Rebekah Grace

Far from Ideal: Everyday Experiences of Mothers and Early Childhood Professionals Negotiating an Inclusive Early Childhood Experience in the Australian Context.

Using narrative interviews underpinned by an ecocultural framework, this Australian study investigated the experiences of 39 mothers of children with disabilities and 27 staff members from the early childhood services which these children attended. The data highlight serious limitations of current government policy and provisions in Australia to facilitating the inclusion of children with disabilities into mainstream childrens services. The small number of successful inclusions evident in this study appears to be in spite of current government policy and may be attributed more to staff personnel. This article concludes by calling for policy change that actively facilitates the successful inclusion of children with disabilities into generalist early childhood services.

Creating a Different Kind of Normal: Parent and Child Perspectives on Sibling Relationships When One Child in the Family Has Autism Spectrum Disorder

This article reports findings from a study that explored the nature of sibling relationships when one child in the family has autism. It employs a collective case study approach to capture the perspectives of parents and young children (aged four to seven years) from three different families. A multifaceted exploration of sibling relationships was achieved by employing qualitative methods including in-depth interviews with parents and children and naturalistic observations. Family systems theory and ecocultural theory provided the theoretical backdrop to this research. The results support previous research which points to issues such as differential treatment of siblings and the development of a non-typical relationship with the sibling with autism. Where this study diverges is in its interpretation of these findings. This article challenges the subjective nature of the concept of ‘normalcy’ which pervades the dominant discourse in disability research. It seeks to understand the resilience and processes of families as they set about creating their own kind of normal.

Using an ecocultural approach to explore young children’s experiences of prior‐to‐school care settings

This paper contributes to the discussion around methodologies effective in gathering the perspectives of young children for the purposes of research. It describes ecocultural theory, a theoretical model that has grown out of anthropology and cross‐cultural psychology, and argues for the benefits of applying an ecocultural approach to interviews with children, guiding qualitative analysis of interview data, and the development of practical strategies built on research findings. The value of this approach to research with young children is demonstrated with examples from a study which examined the prior‐to‐school care experiences of 8 four‐year‐old children.

Tourette's syndrome and the school experience: A qualitative study of children's and parents’ perspectives

This article reports on research exploring the school experiences of 26 children (aged between 8 and 15.5 years) diagnosed with Tourettes Syndrome. The research adopted a qualitative methodology, and is reported here from the perspective of both the parents and the children themselves. Three different groups of families emerged: those who were moderately satisfied in their experiences with the school system, those who were dissatisfied in their experiences with the school system, and families who were so completely dissatisfied that they removed their child from the school system altogether. There was no participating child or parent who was entirely satisfied in their experiences with teachers and the school. Themes that emerged for each of these groups are discussed. This research stresses the importance of teacher understanding and flexibility, as well as parent/school communication. The facilitation of social acceptance for a child with Tourettes Syndrome is also extremely important to successful cl...

Structured social relationships: a review of volunteer home visiting programs for parents of young children.

Objective The aims of the present paper were to: (1) review the research literature that contributes to an understanding of the role of volunteer home visiting programs in supporting the health and well being of families with young children; and (2) propose a conceptual model outlining service pathways for families in need of additional support. Methods An integrative literature review method was used, with a mix of electronic and manual search methods for the period January 1980-January 2014. Forty-five studies were identified that met the inclusion criteria for review and were coded according to themes developed a priori. Results There is little formal research that has examined the effectiveness of volunteer home visiting programs for supporting family health and well being. The available research suggests that volunteer home visiting programs provide socioemotional support through structured social relationships; however, there is limited empirical evidence to explicate the factors that contribute to these outcomes. Conclusion In recognition of the importance of peer support for new parents, the not-for-profit sector has been involved in providing volunteer home visiting services to families for decades. However, the body of research to support this work is characterised by methodological limitations, and rigorous evidence is limited. What is clear anecdotally and qualitatively from the existing research is that parents who are in need of additional support value engagement with a community volunteer. These structured social relationships appear to fulfil a service need within the community, helping build bridges to support social networks, and thus complementing professional services and relationships. Overall, structured social relationships in the form of volunteer home visiting programs appear to provide an important pathway to support family health and well being. Findings from the existing research are mixed and often characterised by methodological limitations, pointing to a need for further rigorous research. What is known about the topic? Volunteer family support programs have been an important part of the service landscape for vulnerable families, both nationally and internationally, for many years. Anecdotal reports suggest that this is a valued form of support that increases a sense of community connectedness and breaks down barriers for families in accessing other community support services. What does this paper add? This paper proposes a model identifying broad service pathways impacting on family health and well being that takes into account the importance of structured social relationships and social connectedness. What are the implications for practitioners? The proposed model may encourage discussion by practitioners and organisations interested in models of support for families who are socially isolated and/or in need of assistance to access and engage with services within the community.

The Gudaga Research Program: A Case Study in Undertaking Research with an Urban Aboriginal Community

ABSTRACT This paper presents the Gudaga Research Program as a case study describing the practice principles used to implement a successful research partnership with an urban Aboriginal community in south-western Sydney. This is one of few papers that address research issues unique to working with urban Aboriginal communities, in which the Aboriginal culture of the community is not homogenous. The authors argue that the relationships between the researchers and key community members and research participants underpin the research success. Throughout, the authors show that ongoing processes to nurture and reaffirm these relationships are important and require ongoing investment. A proposed practice framework demonstrates the relationship between knowledge and understanding of Aboriginal history and culture, the underpinning values including trust, respect, and reciprocity, and shared skills and communication. Examples of how these were built into the research are provided. These are important skills that have application beyond the research process.

