Rosemary Leonard

Networking Through Loose and Strong Ties: An Australian Qualitative Study

Given the significant role attributed to community organizations by many social capital scholars, it is appropriate to investigate the dynamics of that process. In particular, Woolcock and Narayan (World Bank Res. Obs.15(2): 225–249, 2000) have suggested that bridging and bonding are two different types of connections, whereby bridging is associated with loose ties across communities and bonding is associated with strong ties within a limited group. This qualitative study explores the loose and strong ties of 39 participants connected through community organizations in rural and urban New South Wales. The results suggest that loose and strong ties are not synonymous with bridging and bonding. In general loose and strong ties differ in degree rather than in kind and people prefer to bridge through their strong ties. The interesting exceptions were ties to professionals, which were highly trusted but defined as loose ties. It is suggested that a model for a high social capital society might be a chain of well-bonded groups each with strong links to some other groups.

Circles of care: should community development redefine the practice of palliative care?

Specialist palliative care, within hospices in particular, has historically led and set the standard for caring for patients at end of life. The focus of this care has been mostly for patients with cancer. More recently, health and social care services have been developing equality of care for all patients approaching end of life. This has mostly been done in the context of a service delivery approach to care whereby services have become increasingly expert in identifying health and social care need and meeting this need with professional services. This model of patient centred care, with the impeccable assessment and treatment of physical, social, psychological and spiritual need, predominantly worked very well for the latter part of the 20th century. Over the last 13 years, however, there have been several international examples of community development approaches to end of life care. The patient centred model of care has limitations when there is a fundamental lack of integrated community policy, development and resourcing. Within this article, we propose a model of care which identifies a person with an illness at the centre of a network which includes inner and outer networks, communities and service delivery organisations. All of these are underpinned by policy development, supporting the overall structure. Adoption of this model would allow individuals, communities, service delivery organisations and policy makers to work together to provide end of life care that enhances value and meaning for people at end of life, both patients and communities alike.

The Grey Nomad phenomenon: Changing the script of aging

This article explores a relatively new and little understood phenomenon, that of the Australian Grey Nomads. Every year increasing numbers of older Australians take to the road. This article explores the phenomenon both empirically and theoretically. A grounded approach is used by which the experience is explored from an ethnographic account involving interviews with some 400 travelers, including in-depth taped interviews with 26 traveling groups. The data is analyzed and discussed in terms of “Ulyssean” aging. The Ulyssean lifestyle requires the freedom to pursue personal choice and new, personally risky experience. Issues of health, personal development, and social networks are discussed in relation to the literature on aging. In particular, it is argued that the Grey Nomad phenomenon fundamentally challenges the dominant decline model of aging. It presents a picture instead of these older Australians taking active and very positive control of their lives, regardless of financial and health conditions. In doing so, they are rewriting the dominant social script for aging.

Bringing our dying home : how caring for someone at end of life builds social capital and develops compassionate communities.

Abstract In this article we discuss the ‘bringing our dying home’ research project which contributes to an understanding of caring at end of life (EOL) as potentially increasing social networks and community capacity. The main aims of the research were to illuminate the quality and effect of informal caring networks that are established, or strengthened, as a result of caring for a person dying at home and to understand how being involved in such a caring network impacts family, friends and the wider community. Using photo voice and network mapping in focus groups and interviews we collected 94 visual and oral narratives of caring and support. We found: people who engaged in acts of resistance to the Western expert-based approach to EOL care; that carers successfully mobilised and negotiated complex webs of relationships; and, that embodied learning about caring contributed to the development of social capital and compassionate communities.

Identifying changes in the support networks of end-of-life carers using social network analysis

End-of-life caring is often associated with reduced social networks for both the dying person and for the carer. However, those adopting a community participation and development approach, see the potential for the expansion and strengthening of networks. This paper uses Knox, Savage and Harveys definitions of three generations social network analysis to analyse the caring networks of people with a terminal illness who are being cared for at home and identifies changes in these caring networks that occurred over the period of caring. Participatory network mapping of initial and current networks was used in nine focus groups. The analysis used key concepts from social network analysis (size, density, transitivity, betweenness and local clustering) together with qualitative analyses of the groups reflections on the maps. The results showed an increase in the size of the networks and that ties between the original members of the network strengthened. The qualitative data revealed the importance between core and peripheral network members and the diverse contributions of the network members. The research supports the value of third generation social network analysis and the potential for end-of-life caring to build social capital.

