Ozlem Ugur

Responsibilities and Difficulties of Caregivers of Cancer Patients in Home Care

BACKGROUND From having been known as a virulent disease in 1970s, cancer is now considered a chronic disease and about two thirds of cancer patients live for five years after diagnosis. Home care has gradually gained more importance and it is a great burden on the shoulders of caregivers. Caregivers have to undertake the responsibility of the cancer patients home management, and organize care and arrange health care services according to the ever-changing condition of patients. Caregivers should be prepared for home care so they can provide accurate and complete care. This descriptive study aimed to investigate challenges that caregivers encounter in the home care of patients and the reasons for these challenges. MATERIALS AND METHODS The research group consisted of caregivers of outpatients in a daily treatment center in a university hospital. The research sample consisted of 137 voluntary caregivers of patients who attended the Daily Treatment Center for control, chemotherapy or other supportive cares services between January-June, 2011. Data were collected with face-to-face interviews in the Daily Treatment Center. Ethics Committee approval was taken from the university hospital; caregivers and their patients were informed about the research and their approval was obtained as well. RESULTS It was found that 54.0% of caregivers helped with patients nutrition, 50.4% with medicine use, 26.3% with oral hygiene, 26.3% with meeting urinary needs and 51.8% with changing clothes. In addition, 69.3% of caregivers helped to change bed sheets, 38.7% assisted patients to communicate with their environment and 71.5% to bring the patient to hospital or outside. CONCLUSIONS In this study, it was found that Turkish caregivers experience challenges due to following factors: patient nutrition, medicine use, oral and body hygiene, colostomy maintenance and stomach tube feeding, concern of dropping the patient, feeling incompetence in body temperature and fever control, fatigue, and lack of personal time.

Symptom Frequency of Children with Cancer and Parent Quality of Life in Turkey

BACKGROUND This research was planned with the aim of determining the effect of symptom frequency of children with cancer on the quality of life of their parents. MATERIALS AND METHODS In gathering the research data, the Child and Parent Information Form, the Symptom Evaluation Form and the Family Version of Life Quality Scale in Cancer Patients were used. Evaluation was made by using percentage calculations, Kruskal Wallis test, Bonferroni adjusted t-test and Bonferroni adjusted Mann-Whitney U test. The significance level was accepted as 0.005. RESULTS Some 37.6% of the participant children were female and 62.4% were male, with an average age of 10.2 ± 4.5. While 41.0% were newly diagnosed, 46.2% were in remission and 12.8% was in relapse. Highly significant differences were detected according to the symptom frequency with parent physical and psychological health, social anxiety, and spiritual wellness sub-dimensions, as well as total point averages. CONCLUSIONS It is thought that following up the symptoms that might develop depending on cancer diagnosis and treatment and implementing nursing initiatives aimed at reducing the symptoms, knowing the importance of life quality, maintaining measures aimed at life quality and planning initiatives to increase the life quality will play a key role in maintaining and developing the health of Turkish paediatric oncology patients and their parents.

Sleep Quality in Lung Cancer Patients

BACKGROUND The aim of this study was to determine factors affecting sleep quality of 100 patients with advanced stage lung cancer. METHODS AND RESULTS it was a descriptive study. A variety of assessment tools were used to provide sleep scores to examine the relation between adverse effects caused by the treatment (nausea, vomiting, fatigue) and sleep quality. As a result, no statistically significant relation between coughing and respiratory problems of patients, or existing depression, and average sleep quality score was found (KW:0.872, p=0.646, KW: 3.174, p=0.205, u: 441.000 p=0.916). It was revealed that nausea and loss of appetite experienced also did not affect the sleep quality score (p>0.05), whereas problems such as vomiting and fatigue did exert effects (p<0.01). CONCLUSIONS Patients with advanced stage lung cancer suffer from sleep problems and cancer related symptoms also affect their sleep quality negatively. Nurses should plan interventions that can control symptoms such as pain, vomiting and fatigue, which affect the sleep of patients.

Complementary and Alternative Medicine Use Among People With Diabetes in Turkey

The aim of this study was to investigate use of complementary and alternative medicines, and factors that affect use of these agents, in individuals with diabetes. This cross-sectional and descriptive study was performed at the outpatient clinics of four hospitals in Turkey with 396 diabetic individuals between October 2006 and March 2007. In this study, 34.6% of the participants were using complementary and alternative medicine in addition to conventional medicine; 73% of these individuals had not informed their doctors and nurses about their complementary and alternative medicine practice. Nurses, as health care providers, should not ignore complementary and alternative medicine options. Instead, they should try to determine the rate of complementary and alternative medicine use among their patients and understand their effects and the reasons for use of these agents. Nurses should learn more about these medicines and educate their patients.

Developing a scale for the assessment of fatigue in pediatric oncology patients aged 7-12 for children and parents.

