Graham Crow

The Management of Confidentiality and Anonymity in Social Research

This article explores the ways in which social researchers manage issues of confidentiality and the contexts in which deliberate and accidental disclosures occur. The data are drawn from a qualitative study of social researchers’ practices in relation to informed consent. It comprised 31 individual interviews and six focus groups as well as invited email responses with researchers working with vulnerable groups or with an interest in research ethics. Researchers reported feeling compelled to break confidentiality when participants were perceived as being at risk of harm but not in cases of involvement in illegal activity. Situations in which accidental disclosures occurred were also identified. Researchers reported varying ways in which they protected the confidentiality of their participants in the dissemination of their research, including omitting data and changing key characteristics of participants. The implications of researchers’ practices on data integrity and relationships with participants are discussed.

Researching researchers: Lessons for research ethics

There is widespread debate about ethical practice in social research with most social researchers arguing that situational relativist approaches are appropriate for resolving the ethical issues that emerge. In this article, we draw on research conducted on an ESRC-funded study of informed consent in social research to explore the ethical issues that are raised when conducting research with one’s peers. The study involved conducting focus groups and telephone interviews with academic and non-academic researchers. The ethical issues emerging from the study related to consent, data ownership and the management of confidentiality and anonymity. Participants’ responses to these issues and the ways that we managed them are discussed. We conclude by exploring the implications of this study for research more generally and argue that the increased regulation of research needs to enable researchers to attend reflexively to the social context in which consent takes place.

Informed Consent, Gatekeepers and Go-Betweens: Negotiating Consent in Child- and Youth-Orientated Institutions.

Gaining informed consent from research participants is widely regarded as central to ethical research practice. This article reports on research which sought to identify contemporary practice in this area amongst researchers working in fields where research participants are often constructed as vulnerable within the research process, and where their potential involvement tends to be mediated by institutional gatekeepers. Drawing on telephone interview and focus group data, the article focuses specifically on the experiences of researchers working with children and young people. It highlights the tensions experienced by many researchers between a personal commitment to an ethical framework which seeks to prioritise the agency and competency of children and young people, and the conditions imposed upon them by working within institutional settings where these principles may be undermined. This research suggests that the consent practices of child- and youth-orientated institutions, however much frowned upon, tend to go largely unchallenged by researchers, to the detriment of the rights of children and young people to opt in and out of research on their own behalf.

Innovation in qualitative research methods: a narrative review

This article reviews claims for methodological innovation in qualitative research. It comprises a review of 57 papers published between 2000–9 in which claims to innovation in qualitative methods have been made. These papers encompass creative methods, narrative methods, mixed methods, online/e-research methods, focus groups and software tools. The majority of claims of innovation are made for new methods or designs, with the remainder claiming adaptations or adoption of existing methodological innovations. However, the evidence provided of wholly new methodologies or designs was limited, and in several papers such claims turned out to relate either to adaptations to existing methods, or to the transfer and adaptation of methods from other disciplines, primarily from arts and humanities. We argue that over-claiming innovation in the sense of the development of a wholly new methodology or design has a number of important implications that are potentially detrimental to qualitative social science.

Research Ethics and Data Quality: The Implications of Informed Consent

Patterns of research governance are changing rapidly in the field of social research. In current debates about these changes one issue of particular concern is the impact that new patterns of research governance will have on the quality of the data collected. The ‘optimistic’ scenario on this issue is that more ethical research practice will lead to better‐quality data, but a more ‘pessimistic’ scenario exists in which the unintended outcome is poorer‐quality data. Drawing on material from a study of researchers’ experiences of dealing with the process of gaining informed consent from research participants, this article identifies the various ways in which the researchers position themselves in relation to the competing ‘optimistic’ and ‘pessimistic’ scenarios. It concludes by seeking to develop a synthesis of the two positions in which ethical research practice is treated neither as an automatic guarantee of, nor as an inevitable obstacle to, the collection of good‐quality data.

Families, households, and society

Patterns of household and family life are changing radically, leading sociologists to develop new conceptualisations and understandings of the relationships involved. This book examines the character of these changes, exploring the growing diversity there is in peoples domestic circumstances. It is particularly concerned with the blurred boundaries between households and families, and the tensions that can arise in the solidarities and obligations experienced as household and family processes unfold.

Informed Consent and the Research Process: Following Rules or Striking Balances?

Gaining informed consent from people being researched is central to ethical research practice. There are, however, several factors that make the issue of informed consent problematic, especially in research involving members of groups that are commonly characterised as ‘vulnerable’ such as children and people with learning disabilities. This paper reports on a project funded by the UK Economic and Social Research Council (ESRC) which was concerned to identify and disseminate best practice in relation to informed consent in research with six such groups. The context for the study is the increased attention that is being paid to the issue of informed consent in research, not least because of the broad changes taking place in research governance and regulation in the UK. The project involved the analysis of researchers’ views and experiences of informed consent. The paper focuses on two particular difficulties inherent in the processes of gaining and maintaining informed consent. The first of these is that there is no consensus amongst researchers concerning what comprises ‘informed consent’. The second is that there is no consensus about whether the same sets of principles and procedures are equally applicable to research among different groups and to research conducted within different methodological frameworks. In exploring both these difficulties we draw on our findings to highlight the nature of these issues and some of our participants’ responses to them. These issues have relevance to wider debates about the role of guidelines and regulation for ethical practice. We found that study participants were generally less in favour of guidelines that regulate the way research is conducted and more in favour of guidelines that help researchers to strike balances between the conflicting pressures that inevitably occur in research.

