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The Bereavement Experience Following Home-Based Family Caregiving for Persons with Advanced Cancer

The purpose of this qualitative interpretive study was to explore the experience of bereavement following home-based family caregiving for persons with advanced cancer. The research question addressed by this research was: How do family caregivers of patients with advanced cancer perceive the effects of home-based caregiving on their bereavement? Fifteen caregivers were retrospectively interviewed twice after the death of their family member. Caregivers reported both positive (e.g., feelings of accomplishment, improved family relationships) and negative (e.g., haunting images, feelings of failure) outcomes that they attributed to having cared for their family member. Overall, positive outcomes predominated and bereaved family members reported satisfaction with having provided care for their loved one who had died.

Family Caregivers and Transition to Long-Term Care:

This study’s purpose was to explore family caregivers’ experiences while they waited placement of family members with dementia in long-term care and how they coped during this period of waiting and transition. In this exploratory descriptive qualitative study, interviews were conducted with 29 caregivers at entry to the placement wait-list and at 3 to 4-month intervals thereafter. Final interviews, with 15 caregivers, were conducted shortly after admission to long-term care. When “the waiting begins,” the themes of crisis as initiator, synchronicity, control, and reciprocity emerged. “After placement” included the themes of deeply bonded relationships, attempting continuity, and sorting out the change. The findings provide new insight into family caregiver experiences during and after placement of a family member with dementia in long-term care. Clinicians must recognize that wherever services are provided, at home before placement or in institutions after placement, family caregivers must be incorporated as full partners in care.

Urinary incontinence and quality of life in children

OBJECTIVE Urinary incontinence (UI) negatively affects childrens quality of life (QOL). It is not known if parents are reliable informants on impact and QOL nor if lower urinary tract symptoms (LUTS) are related to QOL. We wished to determine the association between LUTS measured by the Dysfunctional Voiding Symptom Score (DVSS) and QOL measured by the Pediatric Urinary Incontinence QOL tool (PIN-Q), and to test the relationship between parent and patients responses. SUBJECTS AND METHOD Forty children (10 males, 30 females), aged 5-11 years with non-neurogenic daytime wetting, and their parents completed DVSS and PIN-Q as well as responding to open-ended questions about the effect of incontinence. RESULTS Child DVSS: mean 12.6 (3 (very mild) to 21 (severe)); parent DVSS: mean 12.8 (3-20). Child PIN-Q: mean 37.6 (8 (no effect) to 70 (severe effect)); parent PIN-Q: mean 38.7 (15-61). Parents indicated a major effect of UI on family function and dynamics, as well as on the child. CONCLUSIONS UI has a major effect on the child and the family. The PIN-Q and DVSS are complementary and provide a clinically appropriate picture of LUTS and impact on QOL. Parents understood the effect of incontinence and could act as proxy for the child.

The influence of the cardiac surgery patient's sex and age on care-giving received

Care-giving research has predominantly focused on the care-givers of those with long-term illness and the elderly. Little attention has been given to examining care-giving from the perspective of the person receiving the care, differentiating how the sex or age of the person may influence the care received, or examining care-giving in the context of shorter term situations where the patient is expected to recover. The purpose of this study was to examine the characteristics of the informal care-givers of cardiac surgery patients from three hospitals in one Canadian province and the effect of patient characteristics (sex, age) on their experience of receiving that care. A prospective, non-randomized design, was used to examine the short-term recovery from cardiac surgery of 120 subjects (60 men, 60 women). Patients were interviewed preoperatively and then at monthly intervals through the third postoperative month. The findings from this study suggest that the patterns of informal care-giving noted in the chronic care literature are also present in the short-term care of post-surgical cardiac patients. The burden of care-giving continues to rest predominantly on women. Female patients relied on their spouses for help less frequently than did male patients and their care-givers were more frequently employed outside the home and in lower status jobs than were the care-givers of male patients. 30% of care-givers were reported to have a health problem of their own to manage while caring for the recovering patient. Patients who were male or who were < 65 years of age had higher social support scores than did patients who were female or who were > or = 65 years of age. These findings suggest that the cardiac patients sex affects the availability of home-based care. In addition, care-givers may themselves be patients in need of care. Further research is needed to examine the receipt of home-based care-giving, particularly for female patients.

An undergraduate nursing course in palliative care

Abstract An undergraduate nursing course in palliative care was initiated in 1977 after a major curriculum revision. The course runs over two academic terms and involves students in giving direct care to patients and families. The process by which the course was developed and implemented is outlined. Some teaching strategies found to be effective are described, as are critical incidents that occurred during the teaching process. A longitudinal evaluation of the program is underway through a funded research project. The death anxiety and attitudes to care of the dying patient among students receiving the course are being measured before and after the course, as well as one year after graduation. Three nonequivalent control groups, including another group of university nursing students and a group of diploma nursing students, are receiving the same measurements. This evluation will provide comparative data to determine the effectiveness of various educational approaches in preparing nurses to care for the d...