Christina Foss

The construction of the gendered patient: hospital staff’s attitudes to female and male patients

This article presents an analysis of some of the gendered attitudes to male and female patients as expressed by a variety of hospital staff, such as physicians, nurses and nursing aides of both sexes. Through unstructured interviews, we attempted to capture the staffs descriptions of female and male patients. Analysis and interpretation was based on an analytic framework of symbolic interaction where perception of patient as gendered was seen as negotiated through interactions between the health care worker and the patient. All staff, independent of their own gender, describe differences between female and male patients. Despite some differences between professional positions, all describe female patients as more demanding than male. Physicians describe elderly female patients in particular, as being demanding, while nursing staff say younger women are most demanding.

Measuring the participation of elderly patients in the discharge process from hospital: a critical review of existing instruments.

Scand J Caring Sci; 2010; 24; 46–55 Measuring the participation of elderly patients in the discharge process from hospital: a critical review of existing instruments Measuring patients’ experiences has been a major task for health care organisations during the past decade. The discharge process is identified as a vulnerable component of health care in need of assessment, especially when it concerns elderly persons. There are no published reviews or systematic assessment of the existing instruments developed to capture patients’ perspective on the discharge process. This study gives a review of existing survey instruments designed to assess patients’ perspectives on the discharge process. We used systematic searches for potentially relevant instruments in MEDLINE, PubMed, CINAHL, and the Cochrane Database of Systematic Reviews for English language studies published between 1998 and 2009 was considered to evaluate the patients’ perspective on the discharge process. Ten studies were included and assessed according to the established criteria, and the studies presented a total of 47 items related to participation. The review identified only one instrument designed specifically to capture participation in the discharge process. The main focus is on the information flow from the professional to the patient and never vice versa. Few of the instruments studied/analysed to what degree the patients were invited to share their knowledge, and none of the instruments inquired whether, in the patients’ experiences, their perspective was taken into account. The major finding of the review is that none of the existing instruments capture the full range of participation, nor do they cover those areas of the discharge process identified by elderly patients themselves as the most essential.

Sufficient competence in community elderly care? Results from a competence measurement of nursing staff

BackgroundMulti-morbidity, poly-pharmacy and cognitive impairment leave many old patients in a frail condition with a high risk of adverse outcomes if proper health care is not provided. Knowledge about available competence is necessary to evaluate whether we are able to offer equitable and balanced health care to older persons with acute and/or complex health care needs. This study investigates the sufficiency of nursing staff competence in Norwegian community elderly care.MethodsWe conducted a cross-sectional survey of 1016 nursing staff in nursing homes and home care services with the instrument “Nursing Older People – Competence Evaluation Tool”. Statistical analyses were ANOVA and multiple regression.ResultsWe found that nursing staff have competence in all areas measured, but that the level of competence was insufficient in the areas nursing measures, advanced procedures, and nursing documentation. Nursing staff in nursing homes scored higher than staff in home care services, and older nursing staff scored lower than younger nursing staff.ConclusionsA reason for the relatively low influence of education and training on competence could be the diffuse roles that nursing staff have in community elderly care, implying that they have poor standards against which to judge their own competence. Clearer role descriptions for all groups of nursing staff are recommended as well as general competence development in geriatric nursing care.

The indispensable intermediaries: a qualitative study of informal caregivers’ struggle to achieve influence at and after hospital discharge

BackgroundThe care policy and organization of the care sector is shifting to accommodate projected demographic changes and to ensure a sustainable model of health care provision in the future. Adult children and spouses are often the first to assume care giving responsibilities for older adults when declining function results in increased care needs. By introducing policies tailored to enabling family members to combine gainful employment with providing care for older relatives, the sustainability of the future care for older individuals in Norway is more explicitly placed on the family and informal caregivers than previously. Care recipients and informal caregivers are expected to take an active consumer role and participate in the care decision-making process. This paper aims to describe the informal caregivers’ experiences of influencing decision-making at and after hospital discharge for home-bound older relatives.MethodsThis paper reports findings from a follow-up study with an exploratory qualitative design. Qualitative telephone interviews were conducted with 19 informal caregivers of older individuals discharged from hospital in Norway. An inductive thematic content analysis was undertaken.ResultsInformal caregivers take on comprehensive all-consuming roles as intermediaries between the care recipient and the health care services. In essence, the informal caregivers take the role of the active participant on behalf of their older relative. They describe extensive efforts struggling to establish dialogues with the “gatekeepers” of the health care services. Achieving the goal of the best possible care for the care recipient seem to depend on the informal caregivers having the resources to choose appropriate strategies for gaining influence over decisions.ConclusionsThe care recipients’ extensive frailty and increasing dependence on their families coupled with the complexity of health care services contribute to the perception of the informal caregivers’ indispensable role as intermediaries. These findings accentuate the need to further discuss how frail older individuals and their informal caregivers can be supported and enabled to participate in decision-making regarding care arrangements that meet the care recipient’s needs.