Family Diversity and Change in Britain and Western Europe

The authors examine recent changes in family relationships in Britain and other countries in Western Europe. To begin with, the authors focus on demographic change, in particular the increased diversity in peoples partnership behavior. In considering theoretical accounts that have been given for these changes, the authors explore the ways in which the character of partnership commitment is altering. Particular attention is paid to the growth of cohabitation and the effect this has on cultural understandings of marital commitment. The implications for wider kinship solidarities of changing practices around partnership commitment are discussed. A key theme within this concerns the diversity and complexity of the manner in which family and kinship are negotiated and constructed.

Methodological innovation and research ethics: forces in tension or forces in harmony?

This article is an exploration of the tensions inherent in the interaction between ethics and methodological innovation. The authors focus on three cases of innovation in qualitative research methods in the social sciences: netnography, child-led research and creative research methods. Using thematic analysis of data collected through semi-structured interviews with the innovators and commentators on the innovations, they discuss issues of ethical responsibility, democratisation of research, empowerment and the relationship between research and the academy. This article highlights the ways in which innovation is about reflexivity as well as new techniques. It shows how innovation may be about managing risk rather than taking risks: the innovators are cautious as much as creative, operating within a culture in which procedural ethical regulation acts to limit methodological development and in which they (and other users of their method/approach) communicate the safe qualities alongside the innovative qualities of their approach.

Friends, Neighbours and Distant Partners: Extending or Decentring Family Relationships?

Introduction1.1 There is a longstanding recognition that grasping the meaning and significance of any specific personalrelationship requires an understanding of the whole constellation of personal ties within which people areembedded. So for example, to understand kinship it is equally necessary to understand friendship (Allan,1979). This special collection brings together research which offers insight into personal relationships ofworking-age adults beyond or outside of the conventional domestic context of a co-resident couple with orwithout children. In comparison to the wealth of research on couple and parent-child relationships, otheradult personal relationships are relatively under-researched and it is hoped that this issue will encouragefurther work. Examples of the kinds of relationships considered here include sexual relationships andpartnerships between adults outside the family-based household (Holmes, Roseneil, Reynolds), thefriendships of those not living with a partner (Budgeon), the whole constellation of personal relationships ofsingle women (Simpson) and their negotiation of the identity ‘single woman’ (MacVarish), .neighbours(Boyce, Stokoe), and relations with paid carers who enter into family contexts (Pockney).1.2 These relationships are all outside the established package of partnership, parenthood and householdalthough all represent some aspects of intimacy: bodily, emotional and privileged knowledge of the otherperson. They have some affinities and overlaps with family practices while also having their own distinctcharacteristics. The detailed exploration of these different sets of practices, using a variety ofmethodologies, may help us understand their particular logics and rationales, as well as how they aredistinct from or have continuities with more regularly understood relationships of family and kinship. Theseindividual studies can also remind us of the significance and sources of the inequalities and externalstructural factors surrounding and shaping these relationships and limiting the degrees of freedom enjoyedby individuals.1.3 Having a more complete picture of the whole constellation of personal relationships is urgently neededto inform contested interpretations of social trends in personal life. One particular line of interpretation ofsocial change is that some of the non-familial relationships discussed in this collection are eclipsingfamilial relationships in their significance. In a review of research across personal relationships at the endof the twentieth century, Jamieson (1998, 1999) noted that although friendship was claimed theoretically asthe ideal intimate relationship, the couple remained the popular choice at the centre of adult personal life.However, at the time of this collection, a growing number of researchers, including contributors to thisissue, suggest the growing importance of adult friendships (Pahl and Spencer, 2004, Spencer and Pahl2006) and believe they are seeing the focus of personal life shift from the couple, and particularly thegendered, heterosexual, co-resident, family-founding couple, to a more fluid network of intimates includingfriends, lovers and neighbours (Budgeon, this volume; Roseneil, this volume; Roseneil and Budgeon, 2004,Savage, Bagnall & Longhurst, 2005). The suggestion is that this more fluid network may be taking over,practically and emotionally, as the important relationships in people’s lives and undermining the culturaldominance of conventional family relationships as the idealized relationships to which we aspire. A numberof contributions in this volume add to a body of recent research which suggests that the boundary between‘familial’ and ‘non-familial’ relationships is increasingly blurred in everyday lives. One way of portraying thisis in terms of the elasticity and constant stretching of the boundary of what constitutes ‘family’ as theconstellations that people designated as ‘familial’ become increasingly diverse. Another way of portrayingthis is to say that the idea and ideal of family is losing ground to different understandings of how life shouldbe lived. These different ways of interpreting the same trends disagree about how fundamental a shift inactual practices has taken place.