Charlotte Schmidt Skov

No News is Good News: Remote Monitoring of Implantable Cardioverter-Defibrillator Patients

Implantable cardioverter-defibrillator (ICD) patients have increased safety when connected to remote monitoring as ICD problems and issues are instantly discovered compared to patients without a monitor. While remote monitoring is intrusive in the domestic environment, little HCI research has investigated how people live and interact with such monitoring technologies. We conducted a study with 19 ICD patients and their spouses using diaries and interviews. Our findings illustrate that our participants were satisfied with the monitoring despite the fact that they had almost no knowledge of the data collected and they lacked feedback from the monitor on transmission and operation. Based on our findings, we describe a safety paradox for remote monitoring as participants experienced less safety while being safer, and identify privacy and surveillance concerns in the unequal monitoring of ICD patients.

Diagnostic Agents: Collaborative Interpretation for Cardiac Patients at Home

HCI research shows that cardiac patients dislike the passive role imposed by current home monitoring technology. In this paper, we explored how cardiac patients reacted to taking on a more active role of being a diagnostic agent. We developed and implemented a technology probe for these patients to report symptoms and other health metrics to health providers daily . and We studied their interaction with the probe forover eight weeks. Our preliminary findings unfold three themes namely; patient reflection or obsession, patient roles and responsibility towards healthcare staff, and opportunities for nurses to use reports at the hospital in the process of collaborative interpretation. We add to earlier studies, by focusing on the daily, patient-initiated reporting and present topics for further studies.

Collaborative symptoms interpretation for cardiac patients as diagnostic agents.

Home monitoring of cardiac patients with an implantable cardioverter-defibrillator (ICD) holds promising benefits such as improved mortality rates, but HCI research shows that patients dislike the passive role imposed by current home monitoring technology. In this paper, we report from a study on how cardiac patients reacted to taking on a more active role of being a diagnostic agent. We developed and implemented a technology probe for reporting symptoms and other health metrics to health providers daily and studied ten ICD patients interacting with the probe for eight weeks. Our analysis resulted in three themes; patient reflection and obsession, patient roles and responsibility towards healthcare staff, and opportunities for nurses to use reports at the hospital. We contribute to HCI research on home monitoring by discussing the role of the diagnostic agent and the potential for implanted chronic patients to engage in collaborative interpretation with health providers.

Living with a green ligth in the bedroom

Background: Heart failure is a common chronic condition that affects patients’ life situation and puts high demands on self-care and patient participation. Patients often need advanced care due to ...

Living with a green ligth in the bedroom: remote monitoring of patients with implantable cardioverter defribrillator

Background: Heart failure is a common chronic condition that affects patients’ life situation and puts high demands on self-care and patient participation. Patients often need advanced care due to ...

Living with an ICD-recipient

Purpose: Approximately 10 000 people in Sweden suffer from sudden cardiac arrest outside the hospital each year. Cardiopulmonary resuscitation (CPR) is started in about half of the cases. Treatment ...Background: Chest pain is one of the most common reasons for hospital admissions and more than 50 % of the patients admitted are diagnosed as non-cardiac and discharged without a clear explanation ...The purpose was to investigate how a negative life event (NLE) affects perceived psychosocial stress, recovery and running economy (RE). Competitive runners were monitored in a prospective non-experimental cohort study over one full training season in which they experienced the same unplanned severe NLE. Sixteen runners recorded stress and recovery scores (RESTQ-Sport) every week. The average scores over 3 weeks before the NLE were used as a baseline and were compared to scores during the week of the NLE (week 0), week 1and week 2. Seven runners completed a submaximal treadmill test before and after the NLE. Repeated measures ANOVA’s revealed that most scores on general stress scales were increased in week 0 and 1. Of the general recovery scales, “general well-being” was decreased in week 0 and 1, “social” and “physical recovery” were decreased in week 0. No changes in the sport-specific stress scales were found. However, two of the sport-specific recovery scales were decreased in week 0. An impaired RE was shown 3 weeks after the NLE. Therefore, it is important to know what is going on in an athlete’s life, because stressful life events alter RE after the stress and recovery already returned to normal levels.

Living with an ICD-recipient: Four partner roles and responsibilities

Purpose: Approximately 10 000 people in Sweden suffer from sudden cardiac arrest outside the hospital each year. Cardiopulmonary resuscitation (CPR) is started in about half of the cases. Treatment ...Background: Chest pain is one of the most common reasons for hospital admissions and more than 50 % of the patients admitted are diagnosed as non-cardiac and discharged without a clear explanation ...The purpose was to investigate how a negative life event (NLE) affects perceived psychosocial stress, recovery and running economy (RE). Competitive runners were monitored in a prospective non-experimental cohort study over one full training season in which they experienced the same unplanned severe NLE. Sixteen runners recorded stress and recovery scores (RESTQ-Sport) every week. The average scores over 3 weeks before the NLE were used as a baseline and were compared to scores during the week of the NLE (week 0), week 1and week 2. Seven runners completed a submaximal treadmill test before and after the NLE. Repeated measures ANOVA’s revealed that most scores on general stress scales were increased in week 0 and 1. Of the general recovery scales, “general well-being” was decreased in week 0 and 1, “social” and “physical recovery” were decreased in week 0. No changes in the sport-specific stress scales were found. However, two of the sport-specific recovery scales were decreased in week 0. An impaired RE was shown 3 weeks after the NLE. Therefore, it is important to know what is going on in an athlete’s life, because stressful life events alter RE after the stress and recovery already returned to normal levels.