Diabetes self-management arrangements in Europe: a realist review to facilitate a project implemented in six countries

BackgroundSelf-management of long term conditions can promote quality of life whilst delivering benefits to the financing of health care systems. However, rarely are the meso-level influences, likely to be of direct relevance to these desired outcomes, systematically explored. No specific international guidelines exist suggesting the features of the most appropriate structure and organisation of health care systems within which to situate self-management approaches and practices. This review aimed to identify the quantitative literature with regard to diabetes self-management arrangements currently in place within the health care systems of six countries (The United Kingdom, The Netherlands, Norway, Spain, Bulgaria, and Greece) and explore how these are integrated into the broader health care and welfare systems in each country.MethodsThe methodology for a realist review was followed. Publications of interest dating from 2000 to 2013 were identified through appropriate MeSH terms by a systematic search in six bibliographic databases. A search diary was maintained and the studies were assessed for their quality and risk of bias.ResultsFollowing the multi-step search strategy, 56 studies were included in the final review (the majority from the UK) reporting design methods and findings on 21 interventions and programmes for diabetes and chronic disease self-management. Most (11/21, 52%) of the interventions were designed to fit within the context of primary care. The majority (11/21, 52%) highlighted behavioural change as an important goal. Finally, some (5/21, 24%) referred explicitly to Internet-based tools.ConclusionsThis review is based on results which are derived from a total of at least 5,500 individuals residing in the six participating countries. It indicates a policy shift towards patient-centred self-management of diabetes in a primary care context. The professional role of diabetes specialist nurses, the need for multidisciplinary approaches and a focus on patient education emerge as fundamental principles in the design of relevant programmes. Socio-economic circumstances are relevant to the capacity to self-manage and suggest that any gains and progress will be hard to maintain during economic austerity. This realist review should be interpreted within the wider context of a whole systems approach regarding self-care support and chronic illness management.

Social Support and Health in Diabetes Patients: An Observational Study in Six European Countries in an Era of Austerity

Introduction Support from individual social networks, community organizations and neighborhoods is associated with better self-management and health outcomes. This international study examined the relative impact of different types of support on health and health-related behaviors in patients with type 2 diabetes. Methods Observational study (using interviews and questionnaires) in a sample of 1,692 type 2 diabetes patients with 5,433 connections from Bulgaria, Greece, Netherlands, Norway, Spain, and the United Kingdom. Outcomes were patient-reported health status (SF-12), physical exercise (RAPA), diet and smoking (SDCSCA). Random coefficient regression models were used to examine linkages with individual networks, community organizations, and neighborhood type (deprived rural, deprived urban, or affluent urban). Results Patients had a median of 3 support connections and 34.6% participated in community organizations. Controlled for patients’ age, sex, education, income and comorbidities, large emotional support networks were associated with decrease of non-smoking (OR = 0.87). Large practical support networks were associated with worse physical and mental health (B = -0.46 and -0.27 respectively) and less physical activity (OR = 0.90). Participation in community organizations was associated with better physical and mental health (B = 1.39 and 1.22, respectively) and, in patients with low income, with more physical activity (OR = 1.53). Discussion Participation in community organizations was most consistently related to better health status. Many diabetes patients have individual support networks, but this study did not provide evidence to increase their size as a public health strategy. The consistent association between participation in community organizations and health status provides a clear target for interventions and policies.

