Mohamed Ben Saïd

SIMS@REIN : un système d’information multi-sources pour l’insuffisance rénale terminale

In France, the prevalence of End-Stage Renal Disease (ESRD) is not precisely known. The sources of information are scattered and not coordinated. Consequently, care is ill adapted to meet the demand. The Multi-Source Information System is the basis of the Renal Epidemiology and Information Network (REIN). It is dedicated to improve and organise our medical and epidemiological knowledge of ESRD and to aid public health decision-making in this area. The proposed approach is based on the datawarehouses. This model allows a unified vision of scattered data into distinct databases, for a better management, be it particular (patient follow-up) or global (regional follow-up), with a finality of aid in decision-making. Several categories of problems were considered: the global conception of the information system, the organisation of the datawarehouse, which offers different viewpoints of the data, the integration of heterogeneous data coming from different sources, data exchange and definition of a specific ontology.

GENNERE: A Generic Epidemiological Network for Nephrology and Rheumatology

GENNERE is a networked information system designed to answer epidemiological needs. Based on a French experiment in the field of End-Stage Renal Diseases (ESRD), it has been thought of so as to be adapted to Chinese medical needs and administrative rules. It has been implemented for nephrology and rheumatology at the Rui Jin hospital in Shanghai, but its design and implementation have been guided by genericity in order to make easier its adaptation and extension to other diseases and other countries. The genericity aspects have been considered at the levels of events design, database design and production, and software design. This first experiment in China leads to some conclusions about the adaptability of the system to several diseases and the multilinguality of the interface and in medical terminologies.