Birgitta Lindberg

Experiences of having a prematurely born infant from the perspective of mothers in northern Sweden

Objectives. The aim of this study was to describe the mothers’ experience of having a prematurely born infant, with the focus on the birth itself and during the time immediately following the birth. Study design. A qualitative design was chosen to achieve the aim of this study. Methods. Six mothers, whose infants were born prematurely and thereby needed care on a neonatal intensive care unit (NICU), participated in the study. Narrative interviews were conducted and the mothers were encouraged to freely narrate their experiences of having an infant born preterm. A qualitative content analysis was used to analyse the interviews. Results. The results show that mothers were not prepared for having prematurely born infants and that initially they had difficulties feeling like a mother. Having an infant born preterm was dominated by feelings of anxiety. Feeling closeness to the child was important, and separation from the child was a very stressful experience. Family life was affected, but mothers felt they were able to handle the situation if they received support from their partner and hospital staff, and if they were equipped with knowledge regarding the birth and care of a premature infant. Furthermore, it was important for the mothers to be involved in their infants’ care. Conclusions. Support and knowledge made it possible for mothers to handle having a premature infant. Mothers’ situations could be facilitated if nurses had increased knowledge and understanding about how mothers experience this situation.

Adjusting to being a father to an infant born prematurely : experiences from Swedish fathers

The aim of this study was to describe the experiences of being a father to a prematurely born infant. Eight fathers of prematurely born children were interviewed using a narrative approach, and a thematic content analysis was used to analyse the interviews. The fathers described that the preterm birth gave them the chance to get to know their infant as they had to spend time at the intensive care unit. They also felt better educated by professionals who helped them take care of their infant. Their feelings and attachment for their infant increased over time and the fathers felt that they had a stronger bond with their child compared with friends who had babies born at term. As time passed, they became more confident as a father. In spite of the strain, the experience made them change as a person and they expressed having different values. The relationship with their partner was strengthened as they handled this situation together as a couple. However, the fathers felt fortunate despite everything and described having managed a prematurely born infant rather well. Although there are similarities between being a father to a child born at term and to one born preterm, it is significant to gain further knowledge about the specific experiences of fathers of prematurely born infants. The results of this study have implications for nurses working with families who have children born prematurely.

Using information and communication technology in home care for communication between patients, family members, and healthcare professionals: a systematic review

Introduction. Information and communication technology (ICT) are becoming a natural part in healthcare both for delivering and giving accessibility to healthcare for people with chronic illness living at home. Aim. The aim was to review existing studies describing the use of ICT in home care for communication between patients, family members, and healthcare professionals. Methods. A review of studies was conducted that identified 1,276 studies. A selection process and quality appraisal were conducted, which finally resulted in 107 studies. Results. The general results offer an overview of characteristics of studies describing the use of ICT applications in home care and are summarized in areas including study approach, quality appraisal, publications data, terminology used for defining the technology, and disease diagnosis. The specific results describe how communication with ICT was performed in home care and the benefits and drawbacks with the use of ICT. Results were predominated by positive responses in the use of ICT. Conclusion. The use of ICT applications in home care is an expanding research area, with a variety of ICT tools used that could increase accessibility to home care. Using ICT can lead to people living with chronic illnesses gaining control of their illness that promotes self-care.

Standing on their own feet: Experiences of young people living with Type 1 diabetes when entering adulthood — A qualitative study

Type 1 diabetes can complicate the lives of young people. The aim was to describe the experiences of young people living with Type 1 diabetes when entering adulthood. Nine young people were interviewed. The general principles of interpretative descriptions were used in the analysis. Results showed that young people with Type 1 diabetes lived a life like other young people, but they often had to face a lack of knowledge and understanding. Although they knew how to live, it was not easy to be in control. Even if they took responsibility for their illness, support was critically important. They did not think so much about how their illness might impact their future life. Overall, young people described their life situation positively and dealt with their diabetes naturally. To better support and facilitate the transition to adulthood, health care professionals who are engaged with young people living with Type 1 diabetes need to have better insight into how they experience their life.

Providing Breastfeeding Support: Experiences from Child-Health Nurses

Background : Breastfeeding problems are common during the early period but can often be prevented or overcome with adequate support. Child-health nurses meet almost all children during their first weeks of life and play an important role in promoting breastfeeding and in strengthening parents’ confidence and their belief in their own ability. It is, therefore, important to gain more knowledge about child-health nurses’ experiences. Objective : To describe child-health nurses’ experiences of providing breastfeeding support. Methods : This qualitative study is descriptive with an inductive approach. A purposive sample of eight child-health nurses recruited from district health care centers participated. Data were collected through focus group interviews and analyzed with content analysis. Results : Child-health nurses consider it to be important to provide early breastfeeding support and that early hospital discharge following birth can complicate breastfeeding. Furthermore, the introduction of infant formula and tiny tastes given to the baby can be a barrier to breastfeeding. Parents’ confidence had an effect on breastfeeding, and breastfeeding is promoted by confident parents. Trends and cultural differences have an influence on parents’ attitudes toward breastfeeding. Child-health nurses stated the importance of having a consensus breastfeeding policy. Conclusion and Recommendation : A number of factors affect breastfeeding, and breastfeeding support from child-health nurses is important in the early stages after birth. To conclude, the support must be individually tailored with a focus on the parents’ needs. There is a need for greater cooperation between the maternal care and child-health care staff in order to provide adequate and continuous breastfeeding support throughout the care chain.