Elisabeth Assing Hvidt

The existential dimension in general practice: identifying understandings and experiences of general practitioners in Denmark.

Abstract Objective: The objective of this study is to identify points of agreement and disagreements among general practitioners (GPs) in Denmark concerning how the existential dimension is understood, and when and how it is integrated in the GP–patient encounter. Design: A qualitative methodology with semi-structured focus group interviews was employed. Setting: General practice setting in Denmark. Subjects: Thirty-one GPs from two Danish regions between 38 and 68 years of age participated in seven focus group interviews. Results: Although understood to involve broad life conditions such as present and future being and identity, connectedness to a society and to other people, the existential dimension was primarily reported integrated in connection with life-threatening diseases and death. Furthermore, integration of the existential dimension was characterized as unsystematic and intuitive. Communication about religious or spiritual questions was mostly avoided by GPs due to shyness and perceived lack of expertise. GPs also reported infrequent referrals of patients to chaplains. Conclusion: GPs integrate issues related to the existential dimension in implicit and non-standardized ways and are hindered by cultural barriers. As a way to enhance a practice culture in which GPs pay more explicit attention to the patients’ multidimensional concerns, opportunities for professional development could be offered (courses or seminars) that focus on mutual sharing of existential reflections, ideas and communication competencies. Key points Although integration of the existential dimension is recommended for patient care in general practice, little is known about GPs’ understanding and integration of this dimension in the GP–patient encounter. The existential dimension is understood to involve broad and universal life conditions having no explicit reference to spiritual or religious aspects. The integration of the existential dimension is delimited to patient cases where life-threatening diseases, life crises and unexplainable patient symptoms occur. Integration of the existential dimension happens in unsystematic and intuitive ways. Cultural barriers such as shyness and lack of existential self-awareness seem to hinder GPs in communicating about issues related to the existential dimension. Educational initiatives might be needed in order to lessen barriers and enhance a more natural integration of communication about existential issues.

Sources of ''relational homes'': a qualitative study of cancer survivors' perceptions of emotional support

The aim of this article is to shed light on the different ways in which a group of Danish cancer survivors fulfil their need of emotional support. The study comprised participant observation at a Danish cancer rehabilitation centre, individual semi-structured interviews and focus group interviews with course participants. The analytical process combined the inductive approach of interpretative phenomenological analysis with a deductive theoretical strategy. Key concepts from Robert D. Stolorows existential-phenomenological trauma theory were used as interpretative framework. Findings suggest that cancer survivors’ perception of emotional support is captured by the theoretical concept a “relational home,” understood here as a supportive and caring environment. A relational home may include different dimensions in various situations and contexts, including an existential and metaphysical dimension in which God/a higher power may provide emotional support similar to that obtained in human relationships.

Development of the EMAP tool facilitating existential communication between general practitioners and cancer patients

Abstract Background: General practice recognizes the existential dimension as an integral part of multidimensional patient care alongside the physical, psychological and social dimensions. However, general practitioners (GPs) report substantial barriers related to communication with patients about existential concerns. Objectives: To describe the development of the EMAP tool facilitating communication about existential problems and resources between GPs and patients with cancer. Methods: A mixed-methods design was chosen comprising a literature search, focus group interviews with GPs and patients (n = 55) and a two-round Delphi procedure initiated by an expert meeting with 14 experts from Denmark and Norway. Results: The development procedure resulted in a semi-structured tool containing suggestions for 10 main questions and 13 sub-questions grouped into four themes covering the existential dimension. The tool utilized the acronym and mnemonic EMAP (existential communication in general practice) indicating the intention of the tool: to provide a map of possible existential problems and resources that the GP and the patient can discuss to find points of reorientation in the patient’s situation. Conclusion: This study resulted in a question tool that can serve as inspiration and help GPs when communicating with cancer patients about existential problems and resources. This tool may qualify GPs’ assessment of existential distress, increase the patient’s existential well-being and help deepen the GP–patient relationship.

How is defensive medicine understood and experienced in a primary care setting? A qualitative focus group study among Danish general practitioners

Objectives Recent years have witnessed a progressive increase in defensive medicine (DM) in several Western welfare countries. In Danish primary and secondary care, documentation on the extent of DM is lacking. Before investigating the extent of DM, we wanted to explore how the phenomenon is understood and experienced in the context of general practice in Denmark. The objective of the study was to describe the phenomenon of DM as understood and experienced by Danish general practitioners (GPs). Design A qualitative methodology was employed and data were generated through six focus group interviews with three to eight GPs per group (n=28) recruited from the Region of Southern Denmark. Data were analysed using a thematic content analysis inspired by a hermeneutic-phenomenological focus on understanding and meaning. Results DM is understood as unnecessary and meaningless medical actions, carried out mainly because of external demands that run counter to the GP’s professionalism. Several sources of pressure to act defensively were identified by the GPs: the system’s pressure to meet external regulations, demands from consumerist patients and a culture among GPs and peers of infallibility and zero-risk tolerance. Conclusions GPs understand DM as unnecessary and meaningless actions driven by external demands instead of a focus on the patient’s problem. GPs consider defensive actions to be carried out as a result of succumbing to various sources of pressure deriving from the system, the patients, the GPs themselves and peers.

