Meredith Stensland

Barriers Associated with the Implementation of an Advance Care Planning Program in a Prison Setting

Advance care planning is considered a best practice within health care. However, the extent to which planning occurs within prison settings is unknown. Through the course of implementing an advance care planning (ACP) program for aging and dying offenders at a medical classification center, multiple barriers were identified that need to be addressed systemically to ensure the medical wishes of offenders were known and honored. This article will outline the barriers and the steps that were taken to create systems change to promote and sustain advance care planning.

End-of-life care as a field of practice in the social work curriculum.

Attention to end-of-life care in social work education and practice is growing. With funding from the Project on Death in America, in 2001, the University of Iowa, School of Social Work developed and implemented an End-of-Life Field of Practice. Unlike a concentration, a Field of Practice is a set of integrated courses focused on one specific area of focus. This article describes the Field of Practice, the community-based partnerships, and the curriculum that serves as a basis for training the students enrolled in this area. Strategies for other social work programs interested in developing a similar Field of Practice or specialty area in their MSW curricula are provided. These include faculty committed to the content area, comprehensive course offerings to encompass all aspects of end-of-life care, and field sites willing to help train students.

Living a Life Full of Pain: Older Pain Clinic Patients’ Experience of Living With Chronic Low Back Pain:

Chronic low back pain (CLBP) is older adults’ most common pain complaint and is associated with many physical and psychosocial consequences, which have been quantitatively examined. However, little research has qualitatively examined the experience itself of CLBP in later life. Study objective was to understand older adults’ lived CLBP experience. Guided by van Manen’s phenomenological method, 21 pain clinic patients aged 66 to 83 completed semistructured interviews. Under the main theme “living a life full of pain,” results are reflected in four existential subthemes: (a) Corporeality: The pain is relentless and constantly monitored, (b) Temporality: To live with pain is to live by pacing day and night, (c) Relationality: Pain creates limits that can be tested or obeyed, and (d) Spatiality: Manipulating the space around me to accommodate the pain. Findings improve understanding of the patient experience of late life CLBP and highlights the importance of empathy and patient-centeredness when treating older adults.

Detained and Dying: Ethical Issues Surrounding End-of-Life Care in Prison

ABSTRACT Prisons are increasingly being called upon to provide end-of-life (EOL) care within the restrictive correctional environment. Several relatively recent phenomena have brought medical ethics to the forefront of prison EOL care—including aging behind bars, a paradigm shift in prison culture, the increasing rate of in-prison deaths, and the corresponding prison hospice movement. This article examines prominent ethical issues that emerge for prison personnel who are tasked with providing care to terminally ill offenders by presenting three offender composite characters that exemplify dying offenders and emergent ethical issues surrounding their care. Identification and critical analysis of these ethical issues demonstrate the need for strong commitment to ethical practice and highlights specific issues for prisons to examine in their own EOL care practice.

“It has changed my whole life”: The systemic implications of chronic low back pain among older adults

ABSTRACT Chronic low back pain (CLBP) is the most common pain complaint among older adults. Despite its prevalence, very little research has qualitatively examined the diverse consequences of living with CLBP in later life. As part of a larger study aiming to understand the experience of CLBP among older adults, the objective of this manuscript is to understand how older adults experience CLBP and its impacts on the functioning of older adults. Guided by van Manen’s phenomenological method, 23 semi-structured interviews with 21 pain clinic patients aged 66–83 were conducted. Through an iterative process assisted by NVivo 11 software, researchers used line-by-line thematic coding to identify main impacts of CLBP. Under the main theme “It has changed my whole life,” results are reflected in six subthemes: (a) Pain damages sense of self; (b) trapped in a body that doesn’t work anymore; (c) me, my partner, and my pain; (d) pain complicates family relationships; (e) painfully employed; and (f) feeling socially and recreationally repressed. This study improves our understanding of older pain clinic patients’ experience of living with debilitating CLBP and offers direction for social work intervention in the context of multidisciplinary pain management.

