Déborah Cristina de Oliveira

Cuidado ao idoso em Campinas-SP: estudo qualitativo com gestores e representantes políticos

ReSUmO O estudo busca identificar, descrever e analisar as praticas pertinentes a saude do idoso na cidade de Campinas-SP, na perspectiva de representantes da saude do idoso, tendo como base a Politica Nacional de Saude a Pessoa Idosa. Estudo qualitativo, com analise tematica de conteudo, na perspectiva de sujeitos que assumem funcoes estrategicas na conducao da politica direcionada ao idoso no municipio. A partir dos depoimentos dos sujeitos emergiram cinco temas centrais: tempos e lugares; condicoes de acesso; demandas da populacao; recursos humanos; promocao a saude e prevencao de doencas e agravos; gestao. As praticas voltadas a saude do idoso em Campinas estao em desenvolvimento e precisam ser avaliadas, ampliadas e sistematizadas, tanto nas questoes estruturais de recursos humanos, financiamento e gestao, quanto na atencao direta ao idoso. descritores: Idoso; Politicas Publicas; Servicos de Saude; Enfermagem.The study aimed to identify, describe and analyze the practices carried out in the health of the elderly in the city of Campinas-SP, in the perspective of the health government representatives of the elderly, based on the National Policies. This is a qualitative study with thematic content analysis, from the perspective of individuals who assume strategic roles in the conduct of policy directed to the elderly in the county. Five central themes emerged from their comments: time and places; access conditions; population demands; human resources; health promotion and prevention of diseases and disorders; management. Health practices for the elderly health in Campinas-SP are in development, need to be evaluated, extended and systematized in both, the structural issues of human resources, finance and management, and in direct assistance to the elderly.

What would most help improve the quality of life of older family carers of people with dementia? A qualitative study of carers’ views

Older family carers of people with dementia provide a substantial amount of care for people with dementia in the UK. Caregiving can be stressful and burdensome for these individuals, who are also experiencing psychological and physical changes resulting from their own ageing process. However, little is known about what impacts their quality of life, how this can be improved and what we should prioritise. This brief report asks one simple question to older family carers of people living with dementia – “What would most help improve your quality of life as a carer?” Qualitative data were collected from 150 carers who completed an anonymous paper survey during the development and validation of a quality of life tool for use with this population (DQoL-OC). Participants were individuals aged 60 and over and were providing care for a family member with dementia at home in the UK. Carers were recruited from a variety of voluntary organizations, community-based carers’ groups, health services and via online forums. A thematic approach was used to analyse the carers’ comments and three main overarching themes were identified. The quality of life of older family carers can be enhanced by having more time away from caregiving, accessing health and social services that are dementia friendly and by having economic support. Future care, policies and research should aim to address these key areas in order to promote better quality of life for older carers of people with dementia. Further implications for practice, policy and research are discussed.

MOTIVATION AND WILLINGNESS TO CHANGE LIFESTYLE FOR DEMENTIA RISK REDUCTION: PRELIMINARY RESULTS FROM A NATIONAL U.K. SURVEY WITH PEOPLE AGED 50+

P4-174 MOTIVATION ANDWILLINGNESS TO CHANGE LIFESTYLE FOR DEMENTIA RISK REDUCTION: PRELIMINARY RESULTS FROM A NATIONAL U.K. SURVEY WITH PEOPLE AGED 50+ Deborah Oliveira, Aimee Aubeeluck, Lauren Yates, Eef Hogervorst, Sarang Kim, Martin Orrell, University of Nottingham, Nottingham, United Kingdom; Loughborough University, Loughborough, United Kingdom; Australian National University, Canberra, Australia. Contact e-mail: oliveiradc.phd@gmail.com

HEALTH-PROMOTING SELF-CARE IN FAMILY CARERS OF PEOPLE WITH DEMENTIA

Background:Family carers of people with dementia often neglect their own health needs in order to provide care. This has significant impact on their quality of life, use of health care services and ability to provide good care. This study aimed to better understand family carers’ unmet health needs, why these needs are unmet and what can be done to help carers look after their own health better. Methods:This study involved a series of qualitative investigations. First, a scoping review of the literature was conducted in July 2017 and eight research experts from many countries were consulted about their current knowledge on this subject. Second, three consultation events with multiple stakeholders (n1⁄450) and four focus groups with carers (n1⁄421) were carried out in Nottinghamshire, UK. The data collected was transcribed verbatim and analysed thematically, following an inductive approach. Results:There is a limited number of interventions aimed at promoting health-promoting self-care in carers (n1⁄46). The selected studies were mostly carried out in the USA, used small samples and were focused solely on female carers. Research experts believe that this an under-explored area and provided useful information for future research. Qualitative data suggests that family carers are not receiving the support they need, are they receiving enough opportunities for respite breaks, and feel unable to follow a healthier lifestyle or to focus on their own health needs. Family carers need: 1) more opportunities for peer support among carers; 2) faster/earlier dementia diagnosis and support; 3) more frequent respite breaks, appropriate for carers’ needs; 4) specialized dementia care; 5) dementia awareness and training for health and social care professionals; 6) continuity of care; and 7) more transparent and easier care pathways and legal systems. Conclusions:This study identified a limited number of interventions focused on improving health-promoting self-care in carers of people with dementia. Useful information was collected from research experts, carers and other stakeholders to inform for future research and support for carers. This presentation will show further study findings, will discuss these in relation to current policies and will provide recommendations for care and future research.

