Ellen Cristina Barbosa dos Santos

A efetivação dos direitos dos usuários de saúde com diabetes mellitus: co-responsabilidades entre poder público, profissionais de saúde e usuários

The goal of this descriptive study with a qualitative approach is to analyze Brazilian Diabetes Mellitus user knowledge about their health rights. Twelve participants with diabetes were attended in 2008 at a university center in the countryside of the state of Sao Paulo, Brazil, by means of an open interview. Thematic content analysis made it possible to identify three categories: the role of the public power in disseminating information; health professionals competencies and responsibilities: the moral-ethical duty to inform; and user participation or exemption in searching for information about their rights. We emphasize the need to share information among: public power, health professionals, and users with the intent of promoting the quality of health assistance, permeated with

Exercising the rights of health care users with diabetes mellitus: co-responsibilities among public power, health professionals, and users

The goal of this descriptive study with a qualitative approach is to analyze Brazilian Diabetes Mellitus user knowledge about their health rights. Twelve participants with diabetes were attended in 2008 at a university center in the countryside of the state of Sao Paulo, Brazil, by means of an open interview. Thematic content analysis made it possible to identify three categories: the role of the public power in disseminating information; health professionals competencies and responsibilities: the moral-ethical duty to inform; and user participation or exemption in searching for information about their rights. We emphasize the need to share information among: public power, health professionals, and users with the intent of promoting the quality of health assistance, permeated with

Health services users with diabetes mellitus: from knowledge to the use of healthcare rights

This descriptive study with qualitative approach analyzes the knowledge of individuals with diabetes mellitus (DM) concerning their health rights. Open interviews were conducted with 12 individuals with DM in a university center in the interior of Sao Paulo, Brazil. Content analysis enabled the identification of two categories: the users (lack of) knowledge concerning their rights and the unaware exercise of their rights. The results revealed that despite the legal advancements achieved in public policies, most users with DM are unaware of their rights, although they use the benefits that accrue from law in an unconscious way. Providing complete and sufficient information is essential so that individuals are able to make the best decision in relation to their treatment, preserving their autonomy.Se trata de un estudio descriptivo de abordaje cualitativo, con el objetivo de analizar el conocimiento de los usuarios de los servicios de salud con diabetes mellitus (DM) acerca de sus derechos. Participaron 12 personas con DM atendidas en un centro universitario del interior paulista en 2008, por medio de entrevista abierta. El analisis de contenido tematico de los datos posibilito identificar dos categorias: el (des)conocimiento de los usuarios de los servicios de salud con diabetes sobre sus derechos y el ejercicio no consciente de sus derechos por las personas con DM. Fue posible constatar que, a pesar de los avances legalmente alcanzados por las politicas publicas, la mayoria de los usuarios de los servicios de salud con DM desconoce sus derechos, a pesar de que utilizan los beneficios provenientes de la legislacion, de manera no consciente. Se resalta como punto fundamental proveer informaciones completas y suficientes para que la persona pueda tomar la mejor decision en relacion a su tratamiento, preservando su autonomia en los servicios de salud.

Usuários dos serviços de saúde com diabetes mellitus: do conhecimento à utilização dos direitos à saúde

This descriptive study with qualitative approach analyzes the knowledge of individuals with diabetes mellitus (DM) concerning their health rights. Open interviews were conducted with 12 individuals with DM in a university center in the interior of Sao Paulo, Brazil. Content analysis enabled the identification of two categories: the users (lack of) knowledge concerning their rights and the unaware exercise of their rights. The results revealed that despite the legal advancements achieved in public policies, most users with DM are unaware of their rights, although they use the benefits that accrue from law in an unconscious way. Providing complete and sufficient information is essential so that individuals are able to make the best decision in relation to their treatment, preserving their autonomy.Se trata de un estudio descriptivo de abordaje cualitativo, con el objetivo de analizar el conocimiento de los usuarios de los servicios de salud con diabetes mellitus (DM) acerca de sus derechos. Participaron 12 personas con DM atendidas en un centro universitario del interior paulista en 2008, por medio de entrevista abierta. El analisis de contenido tematico de los datos posibilito identificar dos categorias: el (des)conocimiento de los usuarios de los servicios de salud con diabetes sobre sus derechos y el ejercicio no consciente de sus derechos por las personas con DM. Fue posible constatar que, a pesar de los avances legalmente alcanzados por las politicas publicas, la mayoria de los usuarios de los servicios de salud con DM desconoce sus derechos, a pesar de que utilizan los beneficios provenientes de la legislacion, de manera no consciente. Se resalta como punto fundamental proveer informaciones completas y suficientes para que la persona pueda tomar la mejor decision en relacion a su tratamiento, preservando su autonomia en los servicios de salud.

