Melissa Clements

Family experiences associated with a child's diagnosis of fragile X or down syndrome: Evidence for disruption and resilience

Although previous findings have shown that parents react intensely to the initial diagnosis of their childs disability, studies focused on long-term outcomes and adjustment are needed. We interviewed 21 mothers whose adolescent or young adult was diagnosed with Down syndrome or fragile X syndrome. Qualitative analysis of data focused on the diagnostic process and the childs development revealed emergent themes: importance of context, variations in emotional reactions to the diagnosis, use of specific coping strategies, and changes in family adaptation over time. Results indicate most families experienced elements of disruption and resilience in their reactions to the diagnosis, although different patterns emerged for each syndrome group. Maternal descriptions highlighted positive attributes that contributed to family well-being and behavioral challenges that were a source of family stress.

Response to Intervention: Conceptual and Methodological Issues in Implementation

Thomas R. Kratochwill, PhD, is Sears–Bascom Professor, School Psychology Program, University of Wisconsin–Madison. tomkat@education.wisc.edu Melissa A. Clements, PhD, is a Research Scientist at the Wisconsin Center for Educational Research, University of Wisconsin–Madison. maclements@wisc.edu Kristen M. Kalymon, MS, is a graduate student in the School Psychology Program, University of Wisconsin–Madison. kmkalymon@wisc.edu