Quality of life on the views of older family carers of people with dementia

Older family carers of people with dementia represent an increasing but overlooked population of family carers. This research aimed to explore how these individuals make sense of their own quality of life and to identify the factors that enhance or compromise this. Four focus groups were conducted in 2014 with 19 older family carers in community-based support groups in Nottinghamshire, United Kingdom. Data were transcribed verbatim and analysed using Interpretative Phenomenological Analysis. Thirty-three subthemes emerged and were collated into three superordinate themes: 1) aspects of care and caregiving, 2) feelings and concerns, and 3) satisfaction with life and caregiving. This study identified a broad range of aspects that are of particular importance to the quality of life of older family carers of people with dementia. These findings are expected to inform future research as well as health and social care providers with the aim of improving life quality for this population.

Care to the elderly in Campinas-SP: qualitative study of managers and politicians

ReSUmO O estudo busca identificar, descrever e analisar as praticas pertinentes a saude do idoso na cidade de Campinas-SP, na perspectiva de representantes da saude do idoso, tendo como base a Politica Nacional de Saude a Pessoa Idosa. Estudo qualitativo, com analise tematica de conteudo, na perspectiva de sujeitos que assumem funcoes estrategicas na conducao da politica direcionada ao idoso no municipio. A partir dos depoimentos dos sujeitos emergiram cinco temas centrais: tempos e lugares; condicoes de acesso; demandas da populacao; recursos humanos; promocao a saude e prevencao de doencas e agravos; gestao. As praticas voltadas a saude do idoso em Campinas estao em desenvolvimento e precisam ser avaliadas, ampliadas e sistematizadas, tanto nas questoes estruturais de recursos humanos, financiamento e gestao, quanto na atencao direta ao idoso. descritores: Idoso; Politicas Publicas; Servicos de Saude; Enfermagem.The study aimed to identify, describe and analyze the practices carried out in the health of the elderly in the city of Campinas-SP, in the perspective of the health government representatives of the elderly, based on the National Policies. This is a qualitative study with thematic content analysis, from the perspective of individuals who assume strategic roles in the conduct of policy directed to the elderly in the county. Five central themes emerged from their comments: time and places; access conditions; population demands; human resources; health promotion and prevention of diseases and disorders; management. Health practices for the elderly health in Campinas-SP are in development, need to be evaluated, extended and systematized in both, the structural issues of human resources, finance and management, and in direct assistance to the elderly.

Quality of life and work overload among elderly outpatient caregivers

Se evaluo la calidad de vida relacionada con la salud y la carga de trabajo de 126 cuidadores de pacientes atendidos en dos centros geriatricos de un hospital universitario, y la asociacion entre el volumen de trabajo y las variables sociodemograficas y clinicas. Es un estudio exploratorio de caracter descriptivo, transversal y cuantitativo. Se utilizo el instrumento de resultados sociodemograficos y clinicos, Zarit Burden Interview para evaluacion de la carga percibida, y el Medical Outcomes Study Short-Form Health Survey (SF-36) para la evaluacion de la calidad de vida relacionada con la salud. Se hizo el analisis descriptivo, de correlacion, de comparacion, y multivariado de los datos. Se encontro diferencia significativa entre la carga de los cuidadores de los dos ambulatorios; todos los aspectos sociodemograficos y atencion se asociaron con un empeoramiento de al menos una de las dimensiones del SF-36; y las enfermedades frecuentes en los cuidadores estaban relacionadas con un empeoramiento de su calidad de vida relacionada con la salud. Tambien se pudo constatar el desgaste experimentado por los cuidadores de ancianos en estos centros de salud.

Calidad de vida y la carga de trabajo de los cuidadores de ancianos atendidos en centros geriátricos

Se evaluo la calidad de vida relacionada con la salud y la carga de trabajo de 126 cuidadores de pacientes atendidos en dos centros geriatricos de un hospital universitario, y la asociacion entre el volumen de trabajo y las variables sociodemograficas y clinicas. Es un estudio exploratorio de caracter descriptivo, transversal y cuantitativo. Se utilizo el instrumento de resultados sociodemograficos y clinicos, Zarit Burden Interview para evaluacion de la carga percibida, y el Medical Outcomes Study Short-Form Health Survey (SF-36) para la evaluacion de la calidad de vida relacionada con la salud. Se hizo el analisis descriptivo, de correlacion, de comparacion, y multivariado de los datos. Se encontro diferencia significativa entre la carga de los cuidadores de los dos ambulatorios; todos los aspectos sociodemograficos y atencion se asociaron con un empeoramiento de al menos una de las dimensiones del SF-36; y las enfermedades frecuentes en los cuidadores estaban relacionadas con un empeoramiento de su calidad de vida relacionada con la salud. Tambien se pudo constatar el desgaste experimentado por los cuidadores de ancianos en estos centros de salud.