Paul M. A. Baker

Journal reading habits of internists

We assessed the reading habits of internists with and without epidemiological training because such information may help guide medical journals as they make changes in how articles are edited and formatted. In a 1998 national self-administered mailed survey of 143 internists with fellowship training in epidemiology and study design and a random sample of 121 internists from the American Medical Association physician master file, we asked about the number of hours spent reading medical journals per week and the percentage of articles for which only the abstract is read. Respondents also were asked which of nine medical journals they subscribe to and read regularly. Of the 399 eligible participants, 264 returned surveys (response rate 66%). Respondents reported spending 4.4 hours per week reading medical journal articles and reported reading only the abstract for 63% of the articles; these findings were similar for internists with and without epidemiology training. Respondents admitted to a reliance on journal editors to provide rigorous and useful information, given the limited time available for critical reading. We conclude that internists, regardless of training in epidemiology, rely heavily on abstracts and prescreening of articles by editors.

Communities of participation: A comparison of disability and aging identified groups on Facebook and LinkedIn

Communication-oriented Internet technologies and activities such as social media sites and blogs, have become an important component of community and employment participation, not just in the specific function of activities, but as a link to larger communities of practice and professional connections. The occurrence of these activities, evident in their presence on Facebook, LinkedIn and other online communities, represents an important opportunity to reframe and re-conceptualize manifestation of communities especially those in which distributed networks and communities substitute for geographic proximity, offering new opportunities for engagement, especially those who might be functionally limited in terms of mobility. For people with disabilities, as well as the aging, increasingly interacting online, the readiness of social networking sites to accommodate their desire to participate in conjunction with their readiness as users to maximize the potential of platform interfaces and architecture, are critical to achieving the mediums potential for enhancing community and employment benefits. This essay explores representation/presence of disability and aging using as frames, Facebook and LinkedIn groups. Target identity/member groups on Facebook and LinkedIn were cataloged to explore the presence and representation of disability and aging identities in a socially networked setting. The groups for this study were identified using the search feature designed into the platform architecture, which allow a user to search on specifically designated entities or keywords. Findings suggest that from a policy perspective, institutions need to be cognizant of population characteristics as well as platform opportunities implementing advocacy and relevant support services for people with disabilities and older adults to full ensure engagement and participation.

The Evolving University: Disruptive Change and Institutional Innovation

Abstract The domain of education, like many institutions in contemporary society, faces significant challenges to the completion of it s mission. This is especially true of higher education, which in many countries faces increasing expectations that it serves as a driver facilitating social and cultural advancement. New modes of inclusive delivery need to be tested with real students, new curriculum approaches need to be validated, new platforms need applications and content to succeed, and analytical tools need broadly based data to be truly useful. These also include new ways of collaborating and presenting domain specific subject matter. It is increasingly likely that the University of the future will not look like present-day institutional arrangements.

Human Centred Design Considerations for Connected Health Devices for the Older Adult

Connected health devices are generally designed for unsupervised use, by non-healthcare professionals, facilitating independent control of the individuals own healthcare. Older adults are major users of such devices and are a population significantly increasing in size. This group presents challenges due to the wide spectrum of capabilities and attitudes towards technology. The fit between capabilities of the user and demands of the device can be optimised in a process called Human Centred Design. Here we review examples of some connected health devices chosen by random selection, assess older adult known capabilities and attitudes and finally make analytical recommendations for design approaches and design specifications.

Adoption of information and communication technologies: key policy issues, barriers and opportunities for people with disabilities

While wireless communication and other information linked technologies have rapidly achieved widespread levels of adoption, a significant array of stakeholder groups have been effectively excluded, not by as much by active intent as by inadvertent oversight and lack of awareness. Many of these technologies routinely used by the general population are frequently inaccessible to persons with disabilities. Barriers to the use of these technologies by people with varying disabilities may be subtle and unintentional, but never the less very real. This paper presents preliminary results of policy research designed to develop a framework for assessing the status quo, developing inclusive policy initiatives, and evaluating the efficacy of the research approach.

