Benito Arias

Measuring quality of life in people with intellectual and multiple disabilities: validation of the San Martín scale.

Although there are numerous quality of life instruments in the, field of intellectual disability, most of them are addressed to those, people with the highest levels of functioning, while only a few are, suitable for people with the lowest levels (i.e., people with profound, and severe intellectual disabilities, or people with intellectual and, developmental disabilities and other significant medical conditions or, disabilities). This study provides reliability and validity evidence of, the San Martín Scale, a 95-item Likert scale questionnaire that is, completed by a third-party respondent. The validation sample was composed, of 1770 people from Spain with intellectual and developmental, disabilities that showed extensive or pervasive support needs (8.7% had, mild intellectual disability, 28.25% moderate, 41.6% severe, and 21.4%, profound). The age of the participants ranged between 16 and 77 years old, (M=7.78; SD=12.32). The results suggested that the eight quality of, life domains assessed on the scale are reliable (Cronbachs alpha ranging, from .821 to .933). Confirmatory Factor Analyses provided construct, validity evidences related to the internal structure of the San Martín, Scale, and indicated that the eight first-order factor solution provided, the best fit to the data over unidimensional and hierarchical solutions. Implications of these findings and guidelines for further research are, discussed.

Factor structure of the construct of adaptive behavior in children with and without intellectual disability

Although the presence of significant limitations in adaptive behavior constitutes one of the three necessary criteria for diagnosing intellectual disability, adaptive behavior structure has always been the subject of considerable controversy among researchers. The main goal of this study is to extend previous research results that provide further support to a multidimensional structure of conceptual, social, and practical skills compared to the unidimensional structure. One-factor and 3-correlated factors models as measured by 15 observable indicators were analyzed by means of confirmatory factor analysis (CFA), as well as their relationships with one second-order factor (i.e., adaptive behavior). To that end, 388 children with and without intellectual disabilities were assessed with the Diagnostic Adaptive Behavior Scale (DABS). Results of CFA indicated that the 3 first-order factors solution provides the best fit to the data. Reliability and validity of the multidimensional model were also analyzed through different methods such as the composite reliability and the average variance extracted. Finally, implications of these findings and possible directions for future research are discussed.

The Multidimensional Nature and Multicultural Validity of a New Measure of Social Anxiety: The Social Anxiety Questionnaire for Adults

Much has been written about the situations most often feared by persons with social phobia, and several self-report measures are frequently used to assess such feared situations. However, it is not clear whether the situations feared by persons with social phobia form unidimensional or multidimensional factors. If these situations are multidimensional, reliance on a total score of feared situations would not reflect important differences between those dimensions. This research examined the multidimensional nature and multicultural validity of a newly developed instrument (the Social Anxiety Questionnaire for Adults [SAQ-A]) in two studies with a total of 539 patients diagnosed with social phobia and 15,753 nonpatients from 20 different countries. The structure (five clear and solid factors) and psychometric properties of the final instrument (the SAQ-A30) support the multidimensional nature of social anxiety and provide a new perspective in the assessment of social phobia.

General and specific attention-deficit/hyperactivity disorder factors of children 4 to 6 years of age: An exploratory structural equation modeling approach to assessing symptom multidimensionality.

We tested first-order factor and bifactor models of attention-deficit/hyperactivity disorder (ADHD) using confirmatory factor analysis (CFA) and exploratory structural equation modeling (ESEM) to adequately summarize the Diagnostic and Statistical Manual of Mental Disorders, 4th Edition, (DSM-IV-TR) symptoms observed in a Spanish sample of preschoolers and kindergarteners. Six ESEM and CFA models were estimated based on teacher evaluations of the behavior of 638 children 4 to 6 years of age. An ESEM bifactor model with a central dimension plus 3 specific factors (inattention, hyperactivity, and impulsivity) showed the best fit and interpretability. Strict invariance between the sexes was observed. The bifactor model provided a solution to previously encountered inconsistencies in the factorial models of ADHD in young children. However, the low reliability of the specific factors casts doubt on the utility of the subscales for ADHD measurement. More research is necessary to clarify the nature of G and S factors of ADHD.

