Dilek Konukbay

Development and validation of juvenile autoinflammatory disease multidimensional assessment report (JAIMAR).

There are lots of effects of auto-inflammatory diseases (e.g. pain, fatigue, fear of attack, lifelong drug use, being nervous and angry, problems at school) and those are quite important to patients but have not been measured with the outcome instruments currently included in clinical trials of auto-inflammatory diseases.

0-6 Yaş Arası Çocuğa Sahip Annelerin Ateş Düşürücü İlaç Kullanımına İlişkin Bilgi ve Tutumlarının Belirlenmesi

Amac: Calisma, 0-6 yas arasi cocuga sahip annelerin ates dusurucu ilac kullanimina iliskin bilgi ve tutumlarinin belirlenmesi amaciyla yapildi. Yontem: Tanimlayici tipteki bu arastirmanin orneklemini, GATF Cocuk Sagligi ve Hastaliklari ile Cocuk Cerrahisi Polikliniklerine Şubat-Mart 2014 tarihleri arasinda basvuran ve 0-6 yas cocugu sahip olan 156 anne olusturdu. Veriler, ates dusurucu ilac kullanimini ile ilgili 20 sorudan olusan veri toplama formu ile elde edildi. Verileri degerlendirmek icin “SPSS 15.0 for Windows” programi kullanildi. Istatistiksel karsilastirmalar icin ki-kare testi kullanildi; p<0.05 degeri istatistiksel olarak anlamli kabul edildi Bulgular: Annelerin yas ortalamasi 34±6.5’dir. Annelerin %66.7’si 11 yil uzeri egitime sahiptir. Annelerin %92.3’u atesi degerlendirmek icin termometre kullanmaktadir ve %88.5’i hekim recetesi olmadan ates dusurucu ilac kullanmaktadir. Ates dusurucu ilac kullaniminin %83,3’unu parasetamol, %59’unu ibuprofen olusturmaktadir. Annelerin egitim duzeyinin 11 yil uzeri olmasi ile ates dusurucu ilacin yan etkisini bilme durumu arasinda istatistiksel olarak anlamli bir farklilik vardir (p=0.000). Sonuc: Arastirma sonucunda, 0-6 yas grubunda cocuga sahip annelerin, ates dusurucu ilac kullanimina yonelik bilgi eksikliginin oldugu bulundu. Anahtar Kelimeler: Anne, ates dusurucu ilac kullanimi, cocuk.

PO-0904 Describing The Knowledge Of Parents About Newborn Screening

Screeningis generally consider part of the routine care for newborns. Newborn screening for phenylketonuria (PKU) has been available since the early 1960s. The fist newborn screening for PKU started in Ankara in Turkey in 1986 and extended country wide in 1993. PKU rate in Turkey occurs 1 in 4000 newborns because of consanguineous marriage. Consanguineous marriage rat in Turkey is 21%. This research was planned to describe the knowledge of parents about newborn PKU screening. A questionnaire was used to gather the data. To determine the effects data were evaulated by using chi square test and percentage analysis on the SPSS 11.0 program package. The study was performed during the period of January 2005 and March 2005 in a University Hospital and 150 mothers in postpartum period were included in the research. The questionnaire was obtained by face to face technique. Results The mean age of mothers was 26.49% of mother were graduated basic school. 74.7%of mother were house wife. 68% of mothers were primipara. 47% of mothers statedthat the test was ‘a IQ test’. Sixty-four percent of mothers didn’t know how toexecute the test. 69.3% of mothers didn’t know how long to continue the test.61.3% of mothers didn’t know how to learn the results of the test. Although99.3% of newborns were seem to be physically healthy, it was stated thatpostpartum screening tests should be applied. Considering this results, inorder to inform the mothers about the obtained results, a PKU educationbrochure was prepared and given to the unit. Conclusions Nurses who understand the pathophysiology and management of PKU in pregnancycan provide the care necessary for maternal and neonatal health. Healthcare providersare responsible for informing parents about the implications of newbornscreening to improve awareness and understanding.

PO-0873 Determination Of Falling Risk For Children In An Education And Research Hospital In Turkey

Objective The aim of this study was to determinate falling risk ofchildren who have been in Gulhane Military Medical Academy Hospital. Methods The study wascaried out at department of paediatric surgery and department of pediatricsbetween February–March 2014 in Gulhane Military Medical Academy Hospital. Thepopulation of the study was consisted of 122 children. Diagnostic Falling RiskScale for Child Patients were used for data collection. Results In the study group 36.1% of patients were female and 69.9%were male. The majority of patients were <3 years of age (32.8%). Thereasons having been in hospital in hospital included pulmonary disease (18.6%),neurological or neuromuscular disorders (13.7%), and cardiac disorders (2%), complicationsof prematurity (8.8%), inguinal region deformity (3%), immunological disease (5.9%), fluid and electrolyte disorders (3.8%),poisoning (%3) and cancer (27.5). It was 57.4% staying in hospital which isrange from one to seven days. It was found that falling risks were high levelwhich is 97.5%. There wasno stastically important difference in falling risks between gender (p?0.005). Conclusion It was found high falling risk for children who have beenin our hospital.

PW02-023 - Qualitative aspects of autoinflammatory diseases

In pediatric rheumatology, the lack of scales showing activities of illness in the patients groups, the absence of biomarkers for the severity of damage led the scientific world to develop a scale where the patient can make an self-assessment with quantitative results. So, a necessity has been occurred to develop a multidimensional scale which is understandable, applicable and comprehensive in the evaluation of children with auto-inflammatory diseases.