Neil S. Coulson

Exploring the communication of social support within virtual communities: a content analysis of messages posted to an online HIV/AIDS support group.

The present study examined the nature of social support exchanged within an online HIV/AIDS support group. Content analysis was conducted with reference to five types of social support (information support, tangible assistance, esteem support, network support, and emotional support) on 85 threads (1,138 messages). Our analysis revealed that many of the messages offered informational and emotional support, followed by esteem support and network support, with tangible assistance the least frequently offered. Results suggest that this online support group is a popular forum through which individuals living with HIV/AIDS can offer social support. Our findings have implications for health care professionals who support individuals living with HIV/AIDS.

Empowering processes in online support groups among people living with HIV/AIDS: A comparative analysis of 'lurkers' and 'posters'

The proliferation of online support groups provides an opportunity for individuals living with HIV/AIDS to obtain support online. The present study aimed to explore how different levels of participation in online support groups are associated with empowering processes and outcomes for individuals living with HIV/AIDS. A total of 340 individuals living with HIV/AIDS were recruited. They completed an online questionnaire consisting of measures on satisfaction with online support groups, empowering processes, self-care self efficacy, loneliness, optimism, coping, depression, and health-related quality of life. Results revealed that compared to posters, members who only read the messages (lurkers) scored lower in receiving social support and receiving useful information in empowering processes, and lower in satisfaction with their relationship with group members. They also scored higher in distraction and lower in planning in the brief COPE. In addition, they scored lower in social function and higher in energy. There were no significant differences in self-care self efficacy, loneliness, depression, or optimism between posters and lurkers. Our results suggest that lurking in the online support groups may be as empowering as reading and posting messages to the groups. More research is needed to identify the long term effects of online support group use.

Coping with Food Allergy: Exploring the Role of the Online Support Group

The aims of this study were to explore the reasons for participation in an online support group for individuals affected by food allergy, its perceived advantages and disadvantages as well as impact on the relationship with healthcare providers. A total of 32 members of the Food Allergy Survivors Together (F.A.S.T.) online support group completed an online structured interview and responses were analysed using thematic analysis. Group members identified a range of benefits, including accessibility, receipt of social support as well as guidance on coping strategies. The only disadvantages identified revolved around the accuracy and trust in information exchanged via the group bulletin board. Group participation did appear to impact on relationships with healthcare providers with several members reporting greater empowerment through decision-making, though in contrast some experienced difficulties in discussing their online support experiences and information obtained with their healthcare providers.

Gender differences in computer-mediated communication: a systematic literature review of online health-related support groups.

OBJECTIVE Previous research has contended that the unique characteristics of the Internet might remove some of the gender differences that exist in face-to-face healthcare. The aims of the present study were to systematically review studies that have examined gender differences in communication within online health communities. METHODS A literature search was conducted to identify studies addressing gender differences in messages posted to online health-related support groups. Out of the 1186 articles identified, twelve were retrieved for review. RESULTS Half of the studies examined gender differences by comparing male and female cancer discussion boards. The literature review revealed that some gender differences were observed in these studies. However, for studies that analysed mixed-gender communities, gender differences were less evident. CONCLUSION Results seemed to reveal gender differences in communications in single-sex online health support groups, and similarities in communication patterns in mixed-sex online health support groups. However, findings should be treated with caution due to the diversity in studies and methodological issues highlighted in the present review. PRACTICE IMPLICATIONS There is a need for health care professionals to take into account a range of situational and contextual factors that may affect how men and women use online health support groups. However, more robust research is needed before concrete guidelines can be developed to help health care professionals develop effective online support interventions.

An application of the stages of change model to consumer use of food labels

Describes a study which applied the stages of change model formulated by Prochaska and DiClemente to consumer use of food labels. A total of 165 students completed a self‐report questionnaire measuring stages of change, decisional balance, dietary behaviour and food choice motivations. The percentage of participants classified into each stage was as follows: precontemplation 30.0, contemplation 4.5, action 16.4 and maintenance 49.1. Significant associations with stage of change and decisional balance were observed. In addition, consumption of fruit and fatty foods was associated with stage of change as was a range of motivational factors in food choice.