Empowerment and Bariatric Surgery Negotiations of Credibility and Control

Today obesity is understood as a chronic illness. Programs developed to deal with obesity often build on an explicit aim to “empower” patients to take increased responsibility for their health, in line with contemporary neoliberal discourses. There is little empirically based knowledge about this so-called empowering process. In this article we focus on how an empowering program for patients diagnosed as morbidly obese worked on individuals’ identity. The program encompassed a course in lifestyle change, bariatric surgery, and aftercare. We conducted qualitative interviews with 9 individuals at different stages of their treatment process and applied discourse analysis to interpret their constructions and negotiations as they progressed through the program. We found that dimensions of control and credibility framed the respondents’ identity work. Based on the findings we suggest that contemporary discourses of empowerment as practice might leave the participants “trapped” within the ambivalence of freedom and control.

Voluntary Organizations and Community Groups as New Partners in Diabetes Self-management and Education: A Critical Interpretative Synthesis

Purpose The purpose of this study is to critically review the literature on the role and work of voluntary organizations and community groups and volunteers in diabetes self-management programs. It seeks to explain how these organizations are located and could be integrated further within a broader system of support. Methods A critical interpretative synthesis of the literature was undertaken as part of the conceptual development of a European research project. Evidence (2000-November 2014) was searched in databases, with the use of key terms, and limited to the languages of the participating countries. This was supplemented by an additional hand search and snowballing technique. A total of 21 articles were included in the review. Results Evidence regarding the involvement of voluntary organizations in diabetes self-management programs mainly related to: the nature and remit of their work, responsibilities, and attributes; key strategies of programs accounting for success; motivations/barriers for engaging in volunteering participation; relationships between volunteers and users; and connections/tensions with formal services. Conclusions This review has uncovered a range of facets of voluntary organizations and community groups relevant for supporting diabetes self-management such as the context within which they act and the nature of relationships developed with community and health services. The principles of “assistance, support, sharing, and link” seem essential for this voluntary initiative in self-management to establish effective reciprocal collaboration with health professionals.

Caught between conduct and free choice--a field study of an empowering programme in lifestyle change for obese patients.

The aim of this study was to investigate understandings and strategies of empowerment in Learning and Mastery Centres, in a course in lifestyle change for morbidly obese patients. A field study was conducted with nonparticipant observation, and data analysis was inspired by foucauldian discourse analysis. The analysis revealed powerful discourses underlying the course, and the analysis showed how different discourses were set at play within the teaching strategies in the course. The course leaders balanced powerful aspects that involved directing the participants towards strategies promoting their autonomy. The analysis revealed how strategies to reduce the impression of direction and conduct are powerful actions. From a foucauldian perspective of power, this analysis demonstrates how power is everywhere as a productive force. When creating programmes to empower patients to help them deal with their health, it seems vital that health professionals examine power. By accepting the presence of power, professionals can examine the truth motivation underlying an empowerment programme.

Competence in advanced older people nursing: development of ‘Nursing older people – Competence evaluation tool’

BACKGROUND Community care is characterised by a move from institutionalised to home-based care, a large patient population with comorbidities including cognitive failure, and nurses who struggle to keep up with their many competence demands. No study has examined the competence of nurses based on present demands, and an instrument for this purpose is lacking. AIM AND OBJECTIVE We conducted a Delphi study based in Norway to develop the substantial content of a new competence measurement instrument. We sought to reach consensus regarding which nursing staff competence is most relevant to meet the current needs of older patients. DESIGN AND METHOD A total of 42 experts participated in three consecutive panel investigations. Snowball sampling was used. The experts were clinicians, leaders, teachers, researchers and relatives of older people who required nursing. In Round 1, all experts were interviewed individually. These data were analysed using meaning coding and categorisation. In Rounds 2 and 3, the data were collected using electronic questionnaires and analysed quantitatively with SPSS. RESULTS The experts agreed that health promotion as well as disease prevention, treatment, palliative care, ethics and regulation, assessment and taking action, covering basic needs, communication and documentation, responsibility and activeness, cooperation, and attitudes towards older people were the most relevant categories of competence. CONCLUSIONS The experts showed clear consensus regarding the most relevant and current competence for nurses of older people. Assuming that older people in need of health care have the same requirements across cultures, this studys findings could be used as a basis for international studies. IMPLICATIONS FOR PRACTICE Those who nurse older people require competence that is complex and comprehensive. One way to evaluate nursing competence is through evaluation tools such as the Nursing Older People--Competence Evaluation tool.