Emma Kowal

Measuring emotional and social wellbeing in Aboriginal and Torres Strait Islander populations: an analysis of a Negative Life Events Scale

Aboriginal and Torres Strait Islander Australians experience widespread socioeconomic disadvantage and health inequality. In an attempt to make Indigenous health research more culturally-appropriate, Aboriginal and Torres Strait Islander Australians have called for more attention to the concept of emotional and social wellbeing (ESWB). Although it has been widely recognised that ESWB is of crucial importance to the health of Aboriginal and Torres Strait Islander peoples, there is little consensus on how to measure in Indigenous populations, hampering efforts to better understand and improve the psychosocial determinants of health. This paper explores the policy and political context to this situation, and suggests ways to move forward. The second part of the paper explores how scales can be evaluated in a health research setting, including assessments of endorsement, discrimination, internal and external reliability.We then evaluate the use of a measure of stressful life events, the Negative Life Events Scale (NLES), in two samples of Aboriginal people living in remote communities in the Northern Territory of Australia. We argue that the Negative Life Events Scale is a promising assessment of psychosocial wellbeing in Aboriginal and Torres Strait Islander populations. Evaluation of the scale and its performance in other samples of Aboriginal and Torres Strait Islander populations is imperative if we hope to develop better, rather than more, scales for measuring ESWB among Indigenous Australians. Only then will it be possible to establish standardized methods of measuring ESWB and develop a body of comparable literature that can guide both a better understanding of ESWB, and evaluation of interventions designed to improve the psychosocial health of Indigenous populations and decrease health inequalities.

Indigenous body parts, mutating temporalities, and the half-lives of postcolonial technoscience

Biological samples collected from indigenous communities from the mid-20th century for scientific study and preserved in freezers of the Global North have been at the center of a number of controversies. This essay explores why the problem of indigenous biospecimens has returned to critical attention frequently over the past two decades, and why and how Science and Technology Studies should attend to this problem. We propose that mutation – the variously advantageous, deleterious, or neutral mechanism of biological change – can provide a conceptual and analogical resource for reckoning with unexpected problems created by the persistence of frozen indigenous biospecimens. Mutations transcend dichotomies of premodern/modern, pro-science/anti-science, and north/south, inviting us to focus on entanglements and interdependencies. Freezing biospecimens induces mutations in indigenous populations, in the scientists who collected and stored such specimens, and in the specimens themselves. The jumbling of timescales introduced by practices of freezing generates new ethical problems: problems that become ever more acute as the supposed immortality of frozen samples meets the mortality of the scientists who maintain them. More broadly, we propose that an ‘abductive’ approach to Science and Technology Studies theories of co-production can direct attention to the work of temporality in the ongoing alignment of social and technical orders. Attending to the unfolding and mutating vital legacies of indigenous body parts, collected in one time and place and reused in others, reveals the enduring colonial dimensions of scientific practice in our global age and demonstrates new openings for ethical action. Finally, we outline the articles in this special issue and their respective ‘mutations’ to postcolonial Science and Technology Studies, a field that, like genome science, is racked with ethical and temporal dilemmas of reckoning for the past in the present.

Reflexive antiracism: A novel approach to diversity training

This article introduces the concept of reflexive antiracism as a response to two major critiques of antiracism theory and praxis: the dangers of essentialism and the elicitation of counter-productive emotional reactions. The article explores these critiques as they apply to two broad approaches to diversity training: cultural awareness and antiracism. Reflexive antiracism offers an alternative to existing approaches through a focus on racialisation and the formation and maintenance of racialised identities in particular. An emphasis on the paradoxes of racialisation and the contingencies of minority and white antiracist identities can promote a realistic and productive understanding of diversity training that may avoid the pitfalls of existing approaches. To conclude, an outline of factors that contribute to reflexive antiracism praxis are presented, drawing on examples from an existing diversity training course.

A postcolonial analysis of Indigenous cultural awareness training for health workers

Abstract Indigenous cultural training for health workers is an increasingly popular intervention designed to improve the health services provided to Indigenous peoples in Australia. The provision of this training is based on the recognition that the measured discrepancy between Indigenous and non-Indigenous health outcomes is in part influenced by cultural difference and a history of racism in Australian society. Indigenous cultural training in Australia predominantly draws on a ‘cultural awareness’ framework which seeks to educate health workers about ‘Indigenous culture’. To date, evaluations of Indigenous cultural training programs have found them to have questionable efficacy, although most of these evaluations have been methodologically inadequate. This article draws on postcolonial theory to explore the limitations of Indigenous cultural training as it is commonly conceptualised. Issues of essentialising ‘Indigenous culture’, ‘otherness’ and the absence of systemic responsibility for culturally appropriate health service provision are discussed. Finally, we consider future directions for Indigenous cultural training that are useful to both Indigenous service users and the health workers charged with ‘closing the gap’ between Indigenous and non-Indigenous health outcomes.