Targeted prevention in primary care aimed at lifestyle-related diseases: a study protocol for a non-randomised pilot study

BackgroundThe consequences of lifestyle-related disease represent a major burden for the individual as well as for society at large. Individual preventive health checks to the general population have been suggested as a mean to reduce the burden of lifestyle-related diseases, though with mixed evidence on effectiveness. Several systematic reviews, on the other hand, suggest that health checks targeting people at high risk of chronic lifestyle-related diseases may be more effective. The evidence is however very limited. To effectively target people at high risk of lifestyle-related disease, there is a substantial need to advance and implement evidence-based health strategies and interventions that facilitate the identification and management of people at high risk. This paper reports on a non-randomized pilot study carried out to test the acceptability, feasibility and short-term effects of a healthcare intervention in primary care designed to systematically identify persons at risk of developing lifestyle-related disease or who engage in health-risk behavior, and provide targeted and coherent preventive services to these individuals.MethodsThe intervention took place over a three-month period from September 2016 to December 2016. Taking a two-pronged approach, the design included both a joint and a targeted intervention. The former was directed at the entire population, while the latter specifically focused on patients at high risk of a lifestyle-related disease and/or who engage in health-risk behavior. The intervention was facilitated by a digital support system. The evaluation of the pilot will comprise both quantitative and qualitative research methods. All outcome measures are based on validated instruments and aim to provide results pertaining to intervention acceptability, feasibility, and short-term effects.DiscussionThis pilot study will provide a solid empirical base from which to plan and implement a full-scale randomized study with the central aim of determining the efficacy of a preventive health intervention.Trial registrationRegistered at Clinical Trial Gov (Unique Protocol ID: TOFpilot2016). Registered 29 April 2016. The study adheres to the SPIRIT guidelines.

The impact of telephone crisis services on suicidal users: a systematic review of the past 45 years

Purpose – Telephone crisis services are increasingly subject to a requirement to “prove their worth” as a suicide prevention strategy. The purpose of this paper is to: first, provide a detailed overview of the evidence on the impact of telephone crisis services on suicidal users; second, determine the limitations of the outcome measures used in this evidence; and third, suggest directions for future research. Design/methodology/approach – MEDLINE via Pubmed (from 1966), PsycINFO APA (from 1967) and ProQuest Dissertation and Theses (all to 4 June 2015) were searched. Papers were systematically extracted by title then abstract according to predefined inclusion and exclusion criteria. Findings – In total, 18 articles met inclusion criteria representing a range of outcome measures: changes during calls, reutilization of service, compliance with advice, caller satisfaction and counsellor satisfaction. The majority of studies showed beneficial impact on an immediate and intermediate degree of suicidal urgency, depressive mental states as well as positive feedback from users and counsellors. Research limitations/implications – A major limitation pertains to differences in the use of the term “suicidal”. Other limitations include the lack of long-term follow-up and of controlled research designs. Future research should include a focus on long-term follow-up designs, involving strict data protection. Furthermore, more qualitative research is needed in order to capture the essential nature of the intervention. Originality/value – This paper attempts to broaden the study and the concept of “effectiveness” as hitherto used in the literature about telephone crisis services and offers suggestions for future research.

