Hannah Zeilig

Gaps and spaces: representations of dementia in contemporary British poetry.

This article considers the work of a number of contemporary British poets who have attempted to articulate some of the experiences that dementia entails. The unique potential of poetry as a means of portraying the dislocations and reinventions of self that dementia involves has been mostly overlooked. The insights offered by critical gerontology are central to this article. This perspective calls for critical thought about the ways in which dementia has been socially constructed. The challenges posed by poets such as Vuyelwa Carlin, Valerie Laws and Jo Shapcott in particular, are examined. The complex poetic representations offered by these poets acknowledge the pathological declines of dementia and simultaneously celebrate the individuality and life of their subjects. Considering dementia with reference to the work of contemporary poets and critical gerontology is one way in which we can deepen our understanding of what this illness involves and humanise those who suffer from it.

Extra care housing: a concept without a consensus

Extra care housing has developed from sheltered housing and has increasingly been seen as a popular option by policy‐makers for a number of reasons. These include the inability of conventional sheltered housing to be an adequate solution for a growing population of very old people, the decline in popularity and high costs of residential care and perceived problems with older people staying in mainstream housing. There is, however, no agreed definition of extra care housing, even though a growing number of government grants are becoming available for this type of housing. This is causing confusion for providers and for older people and their families who are not sure exactly what is provided. This lack of clarity means that this form of housing has become an erratic and piecemeal form of provision.

Rights in mind: Thinking differently about dementia and disability

The aim of this paper is to argue for the utility of a relational model of disability, as a way of conceptualizing dementia. We explore whether dementia should be considered as a disability, and whether people with dementia might consider themselves as disabled people. We review examples of, and issues raised by, the political activism of people with dementia. We consider how language constructs dementia negatively. We discuss how the environment influences the experience of dementia. In conclusion, we show that a relational model of dementia lays the basis for a human rights approach to the condition, based on collaborative partnerships between people with dementia and people from other disability communities.

The arts in dementia care education: a developmental study

Purpose – The purpose of this paper is to outline the first stage of an innovative developmental study addressing the educational and emotional needs of dementia care home staff using arts-based materials. Design/methodology/approach – The arts workshop was developed using a mixed methods approach. This included ethnographic observation within a dementia care home, in-depth interviews with senior care home managers, a thematic analysis of focus groups and the development of a comic. At all stages, the multi-disciplinary project team collaborated closely with the care home staff. A comprehensive literature review of the policy, practice and academic background to dementia workforce education provided a contextual framework for the study. Perspectives from the medical humanities informed the project. Findings – Despite the high prevalence of people living with dementia in care homes, there is a lack of appropriate training for the workforce that provides their care. This study found that an arts-based works...

What do we mean when we talk about dementia? Exploring cultural representations of “dementia”

Purpose – The purpose of this paper is to contribute to debates about the category “dementia”. Dementia is discussed, as it is a social, political and cultural issue, rather than a solely medical phenomenon. Design/methodology/approach – The methodology synthesises perspectives from humanities with the social sciences. Thus a number of cultural texts are analysed critically and set alongside data from two original research projects exploring the use of the arts for people living with a dementia. Central to the research is a close and critical examination of news reports, films, plays and documentaries that represent “dementia”. The extent to which metaphorical language frames ways of talking about dementia formed a key part of this analysis. Findings – Until recently, “dementia” has been primarily defined in biomedical terms. This paper demonstrates that understandings of dementia should be extended to encompass social and cultural contexts. Research limitations/implications – The research concentrates on...

Preparatory planning framework for Created Out of Mind: Shaping perceptions of dementia through art and science

Created Out of Mind is an interdisciplinary project, comprised of individuals from arts, social sciences, music, biomedical sciences, humanities and operational disciplines. Collaboratively we are working to shape perceptions of dementias through the arts and sciences, from a position within the Wellcome Collection. The Collection is a public building, above objects and archives, with a porous relationship between research, museum artefacts, and the public. This pre-planning framework will act as an introduction to Created Out of Mind. The framework explains the rationale and aims of the project, outlines our focus for the project, and explores a number of challenges we have encountered by virtue of working in this way.

Fine Lines: cosmetic advertising and the perception of ageing female beauty

Fine Lines is a study investigating the language used in adverts for female facial cosmetics (excluding makeup) in UK Vogue magazine. The study queries whether this has been affected by the introduction and rise in popularity of minimally invasive aesthetic procedures to alleviate the signs of facial ageing. The contemporary cultural landscape is explored: this includes the ubiquitous nature of advertising as well as the growth of the skincare market. Emergent thematic analysis of selected advertisements showed a change in the language used before the introduction of the aesthetic procedures (1992 and 1993) compared with later years (2006 and 2007). We have noted a decline in numbers of advertisements within some themes (nourishing in particular showed a marked fall in number of mentions) while others have shown increases (those offering protection against UV radiation and pollution increased by 50% in the later data set). The remaining thematic categories were relatively constant over the period of study, though the emphasis shifted within the themes over time. This article concludes by asserting that the language has changed, that the vocabulary has become more inventive and that skincare products appear to be marketed as complementary to cosmetic procedures. In addition, some of the products appear to be being marketed as luxury items, something to be bought because owning and using it gives you pleasure and bestows prestige on the owner.

Mark Making: Methodologies and methods (innovative practice).

Mark Making is a recently completed AHRC-funded review exploring the role of the participative arts for people with dementia in the UK. Key concerns underlying Mark Making were both how to privilege the views and feelings of people with a dementia and also how best to understand the value of the arts for people with a dementia. These issues were tackled using a variety of qualitative methods. Methods included a rigorous literature review, the development of a unique web-based map locating many participative arts projects and above all working with people with a dementia to ascertain their views. This brief article will concentrate on some of the innovative methods that the Mark Making team used, with particular reference to comics as a mode of engagement as used in the Descartes project. The article will provide an insight into some of the methodological challenges confronted by Mark Making as well as the inspirations and successes that were enjoyed.