Orphan DNA: Indigenous samples, ethical biovalue and postcolonial science

Thousands of blood samples taken from Australia’s indigenous people lie in institutional freezers of the global North, the legacy of a half-century of scientific research. Since those collections were assembled, standards of ethical research practice have changed dramatically, leaving some samples in a state of dormancy. While some European and American collections are still actively used for genetic research, this practice is viewed as unethical by most Australian genetic researchers, who have closer relationships with indigenous Australians and postcolonial politics. For collections to be used ethically, they require a ‘guardian’ who has an ongoing and documented relationship with the donors, so that consent to further studies on samples can be negotiated. This affective and bureaucratic network generates ‘ethical biovalue’ such that a research project can satisfy Australian ethical review. I propose in this article that without ethical biovalue, collections become ‘orphan’ DNA, divorced from a guardian and often difficult to trace to their sources. Such samples are both orphaned and functionally sterile, unable to produce data, scientific articles, knowledge or prestige. This article draws on an ethnographic study of genetic researchers who are working in indigenous communities across Australia. I present tales of researchers’ efforts to generate ethical biovalue and their fears for succession; fears that extend to threats to destroy samples rather than see them orphaned, or worse, fall into the wrong hands. Within these material and affective networks, indigenous DNA morphs from biological sample to sacred object to political time bomb.

Aboriginal mitogenomes reveal 50,000 years of regionalism in Australia

Aboriginal Australians represent one of the longest continuous cultural complexes known. Archaeological evidence indicates that Australia and New Guinea were initially settled approximately 50 thousand years ago (ka); however, little is known about the processes underlying the enormous linguistic and phenotypic diversity within Australia. Here we report 111 mitochondrial genomes (mitogenomes) from historical Aboriginal Australian hair samples, whose origins enable us to reconstruct Australian phylogeographic history before European settlement. Marked geographic patterns and deep splits across the major mitochondrial haplogroups imply that the settlement of Australia comprised a single, rapid migration along the east and west coasts that reached southern Australia by 49–45 ka. After continent-wide colonization, strong regional patterns developed and these have survived despite substantial climatic and cultural change during the late Pleistocene and Holocene epochs. Remarkably, we find evidence for the continuous presence of populations in discrete geographic areas dating back to around 50 ka, in agreement with the notable Aboriginal Australian cultural attachment to their country.

THE STIGMA OF WHITE PRIVILEGE: Australian anti-racists and Indigenous improvement

Beginning in the 1970s, the efforts of the Australian settler state to help its Indigenous minority shifted away from ‘assimilation’ and embraced the principles of ‘self-determination’. According to the rhetoric of the self-determination era – explored in this article as the ‘liberal fantasy space’ – Aboriginal and Torres Strait Islander Australians should be in control of efforts to improve their lives, ultimately making state intervention redundant. A by-product of this shift was to radically change the role of non-Indigenous people who sought to participate in Indigenous development. No longer in charge of Indigenous advancement, they were now cast as partners and supporters. This article explores some of the complexities of White anti-racist subjectivities in the self-determination era. It draws on ethnographic research with a group of progressive Whites who work in Indigenous health in northern Australia. A striking feature of contemporary White anti-racist discourse is a reluctance to claim any agency in the process of Indigenous improvement. I argue that applying the concept of stigma to White privilege is a novel and productive approach to understanding this desire for self-effacement. White stigma works in a parallel fashion to the case of liberal Germans who believe the German collective identity is irrevocably tainted by the Holocaust. In the Australian case, the negative characteristics associated with Whiteness act as a barrier to the broader goal of constructing ethical White subjectivities fit for the ‘liberal fantasy space’ of post-colonial justice. In their attempts to overcome this barrier and transcend White stigma, White anti-racists mobilise the identity tropes of missionary, mother, and child. Ultimately, these efforts at self-fashioning point to the ultimate fantasy of decolonisation: the desire of White anti-racists to disappear.

Moving beyond good intentions: indigenous participation in aboriginal and Torres Strait islander health research.

Indigenous participation in every aspect of health research is increasingly recognised as an important element of any research project that aims to improve Indigenous health. Despite the acceptance of its importance, when the concept of ‘Indigenous participation’ is mentioned, authors are often imprecise as to the nature and purpose of participation, and its relationship to improved health outcomes. This report attempts to bring some clarity to the variety of meanings we might give Indigenous participation in research. For the purposes of stimulating further debate, we identify four distinct, but overlapping, rationales: pragmatic, moral, interventionist, and epistemological. Each has different implications for how Indigenous participation should be implemented and evaluated. More debate on the meanings and purposes of Indigenous participation will contribute to a refined understanding of its potential benefits to health research.

Genetic research in Indigenous health: significant progress, substantial challenges.

f all the measurements and biological samples used in health research, it is the extraction and analysis of genetic material that has caused the most controversy in indigenous health research across the globe. No other kind of research has a specific international non-governmental organisation dedicated to opposing it — the Indigenous People’s Council on Biocolonialism. This United States-based organisation was founded in 1999 in the wake of the Human Genome Diversity Project (HGDP). That project was a worldwide effort to collect DNA samples from indigenous populations for population genetic research that aimed to understand the ancient migration of Homo sapiens out of Africa beginning 100 000 years ago, and populating the rest of the world.

Culture, History, and Health in an Australian Aboriginal Community: The Case of Utopia

The poor health of Indigenous Australians is well established. However, the health of residents of one remote community in the Northern Territory of Australia called Utopia has been found recently to be much better than expected. In this article, we draw on historical anthropological research to explain this finding. We trace how cultural and social structures were maintained through changing eras of government policy from the 1930s, and show how these structures strengthened psychosocial determinants of health. We argue that the mainstream psychosocial determinants of social cohesion and self-efficacy are usefully reconceptualized in an Indigenous context as connectedness to culture and land, and collective efficacy, respectively. Continuity of cultural and social structures into the 1940s was facilitated by a combination of factors including the relatively late colonial occupation, the intercultural practices typical of the pastoral industry, the absence of a mission or government settlement, and the individual personalities and histories of those connected to Utopia.