Gale A. Dutcher

HIV/AIDS information outreach: a community-based approach

OBJECTIVE The paper provides an overview of the National Library of Medicines (NLMs) AIDS Community Information Outreach Program during the years 1994 to 2005, discusses the impact of previously funded projects, and explores future implications for HIV/AIDS information outreach to communities in need. METHODS A qualitative assessment was conducted to provide information on the impact of projects funded by the AIDS Community Information Outreach Program during fiscal year 2002. Interviews were conducted and final reports were analyzed, resulting in themes based on roles and responsibilities of participants and the impact of the projects in the communities. RESULTS Results from the assessment suggest that access to HIV/AIDS information led to improved communication between patients and their health care providers and encouraged better health care decision making. Feedback from reports and interviews included examples of impact such as an increase in services provided to communities, national and global recognition of HIV/AIDS services, sustainability of projects, and improved communication. CONCLUSION Community-based health information outreach projects may empower the HIV/AIDS community to become more involved in health care and improve communication with providers. NLM will continue to promote the AIDS Community Information Outreach Program to encourage community organizations to design local projects for their specific communities.

Empowering patients and community online: Evaluation of the AIDS community information outreach program

The AIDS Community Information Outreach Program (ACIOP) was created in 1994 to assist the affected community in utilizing electronic HIV/AIDS information resources. Nearly 300 competitive awards have been made to mostly community-based organizations. A formal evaluation was undertaken to determine the performance and impact of the ACIOP. A mixed methods design combined quantitative abstractions and summarization of 47 awardee final reports from 44 organizations, and qualitative telephone interviews with 17 individuals representing 20 projects. Findings revealed that project objectives were mostly met; high-risk populations were reached; low resource organizations were funded; community partnerships were significant; projects built on existing efforts; information resources and training were tailored to local needs; and most projects overcame barriers experienced. Needed modifications centered on: 1) enhancing evaluation capacity at the individual project level and 2) revising project reporting requirements to increase the amount of information available to assess the ACIOP; both have been implemented.

Addressing health disparities and environmental justice: the National Library of Medicine's Environmental Health Information Outreach Program

PURPOSE Disparities in health between minority and majority populations have become a topic of high interest in the health care and information communities. This paper describes the National Library of Medicines (NLMs) oldest outreach program to a minority population, a project that has been going on for over fifteen years. SETTING/PARTICIPANTS/RESOURCES The overview is based on internal documentation and reports, interviews, personal communications, and project reports. BRIEF DESCRIPTION This is a historical overview of the Environmental Health Information Outreach Program, from its beginnings in 1991 as the Toxicology Information Outreach Project. The initial collaboration began with nine historically black colleges and universities (HBCUs) that had graduate programs in biomedicine. The current program includes representation from HBCUs, institutions serving Hispanic students, and tribal colleges. In addition to working with these institutions to promote the use of and access to electronic health information and related technology, this program brings attention to scientific research related to health issues that disproportionately affect minorities. RESULTS/OUTCOME The program expanded due to its perceived success by the initial participants and NLMs management. Not only have faculty, staff, and students at the participating institutions received training in using NLMs toxicology, environmental health, and other electronic resources, but the participants ascribe other successes to their collaboration with NLM.

The Refugee Health Information Network: A Source of Multilingual and Multicultural Health Information

Abstract The Refugee Health Information Network is an electronic resource designed to make accessible culturally and linguistically appropriate health and medical information in order to improve health services for refugees and asylees. Much of this information will clearly be of value to immigrants as well. This is also a network designed to facilitate collaboration and sharing among state refugee health coordinators and clinics providing services to refugee and immigrant communities.

NLM Workshop Marks 20 Years of Community Outreach and Capacity Building in HIV/AIDS

The National Library of Medicines (NLM) AIDS Community Information Outreach Program (ACIOP) was launched in 1994 to provide the HIV/AIDS affected community with access to vital health information resources increasingly becoming available on the Internet. Three hundred awards have been made mostly to community-based organizations. An evaluation in 2012 found that most program objectives are being met; a principal recommendation going forward was that NLM seek to enhance the capacity of community-based awardees to conduct evaluations of their own projects. This article reports on a workshop whose invitees were drawn from AIDS serving organizations, along with scientists, clinicians, and information technologists, to review the evaluation findings and recommendations. They considered alternatives for improving awardees’ evaluation capabilities with the help of expert consultation, identified additional steps that could be taken to make individual project results more transparent and sharable, and looked at external influences ranging from mobile health devices to the latest HIV/AIDS scientific research findings that could be used to align future awards with unmet needs in the community. The paper identifies efforts subsequently made by ACIOP managers to prioritize and operationalize guidance from the evaluation and the workshop, and discusses the benefits of community engagement.

Enhancing the capacity of community organizations to evaluate HIV/AIDS information outreach: A pilot experiment in expert consultation

The National Library of Medicines AIDS Community Information Outreach Program (ACIOP) supports and enables access to health information on the Internet by community-based organizations. A technical assistance (TA) model was developed to enhance the capacity of ACIOP awardees to plan, evaluate, and report the results of their funded projects. This consisted of individual Consultation offered by an experienced evaluator to advise on the suitability of proposed project plans and objectives, improve measurement analytics, assist in problem resolution and outcomes reporting, and identify other improvement possibilities. Group webinars and a moderated blog for the exchange of project-specific information were also offered. Structured data collections in the form of reports, online surveys, and key informant telephone interviews provided qualitative feedback on project progress, satisfaction with the TA, and the perceived impact of the interventions on evaluation capacity building. The Model was implemented in the 2013 funding cycle with seven organizations, and the level of reported satisfaction was uniformly high. One-on-one TA was requested by four awardee organizations, and was determined to have made a meaningful difference with three. Participation in the webinars was mandatory and high overall; and was deemed to be a useful means for delivering evaluation information. In subsequent funding cycles, submission of a Logic Model will be required of awardees as a new model intervention in the expectation that it will produce stronger proposals, and enable the evaluation consultant to identify earlier intervention opportunities leading to project improvements and evaluation capacity enhancements.

HIV/AIDS information resources and services from the national institutes of health

Summary As part of its efforts to combat HIV/AIDS, the Federal government has developed numerous information resources and services. The National Institutes of Health, a leader in biomedical research, has taken a leadership role in the provision of important information services as well. Use of the Internet has facilitated information dissemination and enabled researchers, health care providers, patients, and the general public to have access to the most up-to-date information.