The development and use of Provider Profiles at the organizational and systems level

While the use of quality of life-related personal outcomes has been broadly reported during the last decade, little attention has been paid to the use of such data as a basis for developing and using Provider Profiles at the organizational and systems level. This article illustrates a way in which these evidence-based outcomes may be used not only to improve clinical decisions, but also managerial and policy strategies. To that end, the quality of life of 11,624 social service recipients was assessed by means of the application of the GENCAT Scale, a questionnaire to assess quality of life according to the eight-domain model (Schalock & Verdugo, 2002). Data were analyzed at organizational and the systems level in order to develop Provider Profiles. Once implemented, these profiles can be used to compare individuals in different diagnostic groups, develop province-level performance standards, encourage continuous program improvement, and guide the development of evidence-based policies.

Adaptation and Psychometric Properties of the Spanish Version of the Supports Intensity Scale (SIS)

The Supports Intensity Scale (SIS) is used to determine the profile and intensity of the supports needed by a person to participate successfully in major life activities. With its publication into 13 languages, a need has arisen to document its reliability and validity across language and cultural groups. Here we explain the adaptation and the validation process of the SIS on a Spanish sample of 885 people with intellectual disability. Results of the study are discussed in terms of the reliability and validity of the SIS on the Spanish sample and its efficacy for multiple uses in Spain.

Differences in social anxiety between men and women across 18 countries

Sex differences between men and women in social anxiety are largely unexplored. This study sought to shed some light on this topic. We administered self-report measures of social anxiety to community samples of 17,672 women and 13,440 men from 16 Latin American countries, Spain and Portugal, as well as to a clinical sample of 601 patients diagnosed with social anxiety disorder. Small but significant differences were found between men and women in the general degree of social anxiety and self-reported fears of interactions with the opposite sex, criticism and embarrassment, and speaking in public-talking to people in authority. These results point to small, but meaningful differences between men and women in social anxiety. Implications of these results for the self-report measurement of social anxiety in men and women are discussed.

The Integral Quality of Life Scale: Development, Validation, and Use

This study is aimed to achieve two general goals. The first is to present the quality of life (QOL) conceptual and measurement framework that is currently being used to implement QOL-related program practices, to assess and report personal outcomes, to guide quality improvement strategies, and to evaluate the effectiveness of those practices and strategies. The second is to report about a QOL questionnaire: the QOL Integral Scale (Verdugo, Gomez, Arias, & Schalock, 2009, Quality of life integral scale. Madrid: CEPE), using that theoretical framework. The instrument allows to assessing objective and subjective QOL. The sample was composed of 861 participants with intellectual disabilities. Factorial analysis was combined with innovative analysis such as self-organizing maps (SOM), generative topographic mapping (GTM), and non-metric multidimensional scaling. The psychometric properties of the QOL Integral Scale indicate that the instrument is reliable and valid and, therefore, it can serve as a basis for the development of both person-centered plans and quality improvement strategies in organizations.

Love and Emotional Well-being in People with Intellectual Disabilities

Love has been a recurrent topic throughout history, and especially, literature. Moreover, there is generalized agreement about its relevance for health emotional well-being, and quality of life. This study was carried out with a sample of 376 persons with ID. The goals of the work were to analyze a theoretical model of love in people with intellectual disabilities by means of the methodology of structural equations, and to analyze their perception of love and of amorous relations with regard to other aspects such as amorous satisfaction, perceived satisfaction, absence of family interference, self-determination, and emotional well-being. The results revealed that (a) the construct under study has three factors: Commitment, stability, and idealization, Passion and physiological excitement, and Intimacy and romanticism; (b) the perception of love in this collective is, in general, idealized and affected by the context; and (c) self-determination and the lack of family interference are relevant variables to explain both love and emotional well-being.

Validity and reliability of the INICO-FEAPS Scale: An assessment of quality of life for people with intellectual and developmental disabilities.

This paper documents the validation of a comprehensive scale designed to assess quality-of-life related personal outcomes for people with intellectual and developmental disabilities who receive support in social organizations. The INICO-FEAPS Scale was administered to 1627 people whose ages ranged between 16 and 72 years old. The instrument comprises 72 parallel items organized around eight quality-of-life domains in each of the two forms: a self-report and a report by others. Several internal consistence indexes showed a good reliability of the scale. CFA was used to compare the goodness-of-fit to the data of alternative models. The eight-correlated first-order factors showed the best fit to the data in comparison to the unidimensional solution and hierarchical models. The instrument serves as a helpful tool for organizations to operate as bridges to the community, develop person-centered planning and individualized support, and implement evidence-based practices for quality improvement.