdles in knowledge, risk perception, subjective norm, self-efficacy, and communication contribute to well-informed decision making and reducing inequality in accessing LDKT programs. A change in these factors is consequently our primary outcome-measure. Based on power calculations, we aim to include 160 patients over a period of two years.DiscussionIf we are able to show that this home-based group educational intervention contributes to 1) achieving well-informed decision regarding treatment and 2) reducing the inequality in LDKT, the quality of life of patients will be improved while healthcare costs are reduced. As the intervention is investigated in a random heterogeneous patient group in daily practice, the transfer to clinical practice in other kidney transplant centers should be relatively easy.Trial registrationNetherlands Trial Register, NTR2730.
Patient Education and Counseling | 2013
Sohal Y. Ismail; Lily Claassens; Annemarie E. Luchtenburg; Joke I. Roodnat; W. Zuidema; Willem Weimar; Jan J. V. Busschbach; Emma K. Massey
International Journal of Behavioral Medicine | 2015
Lotte Timmerman; Sohal Y. Ismail; Annemarie E. Luchtenburg; W. Zuidema; Jan N. M. IJzermans; Jan J. V. Busschbach; Willem Weimar; Emma K. Massey
Archive | 2010
Sohal Y. Ismail; Annemarie E. Luchtenburg; Emma K. Massey; Lily Claassens; Jan van Busschbach; W. Weimar
Transplantation | 2012
Sohal Y. Ismail; Annemarie E. Luchtenburg; W. Weimar; W. Zuidema; Emma K. Massey; Jan van Busschbach
Surgical Endoscopy and Other Interventional Techniques | 2011
Sohal Y. Ismail; Emma K. Massey; Marinus A. van den Dorpel; Annemarie E. Luchtenburg; Peter J. H. Smak Gregoor; Robert W. Nette; Lotte Timmerman; Wilij Zuidema; Willem Weimar; Jan van Busschbach