F.J. Shih

An exploration of spiritual needs of Taiwanese patients with advanced cancer during the therapeutic processes

AIMS AND OBJECTIVES This study explores the spiritual needs of patients with advanced cancer during their therapeutic process in Taiwan and analyses the influence of Chinese culture in addressing their spiritual needs. BACKGROUND Many nurse clinicians have concerns about the difficulties of providing spiritual care for ethnic-Chinese cancer clients within their cultural context, possibly as a result of lack of knowledge and training. There has been little research exploring the potential impact of Chinese cultural values on the spiritual needs of patients with advanced cancer. DESIGN Explorative qualitative enquiry was used. METHODS Data were collected through participant observation and in-depth face-to-face interviews. Transcribed interview data were analysed by using qualitative content analysis. The purposive sample (n = 33) was drawn from a leading medical center (n = 19) with 3000 beds in the capital and a community-based rural teaching hospital (n = 14) with 581 beds in Taiwan. RESULTS Four spiritual needs emerged from the analysis: the need to foster hope for survival and obtain a peaceful mindset, to fulfil the meanings of life and preserve ones dignity, to experience more reciprocal human love and finally, to receive assistance in facing death peacefully. CONCLUSION This research has shown that patients with advanced cancer need caregivers, friends and the help of their religion to meet their spiritual needs during the therapeutic processes. RELEVANCE TO CLINICAL PRACTICE The findings of this study could assist health professionals to detect the unmet spiritual needs of ethnic-Chinese patients with cancer in the context of their cultural or religious background as early as possible.

Dark-Recovery Experiences, Coping Strategies, and Needs of Adult Heart Transplant Recipients in Taiwan

AIMS The aim of this project was to identify the dark-recovery experiences (DRE) that adult heart transplant recipients (AHTRs) perceived as causing the most suffering after heart transplantation (HT). In artition, we sought to explore the stage-specific difficulties, coping strategies, and helpers for transplant recipients DRE in Taiwan. METHODS A qualitative design was employed using a sample group of patients with DRE. Retrospective data collected by face-to-face in-depth interviews were subjected to content analysis. RESULTS A total of 20 AHTRs (16 men, 4 women) participated in this research. Their ages ranged from 32-70 years (mean, 46.95 years). Their post-HT timeframe ranged from 3 months-2.10 years. The subjects reported DRE the across preoperative intensive care unit (ICU), postoperative floor unit, and even after the hospital discharge stages. Four major difficulties during DRE were reported: (1) becoming a burden for families (all stages); (2) unfamiliar with medical protocols, environment, and policy (ICU stage); (3) mental and physical discomforts caused by the invasive examinations and unstable health condition (post-ICU to postdischarge stages); and (4) sense of uncertainty about health progression and quality of life in the future (post-ICU to postdischarge stages). Four coping strategies were used for DRE: (1) asking religious support (all stages); (2) changing mindsets and taking positive attitudes to live with difficulties (ICU to postdischarge stages); (3) setting goals for health maintenance and recovery (post-ICU to postdischarge stages); and (4) planning to look for an appropriate job in the future (postdischarge stages). Families and religious persons were cited as helpers (all stages), as well as health professionals (ICU to postdischarge stages), other AHTRs (post-ICU to postdischarge stages), and the social welfare systems (postdischarge stages). CONCLUSION DRE, coping strategies, and related helpers in Taiwan were systematically explored in this project. With this information, the transplantation team will be empowered to provide better care for AHTRs during their most vulnerable time.

Dying and caring on the edge: Taiwan's surviving nurses' reflections on taking care of patients with severe acute respiratory syndrome

Abstract In 2003, Taiwans nurses were terrified by severe acute respiratory syndrome (SARS), and four of them sacrificed their life in the course of their work with SARS patients. This study attempted to identify the stage-specific difficulties encountered by Taiwans surviving frontline nurses during the anti-SARS process. A two-step within-method qualitative triangulation research design was used to obtain the in-depth and confidential thoughts of 200 participants during the precaring, tangible caring, and postcaring stages. Six major types of stage-specific difficulties with and threats to the quality of care of SARS patients were identified according to each specific stage of the caring process. Four themes were further explored; these are discussed to provide a background context in obtaining better understanding of the multifaceted needs of nurses during this crisis. Consequently, a conceptual framework was developed to depict this complex phenomenon.

Perceived Health-Related Quality of Life in Heart Transplant Recipients With vs Without Preoperative ECMO in Taiwan: Between-Method Triangulation Study