Coping with infertility online: An examination of self-help mechanisms in an online infertility support group

OBJECTIVE To examine communication within an online infertility support group. METHODS A content analysis of 3500 messages posted to infertility bulletin boards. RESULTS The most frequently used self-help mechanisms were support or empathy (45.5%) and sharing personal experiences (45.4%), followed by the provision of information and advice (15.9%), gratitude (12.5%), friendship (9.9%), chit-chat (9.4%), requests for information or advice (6.8%) and universality (4.8%), with negative statements (0.3%) and creative expressions (0.2%) being the least frequent categories. CONCLUSION These findings suggest that online support groups can provide a viable alternative source of support for couples dealing with infertility. PRACTICE IMPLICATIONS Health care professionals interested in developing online support interventions should look to tailor support resources to the specific needs of patients at different stages of the infertility journey.

A thematic analysis of patient communication in Parkinson's disease online support group discussion forums

Online support groups have become a popular source of information, advice and support for individuals living with a range of health conditions. However, research has not commonly focused on patients living with Parkinsons disease and their use of online support groups. Thus, the aim of this study was to gain an insight into the positive and negative aspects of online communication through an analysis of messages exchanged within Parkinsons disease discussion forums. Data was collected from four forums and analysed using data-driven thematic analysis. The results revealed that participation in the forums allowed patients to share experiences and knowledge, form friendships, as well as helping them cope with the challenges of living with Parkinsons disease. Conversely, a lack of replies, the experience of Parkinsons disease symptoms, a lack of personal information, fragility of online relationships, misunderstandings and disagreements, all appeared to compromise the online experience. Practical implications and future research recommendations are proposed.

Developing a model for online support group use, empowering processes and psychosocial outcomes for individuals living with HIV/AIDS

This study examined the mechanism through which online support group (OSG) participation may promote patient empowerment among 340 individuals living with HIV/AIDS. Results from structural equation modelling revealed that greater use of OSGs was associated with more frequent occurrence of the empowering processes as measured by receiving useful information, receiving social support, finding positive meaning and helping others. Receiving useful information and finding positive meaning were related to higher levels of adaptive coping and lower levels of maladaptive coping, while receiving social support and helping others were related to higher levels of self-care self-efficacy, which in turn was related to higher levels of adaptive coping, and lower levels of maladaptive coping. Finally, higher levels of maladaptive coping were related to poorer quality of life, while higher levels of adaptive coping were related to better quality of life. Results suggest that OSG participation may offer some benefits for those living with HIV/AIDS.

Living with HIV/AIDS and use of online support groups.

The present study explores the association between online support group use and health status, coping and social support among 640 individuals with HIV/AIDS. Results suggested that frequent users tended to be female, younger, single, and in a more advanced disease stage. After controlling for covariates, frequent users reported poorer health than non-users. In addition, both frequent and infrequent users scored higher in planning, active coping, instrumental support and emotional support coping from the brief COPE. No significant difference was found for social support. Our results suggest that online support groups may potentially offer some benefits for those living with HIV/AIDS.

Families affected by childhood cancer: an analysis of the provision of social support within online support groups

BACKGROUND With increasing access to the Internet, there are new opportunities available to families to seek information, advice and support about childhood cancer online. METHODS A total of 487 messages were retrieved from three childhood cancer online support groups and were analysed using deductive thematic analysis for the presence of support-intended communication using Cutrona and Suhrs social support typology. In addition, the messages were examined for negative experiences or disadvantages. RESULTS The results revealed the presence of five types of social support: emotional, informational, esteem support and tangible assistance. In addition, some potential limitations of online support were identified, including a lack of responses and difficulties in maintaining relationships outside the online group context. CONCLUSION This study suggests that online support groups may offer the potential to support family members of children with cancer. In particular, it may be a useful resource for those seeking emotional and information support. However, there may be limitations associated with the use of online support groups.