JUDICIALIZAÇÃO DA SAÚDE: ACESSO AO TRATAMENTO DE USUÁRIOS COM DIABETES MELLITUS

Objective: to analyze the procedural elements and individual lawsuits filed by users with diabetes mellitus for the supply of drugs, supplies or materials to treat the disease. Method: an exploratory documentary type quantitative study, where 636 lawsuits were analyzed in a region of São Paulo State, from 2004 to 2013. Results: it was found that the number of cases increased from three in 2004 to 111 in 2012. In 2013 administrative measures were instituted with the aim of reducing the number of cases. In 457 (71.9%) cases the lawsuits were filed through prescription of private medical practices. Most of the lawsuits were requests for medicine that were not included on the free funding lists supplied by the Unified Health System. Conclusion: health judicialization favors reflection on health rights and access to information on the restructuring of health services for users with diabetes mellitus. DESCRIPTORS: Nursing. Diabetes mellitus. Patient rights. Public policy. Bioethics. http://dx.doi.org/10.1590/0104-070720180000800016

Processos judiciais para aquisição de bomba de insulina em Ribeirão Preto

This exploratory, descriptive, documental and statistical article, with a quantitative approach, aims to analyze individual legal cases for the supply of insulin pump by users of the Sistema Único de Saúde (unified health system) in a municipality in the state of São Paulo, Brazil. We identified 40 (6.2%) cases demanding insulin pumps. Most of the cases were filed by men in the age group of 11 to 20 years. We also identified cases for the acquisition of drugs and other products such as glucometers and infusion sets, and insulin reservoirs. This study promotes discussions about the rights and integral care of people with diabetes mellitus. Thus, one hopes that it contributes to the understanding of how the process of judicialization can assist users in the search of new perspectives for the care of diabetes mellitus.This exploratory, descriptive, documental and statistical article, with a quantitative approach, aims to analyze individual legal cases for the supply of insulin pump by users of the Sistema Unico de Saude (unified health system) in a municipality in the state of Sao Paulo, Brazil. We identified 40 (6.2%) cases demanding insulin pumps. Most of the cases were filed by men in the age group of 11 to 20 years. We also identified cases for the acquisition of drugs and other products such as glucometers and infusion sets, and insulin reservoirs. This study promotes discussions about the rights and integral care of people with diabetes mellitus. Thus, one hopes that it contributes to the understanding of how the process of judicialization can assist users in the search of new perspectives for the care of diabetes mellitus.

Usuarios de los servicios de salud con diabetes mellitus: del conocimiento a la utilización de los derechos a la salud

This descriptive study with qualitative approach analyzes the knowledge of individuals with diabetes mellitus (DM) concerning their health rights. Open interviews were conducted with 12 individuals with DM in a university center in the interior of Sao Paulo, Brazil. Content analysis enabled the identification of two categories: the users (lack of) knowledge concerning their rights and the unaware exercise of their rights. The results revealed that despite the legal advancements achieved in public policies, most users with DM are unaware of their rights, although they use the benefits that accrue from law in an unconscious way. Providing complete and sufficient information is essential so that individuals are able to make the best decision in relation to their treatment, preserving their autonomy.Se trata de un estudio descriptivo de abordaje cualitativo, con el objetivo de analizar el conocimiento de los usuarios de los servicios de salud con diabetes mellitus (DM) acerca de sus derechos. Participaron 12 personas con DM atendidas en un centro universitario del interior paulista en 2008, por medio de entrevista abierta. El analisis de contenido tematico de los datos posibilito identificar dos categorias: el (des)conocimiento de los usuarios de los servicios de salud con diabetes sobre sus derechos y el ejercicio no consciente de sus derechos por las personas con DM. Fue posible constatar que, a pesar de los avances legalmente alcanzados por las politicas publicas, la mayoria de los usuarios de los servicios de salud con DM desconoce sus derechos, a pesar de que utilizan los beneficios provenientes de la legislacion, de manera no consciente. Se resalta como punto fundamental proveer informaciones completas y suficientes para que la persona pueda tomar la mejor decision en relacion a su tratamiento, preservando su autonomia en los servicios de salud.