Defensive medicine in primary health care

During the past year, a case of a young Danish doctor in vocational training as general practitioner accused in court of gross negligence has been all over the Danish media. A patient died maybe because of over dosage of insulin. The doctor’s ordering of blood glucose measurement was given verbally but not written in the patient record and the normal procedures for a patient with diabetes failed after the doctor had left her night shift. The young doctor was first acquitted of all charges in primary court, then convicted in national court, and finally cleared in Supreme Court by a three judges versus two ruling. During the process, thousands of Danish doctors, including many in primary health care, joined the hashtag campaign #DetKuHaVaeretMig (#ItCouldHaveBeenMe) in support of the doctor accused and as a way of protesting against perceived misconduct of the Danish Patient Safety Authority (STPS) as well as the hospital management. It is worrying that the case ended in the judicial system, despite the fact that the doctors actions were not significantly different from ordinary practice. Stories like the above increase the fear of malpractice claims and police accusations among doctors. Doctoring seems to be hampered by a harmful zero-mistake culture that is likely to have enormous consequences for patients and doctors as well as society. Defensive medicine (DM) refers to actions that healthcare providers take in order to protect themselves from malpractice claims rather than actions benefitting the patient. DM has been demonstrated in healthcare systems all over the world and is documented to have increased during the past few years. For example, DM has been estimated to account for 10% of all spent healthcare resources in Italy [1]. It affects peoples’ lives from even before birth, in the way that obstetricians’ choice of making a C-section is motivated by defensive behaviour [2]. In a recent Danish study among GPs DM was experienced on a daily basis as actions taken because of pressures deriving from four different sources: “the system,” the patients, the GPs themselves and their peers [3]. In particular, the system-imposed pressure to document every medical action in detail was experienced as leading to meaningless and even potentially harmful doctoring. The hashtag campaign #DetKuHaVaeretMig is about clearer rules for how detailed medical actions need to be recorded. Detailed patient records may protect doctors from being blamed in case of a patient complaint and hence from becoming second victims. Older GPs make less detailed patient records. Maybe therefore they are more likely to be disciplined in case of a complaint compared to younger [4]. This practice and stories like the young doctor’s enforces a tendency towards automatized, fully detailed, all covering, and knowingly redundant patient records. However, long patient records and computer-generated journal phrases may do well in a juridical setting at the risk of making the record a less useful in the clinical setting, increasing the risk of overlooking important information, slowing down GPs’ work and reducing the time spent with the patients. It favours strategic and cynical doctor-patient interaction leading to low job satisfaction and preterm retirement [5]. It is time to confront and reduce the pressures for meaningless doctoring rather than continue adding longer phrases to the computer systems.

Developing and evaluating a course programme to enhance existential communication with cancer patients in general practice

Abstract Objective: Our objective was to describe the development and evaluation of a course programme in existential communication targeting general practitioners (GPs). Design: The UK Medical Research Council’s (MRC) framework for complex intervention research was used as a guide for course development and evaluation and was furthermore used to structure this paper. The development phase included: identification of existing evidence, description of the theoretical framework of the course, designing the intervention and deciding for types of evaluation. In the evaluation phase we measured self-efficacy before and after course participation. To explore further processes of change we conducted individual, semi-structured telephone interviews with participants. Subjects and setting: Twenty practising GPs and residentials in training to become GPs from one Danish region (mean age 49). Results: The development phase resulted in a one-day vocational training/continuing medical education (VT/CME) course including the main elements of knowledge building, self-reflection and communication training. Twenty GPs participated in the testing of the course, nineteen GPs answered questionnaires measuring self-efficacy, and fifteen GPs were interviewed. The mean scores of self-efficacy increased significantly. The qualitative results pointed to positive post course changes such as an increase in the participants’ existential self-awareness, an increase in awareness of patients in need of existential communication, and an increase in the participants’ confidence in the ability to carry out existential communication. Conclusions: A one-day VT/CME course targeting GPs and including the main elements of knowledge building, self-reflection and communication training showed to make participants more confident about their ability to communicate with patients about existential issues and concerns. Key points Patients with cancer often desire to discuss existential concerns as part of clinical care but general practitioners (GPs) lack confidence when discussing existential issues in daily practice. In order to lessen barriers and enhance existential communication in general practice, we developed a one-day course programme. Attending the course resulted in an increase in the participants’ confidence in the ability to carry out existential communication. This study adds knowledge to how confidence in existential communication can be increased among GPs.

Characteristics of Religious and Spiritual Beliefs of Danish Physicians: And Likelihood of Addressing Religious and Spiritual Issues with Patients

This study investigated the association between physicians’ R/S characteristics and frequency of addressing patients’ R/S issues. Information was obtained through a questionnaire mailed to 1485 Danish physicians (response rate 63%) (42% female). We found significant associations between physicians’ personal R/S and the frequency of addressing R/S issues. Moreover, we identified significant gender differences in most R/S characteristics. However, no differences in frequency of addressing R/S issues were identified across gender. This raises some questions regarding the effects of gender on associations between R/S characteristics and frequency of addressing R/S issues.

How participatory action research changed our view of the challenges of shared decision-making training

OBJECTIVE This paper aims to demonstrate how the use of participatory action research (PAR) helped us identify ways to respond to communication challenges associated with shared decision-making (SDM) training. METHODS Patients, relatives, researchers, and health professionals were involved in a PAR process that included: (1) two theatre workshops, (2) a pilot study of an SDM training module involving questionnaires and evaluation meetings, and (3) three reflection workshops. RESULTS The PAR process revealed that health professionals often struggled with addressing existential issues such as concerns about life, relationships, meaning, and ability to lead responsive dialogue. Following the PAR process, a communication programme that included communication on existential issues and coaching was drafted. CONCLUSION By involving multiple stakeholders in a comprehensive PAR process, valuable communication skills addressing a broader understanding of SDM were identified. A communication programme aimed to enhance skills in a mindful and responsive clinical dialogue on the expectations, values, and hopes of patients and their relatives was drafted. PRACTICAL IMPLICATIONS Before integrating new communication concepts such as SDM in communication training, research methods such as PAR can be used to improve understanding and identify the needs and priorities of both patients and health professionals.