Preparing to Die Behind Bars: The Journey of Male Inmates With Terminal Health Conditions

The prison population is graying as more individuals are receiving longer sentences without opportunities for parole or release for health-related reasons. While research has expanded on end-of-life care in and out of prison settings, to date there has been little research conducted on how inmates experience dying behind bars. Through collecting data during observation of facilitated advance care planning sessions, this qualitative study revealed four main themes: (1) losing a piece of everything, (2) not sure what to feel, (3) where will I die, and (4) finding purpose in the midst of purposelessness. These themes characterize the central issues discussed by inmates as they considered death behind bars. As we seek to improve health care in prison settings, this study provides insight into how inmates view their dying process.

Agency behind bars: Advance care planning with aging and dying offenders

ABSTRACT Aging and terminally ill individuals in U.S. prisons are increasing, making critical the need for appropriate end-of-life (EOL) care and advance care planning (ACP). Applying Bandura’s agentic perspective, the authors examined 20 aging/dying offenders’ EOL preferences and ACP. Findings include 6 themes: decisions in the shadow of the past, what works best for me, feeling blessed, what is really going on, can anyone be trusted, and turning agency over to someone else. This study provides critical information that will assist professionals who work with dying offenders, as it presents a vivid illustration of their dying process.

Burnout Among Iowa Hospice Workers: A Test of the Job Demands-Resources Model

ABSTRACT Burnout is a critical problem for hospice care system, particularly given the potential increase in hospice utilization because of the increasing older adult population. Hospice care requires social workers and other professionals to work in interdisciplinary settings under conditions of prolonged stress. Guided by the Job Demands-Resources (JDR) model, this study sought to: (1) understand Iowa hospice workers’ level of burnout, indicated by emotional exhaustion (EE); (2) identify organizational and personal determinants of EE. This web-based study used a cross-sectional survey administered to hospice staff across Iowa. Seventeen hospice organizations participated as study sites, and 244 out of 825 employees, consisting of interdisciplinary clinical workers and administrative personnel, completed the survey. Descriptive, correlational, and regression statistics were used to test study hypotheses. Regarding EE levels, 59% of participants were experiencing low EE, while the other 41% had moderate or high EE. Those lacking empathy, working full-time, and working for larger hospice organizations had greater EE. While findings largely support the JDR model, interactions between demands and resources offer only partial support. Results indicate the importance of hospices fostering supportive work environments and providing employee education about emotional benefits of respect, strategies for displaying workplace respect, and evaluation of respect-related initiatives.

A systematic review of correlates of depression among older Chinese and Korean immigrants: what we know and do not know

ABSTRACT Objectives: Guided by the stress and coping theory, this study provides a systematic review of existing research on acculutration, family support, and social support related correlates of depression among older Chinese and Korean immigrants in the United States. Method: A comprehensive literature search was conducted in CINAHL Plus, Abstracts in Social Gerontology, AgeLine, Social Work Abstracts, PubMed, PsychINFO, and Social Science Citation Index databases to identify relevant articles that presented multivariate analysis results. Results: A total of 55 articles were identified, with the vast majority focusing on older Korean immigrants. The overall evidence showed that length of residence was largely unrelated to depression, and poor Enligsh proficiency also had a weak correlation with depression. However, a low level of acculturation measured by multidimensional scales was consistently associated with more depressive symptoms. Overall, living arrangements and the size and frequency of contact of both kin and non-kin networks were weak correlates of depression. In contrast, negative family and social interactions seem to be more consequential for depression in the two groups than positive relations and support. Conclusion: The findings show that established acculturation instruments are useful tools to identify at-risk older Chinese and Korean immigrants. Future studies need to further examine which aspects of acculturation experience are more influential for immigrants’ mental health. Although often conceptualized as important coping resources, family and social networks could present significant stressors for older immigrants. Future research and services could focus on these contexts to improve the mental health of these two rapidly increasing Asian populations.