OBJECTIVE To compare changes in overall health-related quality of life (HRQoL), working competence, and physical functions in heart transplant (HTx) recipients with vs without preoperative extracorporeal membrane oxygenation (ECMO) at 3 crucial stages post-HTx: 1 and 6 months and 1 year. PATIENTS AND METHODS This between-method triangulation study included qualitative and quantitative data for patients recruited from a medical center with 2200 beds. Quantitative data were obtained using a vertical visual analog scale and the Taiwan version of the World Health Organization Quality of Life Questionnaire. Six semistructured qualitative questions were added to further explore factors that influence changes in Social domains of HRQoL between the 4 groups across recovery stages. RESULTS The 50 patients (86% men and 14% women) ranged in age from 20 to 70 years (mean age, 47.68 years). Time post-HTx ranged from 1 year to 4 years and 1 month, and 16% had received preoperative ECMO therapy. Mean (SD) HRQoL, working competence, and physical functions improved from 54.76 (24.44), 31.8 (26.53), and 80.00 (33.67), respectively, at 1 month post-HTx (r=.48) to 65.76 (20.24), 50.90 (25.23), and 96.80 (11.05) at 6 months (r=.52) and 74.40 (13.65), 64.30 (21.48), and 98.8 (7.80) at 12 months (r=.44), with moderately significant differences. Compared with the non-ECMO group, the preoperative ECMO group perceived lower (stage 1), similar (stage 2), and higher (stage 3) working competence. Thirty-two percent of recipients resumed stable jobs across the 3 stages (10%, 8%, and 14%, respectively), and reported higher working competence and physical functions compared with other patients (68%) (P<.001). Recipients with stable marriages (P=.046), higher educational achievement level (P=.004), and stable jobs (P=.001) reported greater overall HRQoL across the 3 stages. CONCLUSION Heart transplant recipients reported higher overall HRQoL, working competence, and physical functions across the 3 recovery stages during 12 months post-HTX. Three major influencing factors identified included stable marriage, higher educational achievement level, and stable job status.

Changes in Health-Related Quality of Life Across Three Post-Heart Transplantation Stages: Preoperative Extracorporeal Membrane Versus Non-Extracorporeal Membrane Group/Clinical Trial Plan Group Versus Non-Clinical Trial Plan Group in Taiwan

AIMS The aims of this research were to compare changes in overall health-related quality of life (HRQoL), working competence (WC), physical functions (PF), and quality of sleep across 3 crucial post-heart transplantation (HT) stages (1 month, 6 months, and 1 year post-HT) between the following: (1) preoperative extracorporeal membrane (preop-ECMO) versus non-ECMO group and (2) postoperative Clinical Trial Plan (CTP) group versus non-CTP group in Taiwan. PATIENTS AND METHODS A between-method triangulation design was used. Subjects who had undergone HT in the last 1-4 years were recruited from a leading medical center in Taipei. Quantitative data were collected using Visual Analog scale (VAS) and Taiwans version of the World Health Organization Quality of Life (WHOQOL) questionnaire. Semistructured qualitative questions were added to explore the factors influencing the changes in social domains of HRQoL. RESULTS A total of 62 heart transplant recipients (HTRs) participated in this study. Their ages ranged from 20 to 70 (mean, 47.16 ± 12.09) years; 80.6% were male. Compared with the subjects with preop-ECMO, HRQoL, WC, and PF of the subjects without preop-ECMO were less at 1 month post-HT; the difference reached statistical significance for HRQoL and PF for 1 month post-HT, but they recovered at the 6 months post-HT stage. HTRs who had participated in the CTP had higher HRQoL and perceived WC in the period of 1 month post-HT, 6 months post-HT, and 1 year post-HT as compared with the group not in CTP; meanwhile, the difference was statistically significant for HRQoL at 1 month post-HT and 6 months post-HT and for PF at 1 month post-HT. CONCLUSIONS The efficacy of postop-CTP including HRQoL, WC, and PF was promising across the 3 post-HT stages. Postop-CTP was suggested both clinically and was shown to be statistically significant to HTRs recovery of their health status.

Challenging Issues of Overseas Transplantation in Mainland China: Taiwan Organ Transplant Health Professionals' Perspective

OBJECTIVE As the source of organs is limited in Taiwan, and communication systems are becoming more open between Taiwan and mainland China, the call for overseas transplantation in mainland China is increasing in Taiwan. This study explored the perspectives of Taiwan organ transplant health professionals on the challenging issues related to transplantation procedures in mainland China, including health professionalism as well as collaborative systems for information and communication technologies (ICTs). METHODS A purposive sample including overseas transplant surgeons (OTS), registered nurses (RN), overseas transplant coordinating nurses (OTCN), and e-health ICTs experts (eh-ICTs) was obtained from two medical centers in Taipei. Subjects underwent face-to-face interviews with data subjected to content analysis. RESULTS The 70 subjects included OTS (n = 20), RN (n = 25), OTCN (n = 15), and eh-ICTs (n = 10). Their ages ranged from 23 to 63 years old (mean, 33.7 years). The current challenges were identified: (a) lack of workable collaborative systems for continuous medical care between two parties due to different medical recording systems in particular (86%, n = 60; OTS, n = 19; RN, n = 21; OTCN, n = 10; eh-ICTs, n = 10); (b) lack of mutual trustworthy relationships between medical delivery systems (84%, n = 59; OTS, n = 17; RN, n = 22; OTCN, n = 10; eh-ICTs, n = 10); (c) lack of accreditation systems to judge possible conflicts related to medical diagnosis and treatment protocols (79%, n = 55; OTS, n = 19; RN, n = 19; OTCN, n = 7; eh-ICTs, n = 10); (d) Taiwanese hesitation regarding the quality of transplant procedures in mainland China (71%, n = 50; OTS, n = 18; RN, n = 17; OTCN, n = 8; eh-ICTs, n = 7); and (e) stress from concerns of Taiwan medical societies about the benefits of collaboration with mainland China (64%, n = 45; OTS, n = 13; RN, n = 18; OTCN, n = 8; eh-ICTs n = 6). CONCLUSION This discussion is still ongoing. Trapped by the limited organ source and confronted by multiple challenges revealed in this project, Taiwan societies have suggested to initiate interdisciplinary communication avenues. Starting with less culturally confounded issues such as establishing a reliable ICTs system (ie, e-health documents) may be more appreciated by the two parties in the near future.