Lynne D. Roberts

Family functioning in families with a child with Down syndrome: a mixed methods approach

BACKGROUND This study aimed to explore the factors that predict functioning in families with a child with Down syndrome using a mixed methods design. The quantitative component examined the effect of maladaptive and autism-spectrum behaviours on the functioning of the family while the qualitative component explored the impact of having a child with Down syndrome on family holidays, family activities and general family functioning. METHODS Participants in this study were 224 primary caregivers of children with Down syndrome aged 4-25 years (57.1% male; 42.9% female) currently residing in Western Australia (74.0% in metropolitan Perth and 26.0% in rural Western Australia). RESULTS Maladaptive and autism-spectrum behaviour were associated with poorer family functioning. Mean total scores on the measures of family functioning and marital adjustment were comparable to that of families of typically developing children. Consistent with the quantitative findings, normality was the most common theme to emerge in the qualitative data. Child problem behaviours were also identified by parents/carers as having a negative impact on the family. CONCLUSIONS This study has implications for the development of programs to support families with a child with Down syndrome and may dispel some of the myths surrounding the impact of intellectual disability on the family.

Comparing In-Person to Videoconference-Based Cognitive Behavioral Therapy for Mood and Anxiety Disorders: Randomized Controlled Trial

Background Cognitive-behavioral therapy (CBT) has demonstrated efficacy and effectiveness for treating mood and anxiety disorders. Dissemination of CBT via videoconference may help improve access to treatment. Objective The present study aimed to compare the effectiveness of CBT administered via videoconference to in-person therapy for a mixed diagnostic cohort. Methods A total of 26 primarily Caucasian clients (mean age 30 years, SD 11) who had a primary Diagnostic and Statistical Manual of Mental Disorders, 4th edition text revision (DSM-IV-TR) diagnosis of a mood or anxiety disorder were randomly assigned to receive 12 sessions of CBT either in-person or via videoconference. Treatment involved individualized CBT formulations specific to the presenting diagnosis; all sessions were provided by the same therapist. Participants were recruited through a university clinic. Symptoms of depression, anxiety, stress, and quality of life were assessed using questionnaires before, after, and 6 weeks following treatment. Secondary outcomes at posttreatment included working alliance and client satisfaction. Results Retention was similar across treatment conditions; there was one more client in the videoconferencing condition at posttreatment and at follow-up. Statistical analysis using multilevel mixed effects linear regression indicated a significant reduction in client symptoms across time for symptoms of depression (P<.001, d=1.41), anxiety (P<.001, d=1.14), stress (P<.001, d=1.81), and quality of life (P<.001, d=1.17). There were no significant differences between treatment conditions regarding symptoms of depression (P=.165, d=0.37), anxiety (P=.41, d=0.22), stress (P=.15, d=0.38), or quality of life (P=.62, d=0.13). There were no significant differences in client rating of the working alliance (P=.53, one-tailed, d=–0.26), therapist ratings of the working alliance (P=.60, one-tailed, d=0.23), or client ratings of satisfaction (P=.77, one-tailed, d=–0.12). Fisher’s Exact P was not significant regarding differences in reliable change from pre- to posttreatment or from pretreatment to follow-up for symptoms of depression (P=.41, P=.26), anxiety (P=.60, P=.99), or quality of life (P=.65, P=.99) but was significant for symptoms of stress in favor of the videoconferencing condition (P=.03, P=.035). Difference between conditions regarding clinically significant change was also not observed from pre- to posttreatment or from pretreatment to follow-up for symptoms of depression (P=.67, P=.30), anxiety (P=.99, P=.99), stress (P=.19, P=.13), or quality of life (P=.99, P=.62). Conclusions The findings of this controlled trial indicate that CBT was effective in significantly reducing symptoms of depression, anxiety, and stress and increasing quality of life in both in-person and videoconferencing conditions, with no significant differences being observed between the two. Trial Registration Australian New Zealand Clinical Trials Registry ID: ACTRN12609000819224; http://www.anzctr.org.au/ACTRN12609000819224.aspx (Archived by WebCite at http://www.webcitation.org/6Kz5iBMiV).

Ethical Issues in Conducting Qualitative Research in Online Communities

Increasingly, psychologists are extending their research to include online methods of data collection. Psychologists’ use of qualitative data obtained or generated online for research purposes poses unique challenges because of the “traceability” of quotes, often sensitive content of data and potential impact on both individuals and online communities. In this article, working within a framework that goes beyond “procedural ethics” to examine “ethics in practice,” ethical issues associated with conducting qualitative research within online communities are identified. These include tensions over public/private space, authorship versus human research participants, informed consent, anonymity and pseudonymity, covert research, deceptive research identities, reactions to being researched, and the quality of data obtained. Prior to conducting qualitative research in online communities, researchers have an ethical obligation to identify and weigh possible risks and benefits to both the community and community members. Sensitivity to the specific online community and continued ethical consideration throughout the conduct and reporting of the research are required.

Human figure drawings and house tree person drawings as indicators of self-esteem: A quantitative approach

This study assessed the concurrent validity of Human Figure Drawings (HFD) and House-Tree-Person (HTP) drawings as measures of self-esteem. Adult subjects were requested to make HFD and HTP drawings and to complete measures of psychological adjustment which included the Coopersmith Self Esteem Inventory and Tennessee Self Concept Scale. The drawings were scored using a quantitative, composite rating scale derived from HFD and HTP empirical and theoretical literature on psychological health. Results indicated that neither the HFD nor the HTP quantitative composite ratings of psychological health related to the formal measures of self-esteem.