A human-centered design methodology to enhance the usability, human factors, and user experience of connected health systems: a three-phase methodology

Background Design processes such as human-centered design, which involve the end user throughout the product development and testing process, can be crucial in ensuring that the product meets the needs and capabilities of the user, particularly in terms of safety and user experience. The structured and iterative nature of human-centered design can often present a challenge when design teams are faced with the necessary, rapid, product development life cycles associated with the competitive connected health industry. Objective We wanted to derive a structured methodology that followed the principles of human-centered design that would allow designers and developers to ensure that the needs of the user are taken into account throughout the design process, while maintaining a rapid pace of development. In this paper, we present the methodology and its rationale before outlining how it was applied to assess and enhance the usability, human factors, and user experience of a connected health system known as the Wireless Insole for Independent and Safe Elderly Living (WIISEL) system, a system designed to continuously assess fall risk by measuring gait and balance parameters associated with fall risk. Methods We derived a three-phase methodology. In Phase 1 we emphasized the construction of a use case document. This document can be used to detail the context of use of the system by utilizing storyboarding, paper prototypes, and mock-ups in conjunction with user interviews to gather insightful user feedback on different proposed concepts. In Phase 2 we emphasized the use of expert usability inspections such as heuristic evaluations and cognitive walkthroughs with small multidisciplinary groups to review the prototypes born out of the Phase 1 feedback. Finally, in Phase 3 we emphasized classical user testing with target end users, using various metrics to measure the user experience and improve the final prototypes. Results We report a successful implementation of the methodology for the design and development of a system for detecting and predicting falls in older adults. We describe in detail what testing and evaluation activities we carried out to effectively test the system and overcome usability and human factors problems. Conclusions We feel this methodology can be applied to a wide variety of connected health devices and systems. We consider this a methodology that can be scaled to different-sized projects accordingly.

Leveraging online social networks for people with disabilities in emergency communications and recovery

Information and Communication Technologies (ICTs) can play an important role in leveraging social networks for emergency communications and recovery involving persons with disabilities, provided that proper consideration is given to the strengths and weaknesses of the distributed nature of online resources in relation to the instrumental, psychological and social needs of persons with disabilities in the context of disasters or other emergency events. Emergency and disaster events inherently involve uncertainty and dynamic risk factors, and pose design and implementation challenges for inclusive planning and delivery systems. The involvement of persons with disabilities as key stakeholders throughout the developmental and evaluation process is critical to the effectiveness of online social networks in bridging real-world concerns with virtual resources. An analytical model for understanding the role of distributed networks in mediating the negative impacts of a disaster or an emergency on persons with disabilities is proposed, together with key objectives for change.

Ensuring the Enfranchisement of People With Disabilities

In a representational democracy, the process of selecting people to represent the electorate is critical. To accomplish this goal, it is crucial that elections be fair and accurate reflections of the decisions of the voters. However, a significant and relatively unacknowledged constituency, people with disabilities, faces a variety of barriers to full participation in the U.S. electoral democracy. Recent research has provided evidence that how people with disabilities vote is just as important as the physical barriers they face when casting their votes. This article presents an overview of the literature addressing issues that affect how people with disabilities vote, with an especial focus on the role of election officials as both facilitators and inhibitors of voting by people with disabilities.

Policy development and access to wireless technologies for people with disabilities: results of policy Delphi research

This paper discusses the relationship between policy research and policy change, and it provides examples of the policy research outcomes informed by the Rehabilitation Engineering Research Center on Mobile Wireless Technologies for People with Disabilities’ (Wireless RERC) policy research process. In 2005 and 2006, the center conducted empirical research, using the policy Delphi polling methodology, to probe key stakeholders’ opinions on the most significant issues surrounding the adoption and use of wireless communication and information technologies by people with disabilities. Drawing on the results of three rounds of polling, the Wireless RERC developed a set of policy options, and “fine-tuned” them using participating stakeholders from the disability community, wireless industry, and policymakers.

Assessing Stakeholder Perceptions of Workplace Accommodations Barriers Results From a Policy Research Instrument

This article presents the findings from research to identify key barriers and opportunities in the provision of workplace accommodations for employees with disabilities in the United States. Using the policy Delphi method, a multiround, iterative polling technique used to assess key stakeholder perceptions, the study probed on five areas: awareness, policy/regulatory, economic, technology, and social. For each of these areas, the Delphi panel was asked to comment on the reliability of forecasts, importance of issues, desirability of goals, and finally, the feasibility of policy options. The Delphi study concluded with a set of 22 policy options to address barriers to the provision of workplace accommodations. Many of these options take a collaborative approach, but they emphasize involvement of federal agencies such as the Office of Disability Employment Policy in the U.S. Department of Labor and the Americans with Disabilities Act (ADA) Task Force of the U.S. Department of Justice.