Deb Keen

A Review of Processes and Outcomes in Family-Centered Services for Children With a Disability

The importance of being family centered when providing services to children with a disability and their families has gained currency in the research and practice literature. A growing body of evidence has validated many of the theoretical links between the help-giving practices of staff and desirable outcomes for families with a child with a disability. However, it is clear from the research to date that the relationship between the provision of family-centered services and the achievement of positive outcomes for children and their parents is complex and is yet to be fully understood. The present article reviews the research in this area and discusses the links between help-giving practices and child and family outcomes for families who have a member with a disability. The article summarizes the extant research in an accessible format and identifies areas for future research.

Replacing prelinguistic behaviors with functional communication

This study evaluated the effectiveness of a teacher-implemented intervention package designed to replace prelinguistic behaviors with functional communication. Four young children with autism participated in a multiple-probe design across three communicative functions. Initially, three existing communication functions were selected for each child. Next, the existing prelinguistic behaviors that the children used to achieve these functions were identified. Replacement forms that were considered more recognizable and symbolic were defined to achieve these same functions. After a baseline phase, teachers received inservice training, consultation, and feedback on how to encourage, acknowledge, and respond to the replacement forms. During intervention, the replacement forms increased and prelinguistic behaviors decreased in most cases. The results suggested that the teacher-implemented intervention was effective in replacing prelinguistic behaviors with alternative forms of functional communication.

Identifying Potential Communicative Acts in Children with Developmental and Physical Disabilities

There is growing recognition of the communicative potential in many of the informal and idiosyncratic behaviors exhibited by children with developmental and physical disabilities. To assist in assessment and intervention planning, it would seem important to identify these potential communicative acts. To this end, the present article describes the development of the Inventory of Potential Communicative Acts (IPCA). The IPCA is an interview schedule designed to be completed by parents, teachers, and therapists of children with developmental and physical disabilities and severe communication impairment. It consists of 53 questions asking informants to indicate how the child communicates 10 distinct pragmatic functions. To date, pilot testing, development research, and field trials have involved 30 children. The results of this development work indicate that the IPCA is an efficient means of collecting accurate and verifiable data on the potential communicative acts of children with severe communication impairment associated with a range of developmental and physical disabilities. Use of the IPCA in communication assessment and intervention is discussed.

Parent stress, parenting competence and family-centered support to young children with an intellectual or developmental disability.

A family-centered approach to the support of families with a young child with an intellectual or developmental disability has been widely adopted in the last decade. While some of the foundational assumptions of family-centered theory have been tested, there remain considerable gaps in the research evidence for this approach. While parenting stress and competence have been examined in the general family support literature, these variables have received little attention in the family-centered support literature. This pilot study examined the relationship between parent stress and parenting competence and family-centered support. The results suggest that important components of family-centered practice are significantly associated with parent stress, but that a meaningful association between parenting competence and family-centered practice is yet to be demonstrated.

Parents, Families, and Partnerships: Issues and considerations

The first contact parents may have with a professional in relation to their child with a disability is often at the point of diagnosis. From that moment onwards, parents embark on a journey that generally involves the formation of many relationships with professionals working in the field. These relationships have the potential to facilitate individual and family outcomes but may also jeopardise these outcomes. It is not surprising that researchers have been interested in examining the components of productive relationships and the impact these may have on the quality of life for individuals with disabilities and their families. This article draws on the work of contributing authors to this special issue to examine some of the research that has led to our current understandings of how parents who have a child with a disability and professionals can form meaningful and productive partnerships. It considers how the nature of these partnerships is changing, and some of the issues that have been raised as a result of these changes.

Music Interventions for Children with Autism: Narrative Review of the Literature

It is widely reported that music can be beneficial to individuals with autism. This review was undertaken to determine the evidence base for the use of music as an intervention for children with autism. After searching relevant databases, 128 articles were identified of which 20 articles met the study’s inclusion criteria. Composed songs and improvisational music therapy were the predominant music techniques used. There was somewhat limited evidence to support the use of music interventions under certain conditions to facilitate social, communicative and behavioural skills in young children with autism. The implications of these findings in terms of use of music interventions, issues related to generalization and maintenance, and future research are discussed.

'Participation': a systematic review of language, definitions, and constructs used in intervention research with children with disabilities.

Improving participation of children with disabilities is a priority; however, the participation construct lacks clarity. This systematic review investigated how researchers defined ‘participation’ and the language used in participation intervention research.

A pilot study of the effects of a social-pragmatic intervention on the communication and symbolic play of children with autism

The acquisition of social communication skills is a major challenge faced by children with autism. This pilot study investigated the effects of the Stronger Families Project, a social-pragmatic intervention, on the communication and symbolic abilities of 16 children aged 2–4 years with autism. Standardized measures of the childs communication and symbolic behaviour were conducted by independent observers at a university clinic pre and post-intervention, and parents were interviewed to determine the impact of variables such as maternal stress and competence on the childs social communication. Changes in some communication and symbolic behaviours occurred following the Stronger Families Project intervention according to parent report. However, improvements based on ratings by independent observers were not significant. Results are discussed in relation to the assessment of changes in the social communication and symbolic play of children with autism following intervention using clinical observation and parent report.

The effect of interventions aimed at improving participation outcomes for children with disabilities : a systematic review

Enhancement of participation has been described as the ultimate outcome for health and educational interventions. The goal of this systematic review was to identify and critically appraise studies that aimed to improve the participation outcomes of children with disabilities.

How well are children with autism spectrum disorder doing academically at school? An overview of the literature

The academic achievement of individuals with autism spectrum disorder has received little attention from researchers despite the importance placed on this by schools, families and students with autism spectrum disorder. Investigating factors that lead to increased academic achievement thus would appear to be very important. A review of the literature was conducted to identify factors related to the academic achievement of children and adolescents with autism spectrum disorder. A total of 19 studies were identified that met the inclusion criteria for the review. Results indicated that many individuals demonstrate specific areas of strength and weakness and there is a great deal of variability in general academic achievement across the autism spectrum. Adolescents and individuals with lower IQ scores were underrepresented, and few studies focused on environmental factors related to academic success. The importance of individualised assessments that profile the relative strengths and weaknesses of children and adolescents to aid in educational programming was highlighted. Further research on child-related and environmental factors that predict academic achievement is needed.