A conceptual framework for investigating community wellbeing and resilience

Abstract This article presents the conceptual basis for empirically testing the relationship between community wellbeing and resilience. Previous research has argued that rural communities facing rapid economic, social and environmental change need to be resilient to maintain or enhance their community wellbeing. However, it is often not clear what is meant by community wellbeing or resilience, and how they differ. Both concepts are often imprecise and seldom clearly distinguished from each other when placed in a theoretical context. Further, wellbeing and resilience are often assumed to be positively associated but this may not necessarily be the case (Amundsen, 2012; Armitage, Béné, Charles, Johnson, & Allison, 2012; Coulthard, 2012). The present analysis suggests that community resilience is best conceptualised as a type of functioning or process whereby community resources are mobilised in strategic ways by community agents in adaptive responses to change (e.g., Norris, Stevens, Pfefferbaum, Wyche, & Pfefferbaum, 2008) and community wellbeing is best conceptualised as a state, which is hopefully enhanced as a result of community resilience. Rather than a direct correlation, the relationship might be iterative whereby poor wellbeing triggers a mobilising of resilience which in turn leads to future wellbeing. The article outlines the main dimensions of community wellbeing and resilience that require valid and reliable measurement to test the relationship. The implication of such a relationship is that communities might need to focus on resilience rather than current wellbeing to achieve future wellbeing.

Assessing climate change beliefs: Response effects of question wording and response alternatives

To date, there is no ‘gold standard’ on how to best measure public climate change beliefs. We report a study (N = 897) testing four measures of climate change causation beliefs, drawn from four sources: the CSIRO, Griffith University, the Gallup poll, and the Newspoll. We found that question wording influences the outcome of beliefs reported. Questions that did not allow respondents to choose the option of believing in an equal mix of natural and anthropogenic climate change obtained different results to those that included the option. Age and belief groups were found to be important predictors of how consistent people were in reporting their beliefs. Response consistency gave some support to past findings suggesting climate change beliefs reflect something deeper in the individual belief system. Each belief question was assessed against five criterion variables commonly used in climate change literature. Implications for future studies are discussed.

Turning Points in the Lives of Midlife and Older Women

Abstract The study explored the turning points in their lives reported by 60 married or previously married lower-income midlife and older women (born 1931-1936, 1941-1946 and 1951-1956), and considered the importance of age and cohort effects. Following a life-review interview, respondents were asked to nominate the turning points in their lives. The turning points that were identified were classified as involving predominantly a role transition, an adversity, or an experience of personal growth. There were significant cohort differences in that the youngest cohort nominated significantly more adversities and the oldest cohort correspondingly fewer. In the total sample, role transitions and adversity turning points were most commonly experienced between the ages of 21 and 40 years, while personal development experiences increased after midlife. It is noted that the turning point approach allows respondents to select and prioritise their own significant life events, and these are not always those that are ...

Volunteer tourism: the interests and motivations of grey nomads.

Abstract Volunteer tourism is increasingly being recognised as a distinct phenomenon which needs to draw on an understanding of both tourism and volunteer motivations. The present research identifies the volunteering interests and needs of one particular demographic or interest group, the grey nomads of Australia. Grey nomads are defined as people aged over 50 years who adopt an extended period of travel within Australia. They are an important group because of their potential to assist struggling rural communities. The results showed that grey nomads had a diverse range of skills and displayed a willingness to volunteer for community projects. Efforts to attract grey nomad volunteers will need to consider their diversity of education, the health limitations of those aged over seventy and the grey nomads’ desire to meet the townspeople and to learn more about the local area and its history. The results suggest that it is feasible for towns using tourism as a path to development to include the possibility of grey nomad volunteer programs.

Working together–apart: Exploring the relationships between formal and informal care networks for people dying at home

Abstract Introduction Informal caring networks contribute significantly to end-of-life (EOL) care in the community. However, to ensure that these networks are sustainable, and unpaid carers are not exploited, primary carers need permission and practical assistance to gather networks together and negotiate the help they need. Our aim in this study was to develop an understanding of how formal and informal carers work together when care is being provided in a dying persons home. We were particularly interested in formal providers’ perceptions and knowledge of informal networks of care and in identifying barriers to the networks working together. Methods Qualitative methods, informed by an interpretive approach, were used. In February-July 2012, 10 focus groups were conducted in urban, regional, and rural Australia comprising 88 participants. Findings Our findings show that formal providers are aware, and supportive, of the vital role informal networks play in the care of the dying at home. A number of barriers to formal and informal networks working together more effectively were identified. In particular, we found that the Australian policy of health-promoting palliative is not substantially translating to practice. Conclusion Combinations of formal and informal caring networks are essential to support people and their primary carers. Formal service providers do little to establish, support, or maintain the informal networks although there is much goodwill and scope for them to do so. Further re-orientation towards a health-promoting palliative care and community capacity building approach is suggested.