Jeanette Van Dongen-Melman
Boston Children's Hospital
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Publication
Featured researches published by Jeanette Van Dongen-Melman.
Pediatric Blood & Cancer | 1999
Giuseppe Masera; John J. Spinetta; Momcilo Jankovic; Arthur R. Ablin; Giulio J. D'Angio; Jeanette Van Dongen-Melman; Tim O B Eden; Antonio Gentil Martins; Ray Mulhern; Daniel Oppenheim; Reinhard Topf; Mark A. Chesler
This, the sixth official document of the SIOP Working Committee on psychosocial issues in pediatric oncology, develops another important and especially difficult topic: assistance for terminally ill children with cancer. This is provided for the pediatric oncology community as a useful set of guidelines. It should be always possible for a declining child to die without unnecessary physical pain, fear, or anxiety. It is essential that he or she receive adequate medical, spiritual, and psychological support, and that the child at no point feels abandoned. Palliative care, in the terminal phase of cancer, should be tailored to the different needs and desires of the child and the family, with the goal of providing the best possible quality of life for the days that remain.
Medical and Pediatric Oncology | 1998
Giuseppe Masera; John J. Spinetta; Momcilo Jankovic; Arthur R. Ablin; Ilana Buchwall; Jeanette Van Dongen-Melman; Tim O B Eden; Claudia Epelman; Daniel M. Green; Helen Kosmidis; Segal Yoheved; Antonio Gentil Martins; Wolfgang Mor; Daniel Oppenheim; Antonio Sergio Petrilli; Dezso Schuler; Reinhard Topf; Jordan R. Wilbur; Mark A. Chesler
This, the fifth official document of the SIOP Working Committee on Psychosocial Issues in Pediatric Oncology, develops another important topic: the Therapeutic Alliance between families and staff. This is addressed to the Pediatric Oncology Community as Guidelines that could be followed. Every parent, medical staff member, and psychosocial professional involved in the care of the child should be responsible for cooperating in the childs best interest. Everyone must work together toward the common goal of curing the cancer and minimizing its medical and psychosocial side-effects.
Acta Oncologica | 2000
Jeanette Van Dongen-Melman
More children than ever are surviving childhood cancer. However, the medical and psychosocial consequences of their longer survival are becoming clear for former patients and their families, underlining the need for aftercare. Whereas the need for medical follow-up programs is widely recognized, psychosocial aftercare is still in its infancy. This paper presents a systematic approach to developing psychosocial aftercare based on evidence from research studies. First, the family member most in need of aftercare is identified. Research findings indicate that the child surviving cancer is most seriously affected by the cancer experience, followed by mothers and fathers, whereas siblings are least affected. Accordingly, former patients and parents should be the primary target groups. Second, different types of interventions need to be developed based on the nature of the problems of the target groups and the individuals level of adjustment. Finally, psychosocial aftercare programs need to demonstrate their effectiveness in reducing late effects and improving the quality of life after treatment ends. If our aim is to cure the child truly of cancer, than the development of psychosocial aftercare, its clinical application, and evaluation of its effectiveness will be the challenge for paediatric psycho-oncology in years to come.More children than ever are surviving childhood cancer. However, the medical and psychosocial consequences of their longer survival are becoming clear for former patients and their families, underlining the need for aftercare. Whereas the need for medical follow-up programs is widely recognized, psychosocial aftercare is still in its infancy. This paper presents a systematic approach to developing psychosocial aftercare based on evidence from research studies. First, the family member most in need of aftercare is identified. Research findings indicate that the child surviving cancer is most seriously affected by the cancer experience, followed by mothers and fathers, whereas siblings are least affected. Accordingly, former patients and parents should be the primary target groups. Second, different types of interventions need to be developed based on the nature of the problems of the target groups and the individuals level of adjustment. Finally, psychosocial aftercare programs need to demonstrate their e...
Pediatric Blood & Cancer | 2009
John J. Spinetta; Momcilo Jankovic; Giuseppe Masera; Arthur R. Ablin; Ronald D. Barr; Myriam Weyl Ben Arush; Giulio J. D'Angio; Jeanette Van Dongen-Melman; Tim Eden; Claudia Epelman; Antonio Gentil Martins; Mark T. Greenberg; Helen Kosmidis; Daniel Oppenheim; Paul M. Zeltzer
Since its foundation in 1991, the SIOP Working Committee on Psychosocial Issues in Paediatric Oncology 1 has developed and published 12 sets of Guidelines for health‐care professionals treating children with cancer and their families. Those elements considered essential in the process of cure and care of children with cancer are summarized in this document as a formal statement, developed at the 2007 SIOP annual meeting in Mumbai. Elaboration of the concepts with detailed strategies for practice can be found in the referenced guidelines [1–12] and in a companion publication [13]. This article is a summary of what practitioners considered critical elements in the optimal care of the child with cancer, with the goal of stimulating a broader application of these elements throughout the SIOP membership. Pediatr Blood Cancer 2009;52:904–907.
Journal of Pediatric Psychology | 1995
Jeanette Van Dongen-Melman; Jean F. A. Pruyn; Astrid De Groot; Hans M. Koot; Karel Hählen; Frank C. Verhulst
Medical and Pediatric Oncology | 2002
John J. Spinetta; Giuseppe Masera; Tim O B Eden; Daniel Oppenheim; Antonio Gentil Martins; Jeanette Van Dongen-Melman; Mark Siegler; Christine Eiser; Myriam Weyl Ben Arush; Helen Kosmidis; Momcilo Jankovic
Medical and Pediatric Oncology | 2003
John J. Spinetta; Giuseppe Masera; Momcilo Jankovic; Daniel Oppenheim; Antonio Gentil Martins; Myriam Weyl Ben Arush; Jeanette Van Dongen-Melman; Claudia Epelman; Gabriela Medin; Kirsti Pekkanen; Tim O B Eden
Medical and Pediatric Oncology | 1996
Giuseppe Masera; Mark A. Chesler; Momcilo Jankovic; Tim O B Eden; Mark E. Nesbit; Jeanette Van Dongen-Melman; Claudia Epelman; Myriam Weyl Ben Arush; Deszö Schuler; Ray Mulhern; Luigia Adamoli; Jordan R. Wilbur; John J. Spinetta
Medical and Pediatric Oncology | 1995
Giuseppe Masera; Momcilo Jankovic; Pat Deasy‐Spinetta; Luigia Adamoli; Myriam Weyl Ben Arush; Julia Challinor; Mark A. Chesler; Robert Colegrove; Jeanette Van Dongen-Melman; Heather P. McDowell; Tim O B Eden; Claudia Epelman; Annette Kingma; Patricia H. Morris Jones; Mark E. Nesbit; Heidi Reynolds; Dezso Schuler; Michael Stevens; Leena Vasankari‐Vayrynen; Jordan R. Wilbur; John J. Spinetta
Medical and Pediatric Oncology | 2002
Ian J. Lewis; Susan Fallon; Jeanette Van Dongen-Melman; Ronald D. Barr