Marília Silveira

Experiências brasileiras sobre participação de usuários e familiares na pesquisa em saúde mental

O objetivo deste artigo e analisar o Programa de Alimentacao Escolar sob a otica dos alunos atendidos na rede estadual de ensino de Minas Gerais. Trata-se de estudo transversal, quali-quantitativo, com amostra de 1500 alunos, representativa do universo da rede estadual de ensino de Minas Gerais, utilizando questionario semiestruturado analisado por meio de frequencia simples, media, desvio padrao, teste exato de Fisher, teste qui-quadrado e regressao logistica (p < 0,05; IC 95%). Houve efetiva aceitacao de 28,8% e efetiva adesao de 45,1% ao Programa. A aceitacao foi significativamente maior entre alunos do sexo masculino e entre aqueles que apresentaram menor consumo de alimentos extrainstitucionais. A aceitacao e a adesao foram significativamente maiores entre alunos do grupo etario mais velho e entre aqueles que referiram participar de atividades de Educacao Alimentar e Nutricional. No total, 73,5% dos alunos sugeriram melhorias para a Alimentacao Escolar. Muitos principios e diretrizes do programa nao estao sendo cumpridos. A aceitacao da Alimentacao Escolar mostrou-se negativamente influenciada pelo consumo de alimentos extrainstitucionais e positivamente influenciada pelas acoes de Educacao Alimentar e Nutricional.In this paper the authors describe and contextualize the participation of users and family members in mental health research in Brazil, addressing the recent tradition of the experiences of recovery and empowerment to define the analysis of some Brazilian experiences of evaluative research and intervention projects, which count on these social actors to act as researchers. The experiences of Self-Help Groups and the Guide to Autonomous Medication Management are described briefly, in order to analyze the limits and possibilities of participation of users and their family members in research, which is still incipient and sporadic in the Brazilian reality. The authors also recommend the creation of an agenda in public health policy that encourages this participation.In this paper the authors describe and contextualize the participation of users and family members in mental health research in Brazil, addressing the recent tradition of the experiences of recovery and empowerment to define the analysis of some Brazilian experiences of evaluative research and intervention projects, which count on these social actors to act as researchers. The experiences of Self-Help Groups and the Guide to Autonomous Medication Management are described briefly, in order to analyze the limits and possibilities of participation of users and their family members in research, which is still incipient and sporadic in the Brazilian reality. The authors also recommend the creation of an agenda in public health policy that encourages this participation.

Relações entre pesquisa e clínica em estudos em cogestão com usuários de saúde mental

This paper is derived from the experience of conducting research with mental health users (not about them, nor for them), analyzing aspects of a study in which different ways of structuring the relationship between clinical practice and research were put into play, thereby questioning the boundaries and ethical issues involved. The clinical practice and research fields that are dealt with are studied with the input of authors who, on the basis of institutional analysis, propose the idea of interventional research, and in the context of public health, revert to the concept of broadened clinical care. The relationship between these two terms - interventional research and broadened clinical care - is based on the notion of subjectivity that operates within the scope of public health and which culminates in the concept of autonomy. Lastly, co-management is proposed as a strategy based on which the different actors involved in conducting research and exercising clinical care can collectively build working principles that are both therapeutic and ethical.