BACKGROUND This study was planned in an attempt to develop scales for the assessment of fatigue in pediatric oncology patients aged 7-12 as well as for their parents. MATERIALS AND METHODS In collecting the study data, we used the Child and Parent Information Form, Visual Fatigue Scale, Scale for the Assessment of Fatigue in Pediatric Oncology Patients Aged 7-12 and the Scale for the Assessment of Fatigue in Pediatric Oncology Patients Aged 7-12 for Parents. We also used Pearson correlation analysis, the Cronbach Alpha coefficient, Factor Analysis and ROC Analysis for the study data. RESULTS In this study, the total Cronbach alpha value of the parent form was 0.95, the total factor load was 0.52-0.95 and the total variance being explained was 85.7%. The cutoff point of the parent form was 82 points. The total Cronbach alpha value of the child form was 0.98, the total factor load was 0.71-0.94 and the total variance being explained was 84.7%. The cutoff point of the child form was 75 points. CONCLUSIONS This study suggests that our scales for the assessment of fatigue in pediatric oncology patients aged 7-12 and their parents are valid and reliable instruments.

Developing the Scale for Quality of Life in Pediatric Oncology Patients Aged 13–18: Adolescent Form and Parent Form

PURPOSE This study aimed to develop the Scale for Quality of Life in Pediatric Oncology Patients Aged 13-18: Adolescent Form and Parent Form. METHODS We used the child and parent information form, Visual Quality of Life Scale, and our own scale, the Scale for Quality of Life in Pediatric Oncology Patients Aged 13-18: Adolescent Form and Parent Form. We finalized the 35-item scale to determine the items, received opinions from 14 specialists on the scale, and pilot-tested the scale in 25 children and their parents. We used Pearson correlation analysis, Cronbach α coefficient, factor analysis and receiver operating characteristics analysis to analyze the data. RESULTS The total Cronbach α of the parent form was .97, the total factor load was .60-.97 and the total variance was 80.4%. The cutoff point of the parent form was 85.50. The total Cronbach α of the adolescent form was .98, the total factor load was .62-.96, and the total variance explained was 83.4%. The cutoff point of the adolescent form was 75.50. As a result of the parent form factor analysis, we determined the Kaiser-Meyer-Olkin coefficient as .83, the Barlett test χ(2) as 12,615.92; the factor coefficients of all items of the parent form ranged from .63 to .98. The factor coefficients of all items of the adolescent form ranged from .34 to .99. As a result of the adolescent form factor analysis, we determined the KMO as .79, and the Barlett test χ(2) as 13,970.62. CONCLUSIONS Conclusively, we found that the adolescent form and the parent form were valid and reliable in assessing the childrens quality of life.

Attitudes of Nurses in Turkey Toward Care of Dying Individual and the Associated Religious and Cultural Factors

The aim of this study was to determine the attitudes of nurses working in two university hospitals located in the west and east of Turkey toward care of dying individual as well as religious and cultural factors that influence their attitudes. The descriptive and comparative study was conducted with a total of 189 nurses who were working in adult inpatient clinics of two university hospitals in western (101 nurses) and eastern (88 nurses) Turkey between July and November 2016. The data were obtained by using the questionnaire and Frommelt Attitudes Toward Care of the Dying Scale. As a result of this study, it was determined that in terms of the status of receiving training the end-of-life care the majority of nurses received this training; however, this rate was higher (51.0%) in nurses working in the eastern hospital (p = 0.025). The nurses working in the east (51.6%) were determined to have more problems during caregiving due to their religious and cultural beliefs, the most frequent problem they experienced was “being uncomfortable due to privacy when giving care to patients from opposite gender” (57.1%). The emotions felt mostly by nurses during the care of dying patient were grief (nurses in the east = 48.5%, nurses in the west = 51.5%) and despair (nurses in the east = 40.4%, nurses in the west = 59.6%). Nurses working both in the east (98.27 ± 7.71) and in the west (97.19 ± 8.99) were determined to have positive attitude toward death, and there was no statistically significant difference between both groups in terms of the mean scores of the Attitudes Toward Care of the Dying Scale (p = 0.373). In accordance with these results, it is recommended to focus on death issues in end-of-life care during the nursing education and to support nurses with in-service trainings regularly after the graduation.

Reliability and Validity of the Turkish Version of the Caregiver Reaction Assessment Scale

ABSTRACT The scales need to be adapted for the society so that they can be used. This study aims to assess the reliability and validity of the Caregiver Reaction Assessment Scale. The phases of the testing of the scale included the translation and adaptation of the Preparedness for Caregiving Scale construct analysis by an expert group, and pre-test and psychometric evaluation (factor analysis, reliability coefficient and inter-item correlations). Pearson Correlation analysis of the results showed a significant positive relationship between test-retest scores of the scale (r= .775, p= .000; t=781, p= .439). Cronbach alpha coefficient was α=.88 and standardized α value was .89. The scale explains the fifty-six percent of total variance. The scales were found to be reliable and valid in Turkish population. These findings suggest that the Turkish version of the instrument is available for measuring specific aspects of the caregiving experience in the Turkish population.