Gudaga goes to school study: methods used in understanding school transitions and early education experiences of an urban Aboriginal cohort

Abstract The Gudaga Goes to School Study described the transition to school and early education experiences of 117 urban Aboriginal children and their families. This paper outlines the methods and design of the study. A life course approach, employing multidimensional and multi-theoretical frameworks was used to capture the complexity of issues surrounding the transition and early school experiences with multi-methods used to collect data from children, parents and teachers. Quantitative data included questionnaires, checklists and educational assessments to track children’s academic progress, school attendance, and social/emotional/behavioural development. Qualitative data consisted of semi-structured interviews and focus groups to gain the perspective of stakeholders. Children also participated using photography and drawing mediums. The community controlled study was conceived, designed and conducted in close consultation with the local Aboriginal community.

‘Everybody Has Got Their Own Story’: Urban Aboriginal Families and the Transition to School

The Gudaga Goes to School study described the early school experiences and transition to school for a birth cohort of urban Aboriginal children living in Sydney, Australia. A life course approach identified the complex range of factors involved in transition to school for this cohort and their families. This chapter presents parent perspectives, supplemented with information from children’s teachers, to show the range of experiences of parent involvement at school. Three case studies have been developed, drawing on a series of interviews conducted between 2011 and 2015, prior to the child starting school and up to the end of Year 2. Parents reported positive school experiences and support of their child’s successful transition to school. They placed importance on relationships, communication, a welcoming environment and school support of children’s learning and school engagement. Challenges and barriers to involvement, if and how these were overcome, and areas for improvement are discussed.

A case study of well child care visits at general practices in a region of disadvantage in Sydney

Introduction Well-Child Care (WCC) is the provision of preventive health care services for children and their families. Prior research has highlighted that several barriers exist for the provision of WCC services. Objectives To study “real life” visits of parents and children with health professionals in order to enhance the theoretical understanding of factors affecting WCC. Methods Participant observations of a cross-sectional sample of 71 visits at three general practices were analysed using a mixed-methods approach. Results The median age of the children was 18 months (IQR, 6–36 months), and the duration of visits was 13 mins (IQR, 9–18 mins). The reasons for the visits were immunisation in 13 (18.5%), general check-up in 10 (13.8%), viral illness in 33 (49.2%) and miscellaneous reasons in 15 (18.5%). Two clusters with low and high WCC emerged; WCC was associated with higher GP patient-centeredness scores, younger age of the child, fewer previous visits, immunisation and general check-up visits, and the solo general practitioner setting. Mothers born overseas received less WCC advice, while longer duration of visit increased WCC. GPs often made observations on physical growth and development and negotiated mothers concerns to provide reassurance to them. The working style of the GP which encouraged informal conversations with the parents enhanced WCC. There was a lack of systematic use of developmental screening measures. Conclusions GPs and practice nurses are providing parent/child centered WCC in many visits, particularly when parents present for immunisation and general check-ups. Providing funding and practice nurse support to GPs, and aligning WCC activities with all immunisation visits, rather than just a one-off screening approach, appears to be the best way forward. A cluster randomised trial for doing structured WCC activities with immunisation visits would provide further evidence for cost-effectiveness studies to inform policy change.

Community Volunteer Support for Families With Young Children: Protocol for the Volunteer Family Connect Randomized Controlled Trial

Background Use of community volunteers to support vulnerable families is a widely employed strategy with a long history. However, there has been minimal formal scientific investigation into the effectiveness of volunteer home visiting programs for families. There is also a need for research examining whether volunteer home visiting leads to improved outcomes for volunteers. Objective The objective of this paper is to describe the research protocol for a pragmatic randomized controlled trial (RCT) of the Volunteer Family Connect intervention, a volunteer home visiting program designed to support families of young children who experience social isolation or a lack of parenting confidence and skills. The project is being conducted in partnership with 3 leading not-for-profit organizations, designed to contribute to the body of evidence that informs decisions about appropriate family support services according to the level of need. It is the first study to examine outcomes for both the families and the volunteers who deliver the service. Methods The RCT is being conducted in 7 sites across Australia. We aim to recruit 300 families to the study: 150 control (services as usual) and 150 intervention (services as usual + volunteer home visiting) families. Intervention families will receive the service for 3-12 months according to their needs, and all participants will complete 6 data collection points over 15 months. A minimum of 80 volunteers will also be recruited, along with a matched community comparison group. The volunteers will complete 3 data collection points over 12 months. Primary outcomes include community connectedness and parenting competence. Secondary outcomes include parent physical and mental health; general parent well-being; parent empowerment; the child-parent relationship; sustainability of family routines; child immunization; child nutrition or breastfeeding; number of accidental injury reports; and volunteer health, well-being, and community connectedness. Results This effectiveness trial was funded in 2016, and we aim to complete data collection by the end of 2018. The first results are expected to be submitted early in 2019. Conclusions There is a need to rigorously assess volunteer home visiting and whether it has a unique and important role on the service landscape, complementary to professional services. This research is the first trial of a volunteer home visiting program to be conducted in Australia and one of the largest of its kind worldwide. Trial Registration Australian New Zealand Clinical Trial Registry ACTRN12616000396426; https://www.anzctr.org.au/Trial/Registration/TrialReview.aspx?id=370304 (Archived by WebCite athttp://www.webcitation.org/70q42fU7V) Registered Report Identifier RR1-10.2196/1000