Fear of Cyber-Identity Theft and Related Fraudulent Activity

Identity theft and related fraudulent activities affect approximately one in twenty-five adults each year across western societies. The Internet provides a new avenue for obtaining identity tokens and identifying information and increases the scale on which identity theft can be perpetrated. Recent research has suggested that fear of these types of crimes now matches or exceeds the fear of traditional place-based crimes, and has the potential to curtail online activities and hinder the further development of e-commerce applications. In this article, we conduct exploratory research identifying predictors of fear of cyber-identity theft and related fraudulent activities, based on the analysis of items included in the Australian Survey of Social Attitudes (2007). Fear was predicted by a generalized fear of crime component and a specific Internet exposure component. Traditional predictors of fear of crime were insignificant or weak predictors, highlighting the need for further research.

A matter of judgement: The effect of information and deliberation on public attitudes to punishment

The idea of reducing public punitiveness through providing information and encouraging deliberation has attracted considerable interest. However, there remains no solid evidence of durable changes in attitude. The study presented here provides a test of the hypothesis that information combined with deliberation can affect general measures of punitiveness, confidence in the courts and acceptance of alternatives to imprisonment (the three dependent variables). The study involved a pre-test, post-test experimental design. Participants were randomly allocated to either an intervention group or a control condition. Statistically significant changes in the dependent variables were observed immediately following the intervention but these changes were not sustained when measured at follow-up nine months later. Further, at the time of the follow-up the differences between the control group scores and the intervention group scores were not significantly different. The observed changes immediately following the intervention are seen to be a function of the changed relationship of the respondent to the task. The implications of the results for integrating public perspectives into policy are discussed. It is argued that rather than a focus on public education, a more productive direction is to focus on the way the public is engaged on matters concerning punishment.

Validation of the Organizational Culture Assessment Instrument

Organizational culture is a commonly studied area in industrial/organizational psychology due to its important role in workplace behaviour, cognitions, and outcomes. Jung et al.s [1] review of the psychometric properties of organizational culture measurement instruments noted many instruments have limited validation data despite frequent use in both theoretical and applied situations. The Organizational Culture Assessment Instrument (OCAI) has had conflicting data regarding its psychometric properties, particularly regarding its factor structure. Our study examined the factor structure and criterion validity of the OCAI using robust analysis methods on data gathered from 328 (females = 226, males = 102) Australian employees. Confirmatory factor analysis supported a four factor structure of the OCAI for both ideal and current organizational culture perspectives. Current organizational culture data demonstrated expected reciprocally-opposed relationships between three of the four OCAI factors and the outcome variable of job satisfaction but ideal culture data did not, thus indicating possible weak criterion validity when the OCAI is used to assess ideal culture. Based on the mixed evidence regarding the measures properties, further examination of the factor structure and broad validity of the measure is encouraged.

The use of photovoice with people with intellectual disabilities: reflections, challenges and opportunities

Photovoice is part of the growing use of participatory research approaches with people with intellectual disabilities. In this paper we explore the process, opportunities and challenges associated with the use of photovoice with people with intellectual disabilities, illustrated through a research project entitled ‘This Is Me’. Photovoice requires researchers to share power and control in the research process and to tolerate uncertainty. Large investments in time and money are also required. These challenges, however, are outweighed by the benefits of the use of photovoice with people with intellectual disabilities. Photovoice creates a space where people with intellectual disabilities can meaningfully participate and exert control in the research process, and as such is an empowering experience. As a participatory research approach, photovoice is accessible and offers the opportunity for people with intellectual disabilities to develop new skills, confidence and experience inclusiveness in their own terms.

The Elaborated Environmental Stress Hypothesis as a Framework for Understanding the Association Between Motor Skills and Internalizing Problems: A Mini-Review

Poor motor skills have been shown to be associated with a range of psychosocial issues, including internalizing problems (anxiety and depression). While well-documented empirically, our understanding of why this relationship occurs remains theoretically underdeveloped. The Elaborated Environmental Stress Hypothesis by Cairney et al. (2013) provides a promising framework that seeks to explain the association between motor skills and internalizing problems, specifically in children with developmental coordination disorder (DCD). The framework posits that poor motor skills predispose the development of internalizing problems via interactions with intermediary environmental stressors. At the time the model was proposed, limited direct evidence was available to support or refute the framework. Several studies and developments related to the framework have since been published. This mini-review seeks to provide an up-to-date overview of recent developments related to the Elaborated Environmental Stress Hypothesis. We briefly discuss the past research that led to its development, before moving to studies that have investigated the framework since it was proposed. While originally developed within the context of DCD in childhood, recent developments have found support for the model in community samples. Through the reviewed literature, this article provides support for the Elaborated Environmental Stress Hypothesis as a promising theoretical framework that explains the psychosocial correlates across the broader spectrum of motor ability. However, given its recent conceptualization, ongoing evaluation of the Elaborated Environmental Stress Hypothesis is recommended.

The Ethics of Outsourcing Online Survey Research

The increasing level of Internet penetration over the last decade has made web surveying a viable option for data collection in academic research. Software tools and services have been developed to facilitate the development and deployment of web surveys. Many academics and research students are outsourcing the design and/or hosting of their web surveys to external service providers, yet ethical issues associated with this use have received limited attention in academic literature. In this article, the authors focus on specific ethical concerns associated with the outsourcing of web surveys with particular reference to external commercial web survey service providers. These include threats to confidentiality and anonymity, the potential for loss of control over decisions about research data, and the reduced credibility of research. Suggested guidelines for academic institutions and researchers in relation to outsourcing aspects of web-based survey research are provided.