Ej Gonzalez-Polledo

The thing about pain: The remaking of illness narratives in chronic pain expressions on social media:

In this article, we analyse chronic pain narratives on Flickr and Tumblr. We focus on how, by incorporating visual and multimodal elements, chronic pain expressions in social media significantly extend and challenge the logic, function and effects of traditional ‘illness narratives’. We examine a sample of images and blogs related to chronic pain and formulate a typology of chronic pain expressions on these sites. Flickr brings a form of narrative immediacy, making the pain experience visible, eliciting empathy and marking chronicity. Tumblr lends itself to more networked forms of interaction through the circulation of multimodal memes, and support communities are built through humour and social criticism. We argue that new forms of mediation and social media dynamics transform pain narratives. This has implications for our understandings of the forms and formats of pain communication and offers new possibilities for communicating pain within and beyond clinical contexts.

Chronic Media Worlds: Social Media and the Problem of Pain Communication on Tumblr

This article explores dynamics of pain communication in the social media platform Tumblr. As a device of health communication, the Tumblr platform brings together a network of behaviors, technologies, and media forms through which pain experience is reimaged through and against mainstream biomedical frameworks. The article develops an interpretative approach to analyze how, as social media platforms reorganize affective, emotional, physical, and temporal frames of experience, communication about chronic pain and illness is reimagined in its capacity to create social worlds. Drawing on ethnographic theory to reimagine the relation between politics and poetics in pain communication, the article explores the issue- and world-making capacities of social media.

On liveness: using arts workshops as a research method:

Drawing on a research project using arts workshops to explore pain communication, we develop a methodological reflection on the significance of the liveness of arts-based methods. We discuss how liveness informed the design of workshops to provoke novel forms of communication; how it produced uncontrollable and unpredictable workshops, whose unfolding we theorize as ‘imprography’. It also constituted affective and collective experiences of ‘being there’ as important but difficult-to-record parts of the data, which raises challenges to current understandings of what constitutes data, particularly in the context of team research and in light of directives for archiving and reuse. We explore the implications of liveness for methodological practice.

Beyond the binaries: Reshaping pain communication through arts workshops

Pain is difficult to communicate and translate into language, yet most social research on pain experience uses questionnaires and semi-structured interviews that rely on words. In addition to the mind/body dualism prevalent in pain medicine in these studies pain communication is characterised by further value-laden binaries such as real/unreal, visible/invisible, and psychological/physical. Starting from the position that research methods play a role in constituting their object, this article examines the potential of participatory arts workshops for developing different versions of pain communication. Twenty-two participants were involved in workshops using drawing, digital photography, sound and physical theatre to explore pain communication. The use of arts materials made pain tangible. By manipulating pain-related objects, participants could consider alternative relationships to their pain. Pains sociality was also explored, with relations with clinicians and others emerging as potentially cooperative rather than adversarial. Discussions considered whether pain felt internal or external, and whether it was possible to conceive of a self without pain. We argue that the socio-material context of participatory arts workshops enabled these alternative versions of pain. Such methods are a useful addition to medical sociologys heavy reliance on qualitative interviewing.

A commitment to difference: An interview with Esther Newton:

Esther Newton (b. 1940) is an influential American anthropologist, whose pioneering work on drag queens and gay and lesbian communities has contributed to the emergence of gay and lesbian anthropology, and gradually also queer anthropology, as a recognized sub-field within socio-cultural anthropology. Newton undertook her graduate work at the University of Chicago under the tutelage of Professor David Schneider. Newton is currently Professor of Women’s Studies and American Culture, Department of Women’s Studies, University of Michigan. Her memoir, My Butch Career, is forthcoming from Duke University Press. Newton was interviewed at the 113th American Anthropological Association Annual Meeting in Washington DC, on Friday 5 December 2014. Prior to the interview, co-editors Boyce, Engebretsen and Posocco along with Gonzalez-Polledo developed a list of themes and questions that guided the conversation that follows. We have aimed to maintain the sense of informal and jovial atmosphere that guided the interview, as it began over a lunch meal in the hotel lobby and continued afterwards in the quiet of Esther’s hotel room, with Elisabeth joining in on Skype from China, and Ellen Lewin – Esther’s room-mate and also notable feminist and queer anthropologist – entering the room and contributing to the latter part of the discussion. The following conversation is between Esther Newton (EN) and Paul Boyce (PB), Elisabeth Engebretsen (EE), EJ Gonzalez-Polledo (EJG), Ellen Lewin (EL), Silvia Posocco (SP).