Guy Micco

Doubt and belief in physicians' ability to prognosticate during critical illness: The perspective of surrogate decision makers

Objectives:Although discussing a prognosis is a duty of physicians caring for critically ill patients, little is known about surrogate decision-makers’ beliefs about physicians’ ability to prognosticate. We sought to determine: 1) surrogates’ beliefs about whether physicians can accurately prognosticate for critically ill patients; and 2) how individuals use prognostic information in their role as surrogate decision-makers. Design, Setting, and Patients:Multicenter study in intensive care units of a public hospital, a tertiary care hospital, and a veterans’ hospital. We conducted semistructured interviews with 50 surrogate decision-makers of critically ill patients. We analyzed the interview transcripts using grounded theory methods to inductively develop a framework to describe surrogates’ beliefs about physicians’ ability to prognosticate. Validation methods included triangulation by multidisciplinary analysis and member checking. Measurements and Main Results:Overall, 88% (44 of 50) of surrogates expressed doubt about physicians’ ability to prognosticate for critically ill patients. Four distinct themes emerged that explained surrogates’ doubts about prognostic accuracy: a belief that God could alter the course of the illness, a belief that predicting the future is inherently uncertain, prior experiences where physicians’ prognostications were inaccurate, and experiences with prognostication during the patients intensive care unit stay. Participants also identified several factors that led to belief in physicians’ prognostications, such as receiving similar prognostic estimates from multiple physicians and prior experiences with accurate prognostication. Surrogates’ doubts about prognostic accuracy did not prevent them from wanting prognostic information. Instead, most surrogate decision-makers view physicians’ prognostications as rough estimates that are valuable in informing decisions, but are not determinative. Surrogates identified the act of prognostic disclosure as a key step in preparing emotionally and practically for the possibility that a patient may not survive. Conclusions:Although many surrogate decision-makers harbor some doubt about the accuracy of physicians’ prognostications, they highly value discussions about prognosis and use the information for multiple purposes.

Family involvement in end-of-life hospital care

OBJECTIVES: To examine whether the end‐of‐life treatment provided to hospitalized patients differed for those who had a family member present at death and those who did not.

Before it is too late: professional responsibilities in late-onset Alzheimer’s research and pre-symptomatic prediction

The development of a wide array of molecular and neuroscientific biomarkers can provide the possibility to visualize the course of Alzheimer’s disease (AD) at early stages. Many of these biomarkers are aimed at detecting not only a preclinical, but also a pre-symptomatic state. They are supposed to facilitate clinical trials aiming at treatments that attack the disease at its earliest stage or even prevent it. The increasing number of such biomarkers currently tested and now partly proposed for clinical implementation calls for critical reflection on their aims, social benefits, and risks. This position paper summarizes major challenges and responsibilities. Its focus is on the ethical and social problems involved in the organization and application of dementia research, as well as in healthcare provision from a cross-national point of view. The paper is based on a discussion of leading dementia experts from neuroscience, neurology, social sciences, and bioethics in the United States and Europe. It thus reflects a notable consensus across various disciplines and national backgrounds. We intend to initiate a debate on the need for actions within the researchers’ national and international communities.

Factors associated with oncology patients' involvement in shared decision making during chemotherapy.

Oncology patients are increasingly encouraged to play an active role in treatment decision making. While previous studies have evaluated relationships between demographic characteristics and decision‐making roles, less is known about the association of symptoms and psychological adjustment characteristics (eg, coping styles and personality traits) and decision‐making roles.

Serving the Very Sick, Very Frail, and Very Old: Geriatrics, Palliative Care, and Clinical Ethics

abstract:How can we provide the best care for growing numbers of very frail, very sick, or very old people? The disciplines of geriatrics, palliative care, and clinical ethics each have a good deal to offer to improve care for elders, yet each field is saddled with heavy historical baggage. Using a case as a springboard, we address specific strengths and shortcomings of each field, and what these disciplines can learn from each other. Geriatrics is currently largely focused on prevention of disability, cognitive impairment, and death; it should reorganize around a palliative approach to providing care for elders living with multiple chronic conditions, disability, and dementia. Palliative care, while paying some attention to the spectrum of advanced illness, concentrates primarily on cancer; it should expand its central purpose to include providing supportive care to elders with serious illness and their caregivers. Ethics committee members and consultants principally stress individual autonomy; they need to expand their approach and develop longitudinal relationships with patients and family members, routinely incorporating them in deliberations and the crafting of recommendations. However, improving these three disciplines will only go so far toward improving the care of very frail, very sick, or very old people. What is most needed is longitudinal care provided by interdisciplinary primary care teams steeped in the core principles of all three disciplines.