Katie Price

Factors Associated with the Participation of Children with Complex Communication Needs.

The aim of this study was to conduct a preliminary analysis of relations between child and environmental variables, including factors related to communication aid provision, and participation in informal everyday activities in a sample of children with complex communication needs. Ninety-seven caregivers of children provided with communication aids responded to a questionnaire survey. Child variables assessed were level of ability, trait emotional self-efficacy, and competence in communication aid use. Environmental variables assessed were the impact of childhood disability on the family, family socio-economic category, perceived reliability of electronic communication aids provided to children, and ease of use of the aid. The outcome measure was the intensity of child participation in informal activities. Significant correlations were observed between participation scores and the following variables: child age, level of ability, trait emotional self-efficacy, and family impact of childhood disability. Regression analyses highlighted trait emotional self-efficacy and, to a lesser degree, family impact of childhood disability as the strongest potential predictors of participation. While aspects of child personality may be difficult to disentangle from behaviours related to disability type or developmental age, this research highlights a clinical requirement to assess systematically child behaviours relating to their general emotional functioning.

Worster‐Drought syndrome: poorly recognized despite severe and persistent difficulties with feeding and speech

Aim  Worster‐Drought syndrome (WDS), or congenital suprabulbar paresis, is a permanent movement disorder of the bulbar muscles causing persistent difficulties with swallowing, feeding, speech, and saliva control owing to a non‐progressive disturbance in early brain development. As such, it falls within the cerebral palsies. The aim of this study was to describe the physical and neuropsychological profiles of children with WDS.

An examination of relations between participation, communication and age in children with complex communication needs.

The aim of this study was to examine variation in the frequency of children’s participation in out-of-school activities as a function of speech intelligibility, perceived effectiveness of the child’s communication aid, and age. Sixty-nine caregivers of children with complex communication needs provided with communication aids completed a questionnaire survey. Rate of participation was higher for younger than for older children, particularly in recreational activities. Younger children with partial intelligibility participated more frequently in recreational and social activities than both younger children without speech and older children. Results and limitations are discussed within the context of participation research in childhood disability, highlighting the impact of communicative resources and maturation on everyday participation.

Speech and language therapy provision for children using augmentative and alternative communication systems

A proportion of children with physical impairments experience significant difficulties in communicating with others and may be recommended augmentative and alternative communication (AAC) systems such as speech synthesizers and symbol charts to support ‘natural’ communication skills. However, AAC systems are often under-utilized. Parents have identified barriers to AAC system use to include the organization of speech and language therapy. Speech and language therapists are developing services to school-aged children in response to changes in education, health reforms and models of speech and language development. However, there is little evidence for commissioners of childrens services about what constitutes ‘enough’ or ‘good’ speech and language therapy. This paper examines speech and language therapy provision to 23 children using AAC systems in six London authorities. Research strategies include documenting the amount, type, organization and objectives of provision. Evidence for collaboration between school staff and therapists is explored, analysis is made of child characteristics associated with provision and criteria for decision-making documented through interviews with therapists. However, little conjunction exists between what therapists said guided their decision-making concerning provision and observed provision. For the children surveyed in this study it seems that that provision in amount of therapy is related to educational placement rather than individual needs.

A proposed framework for decision‐making for assistive communication technology support: many perspectives, but one common goal

Purpose – Some children with severe speech, language and communication needs (SLCN) can make use of assistive communication technology (ACT) to support and augment their speaking and writing. Different stakeholders may place emphasis on specific areas for ACT use, and this paper, therefore, proposes a framework for discussing and clarifying these varied expectations, using the ICF/ICF‐CY domains as a basis.Design/methodology/approach – The authors discuss how the goal of increased participation for children helps all involved to keep in mind that, despite varying focuses for the use of ACT, it is the move towards increased involvement in life situations that will best drive our joint decisions and target‐setting.Findings – Multi‐functional PC devices can support a range of communicative functions, including “chat”, curriculum support, play and leisure. Provision and use of ACT can, in consequence, have different focuses for different stakeholders (child, family, health and education staff), which can lead...