Sarah Prior

‘A lifestyle coat-hanger’: a phenomenological study of the meanings of artwork for women coping with chronic illness and disability

Purpose:u2002The purpose of this phenomenological enquiry was to explore the meanings and functions of art for a group of women living with disabling chronic illness. Participants were recruited on the basis that they considered artwork as central to their current well-being. Method:u2002Thirty women were interviewed and five submitted written narratives. Interpretative phenomenological analysis was carried out. Results:u2002About half of the participants had taken up their preferred artistic occupation since the onset of illness. Participants described their artwork as contributing to their health and well-being in many diverse ways. Art filled occupational voids, distracted thoughts away from illness, promoted the experience of flow and spontaneity, enabled the expression of grief, maintained a positive identity, and extended social networks. Its value was conceptualised by one participant as a ‘lifestyle coat-hanger’ organising numerous further roles and activities that gave purpose to life. Art was more than cathartic. It offered a versatile means of overcoming the restrictions imposed by illness on self and lifestyle, in many cases creating a more enriched lifestyle than before. Conclusion:u2002The findings may encourage professionals working in health and rehabilitation settings to assist clients in identifying meaningful, creative occupations that are feasible within the limits imposed by illness or injury.

“Sticking Jewels in Your Life”: Exploring Women's Strategies for Negotiating an Acceptable Quality of Life with Multiple Sclerosis

The authors explored womens strategies for achieving quality of life with multiple sclerosis (MS) through interviews with 27 women, most of whom had lived with MS for more than 5 years. Analysis of the semistructured interviews followed the interpretative phenomenological approach. The women portrayed living with MS as an ongoing process of negotiation and described gaining quality of life through looking after health; maintaining meaningful occupations and roles; establishing mutual relationships; clarifying beliefs, aspirations, and philosophy of life; activism on disability issues; consciously valuing positive life experiences; and finding benefits in adversity. Despite recounting resourceful strategies, many acknowledged ongoing difficulties. Some narratives suggested a mesh or tapes-try of coexisting positive and negative experiences. Others portrayed an adversarial relationship, with the positive and negative forces in their lives constantly battling for supremacy. A wide array of flexible, evolving strategies was required to achieve an acceptable quality of life with MS.

Creative Adventures and Flow in Art-Making: a Qualitative Study of Women Living with Cancer

This qualitative study invited women living with cancer who engaged in visual art-making to reflect on their experiences of the creative process. The study sought to explore whether the participants described experiences of flow during art-making and, if so, how such experiences helped them to cope with cancer. Ten women took part in semi-structured interviews. They described a range of difficulties associated with their illness. The interview data were analysed using a template approach, based on the theory of Csikszentmihalyi. The participants described a number of experiences that have been associated with flow in previous work. However, one aspect of flow, namely having clear goals, was not present clearly in the participants accounts. The participants also described other facets of art-making that seemed part of the flow experience, including sensuous vitality, responsiveness to art materials and evolving imagery, and creative adventures. The flow experiences during art-making helped to banish intrusive thoughts about cancer, provided valued experiences of mastery and control and encouraged the participants to engage in positive journeys into the unknown, thereby alleviating some of the stress of cancer. The study offers a detailed analysis of the experience of creative occupation and has relevance to occupational therapists working with clients who have life-threatening illnesses.

Women's experiences of increasing subjective well-being in CFS/ME through leisure-based arts and crafts activities: A qualitative study

Purpose. To understand the meanings of art-making among a group of women living with the occupational constraints and stigma of CFS/ME. The study explored their initial motives for art-making, and then examined how art-making had subsequently influenced their subjective well-being. Method. Ten women with CFS/ME were interviewed; three provided lengthy written accounts to the interview questions. Findings. Illness had resulted in devastating occupational and role loss. Participants took many years to make positive lifestyle changes. Art-making was typically discovered once participants had accepted the long-term nature of CFS/ME, accommodated to illness, and reprioritized occupations. Several factors then attracted participants specifically to art-making. It was perceived as manageable within the constraints of ill-health. Participants also tended to be familiar with craft skills; had family members interested in arts and crafts, and some desired a means to express grief and loss. Once established as a leisure activity, art-making increased subjective well-being mainly through providing increased satisfaction in daily life, positive self-image, hope, and contact with the outside world. Participants recommended provision of occupational/recreational counselling earlier in the illness trajectory. Conclusions. Creative art-making occurred as part of a broader acceptance and adjustment process to CFS/ME, and allowed some psychological escape from a circumscribed lifeworld.

Images of Resistance: A Qualitative Enquiry Into the Meanings of Personal Artwork for Women Living With Cancer

This study explored the meanings, inspirations, and subjective significance of personal artwork created as a leisure activity by women living with cancer. A convenience sample of 12 women aged 23–74 years participated in semistructured interviews. Participants were living in various stages of the cancer trajectory, and engaged in several forms of visual art-making. They submitted examples of their artwork by photograph and explored the meanings of this work in semistructured interviews. The study found that body imagery was extremely rare in participants array of artwork, unlike the images typically created in art therapy. Few pieces expressed fears about cancer in symbolic terms. Participants described their selected artwork as offering sensuous pleasures, and confirming their ongoing capability, personal continuity, and social connectedness. Participants acknowledged ongoing loss and difficulties related to cancer. However, each piece of art offered a tangible record of resistance against the psychologically and socially disruptive effects of cancer, helping to maintain a familiar noncancer identity. The preinterview photography activity was helpful for empowering participants in the interview, and for stimulating detailed memories.

‘It's a New Way of Life’: An Exploration of the Occupational Transition of Retirement

Introduction: The aim of this study was to explore the work to retirement transition, from an occupational perspective. Participants personal reports of experiences relating to the occupational transition of retirement, and its impact on health and wellbeing, were examined. Method: Eight participants who had recently retired were recruited purposively. They were interviewed using semi-structured interviews, focusing on the areas of previous employment, experience of the retirement transition, occupational balance and reflection on the impact on health and wellbeing. The research used interpretative phenomenological analysis to guide data collection and analysis. Findings and conclusion: Three superordinate themes emerged: the process of retirement; purpose, doing and wellbeing; and retirement as a new life stage. These themes suggested that the retirement transition was a period of significant readjustment and that there was a close relationship between participants engagement in occupation and their perceived health and wellbeing.

Narratives of therapeutic art-making in the context of marital breakdown: older women reflect on a significant mid-life experience

This paper explores the narratives of three women aged 65–72 years. They reflected on an episode of therapeutic art-making in midlife, which addressed depression associated with marital crisis and breakdown. The narrative analysis focused upon on the ways in which participants narrated the events leading up to their participation in therapeutic art-making; the aspects of therapeutic art-making that continued to be given significance; the characters given primacy in the stories they told about their journey through therapy and marital breakdown; meanings, symbolic and otherwise, that participants ascribed to their artwork made during this turning point in their lives; and aspects of the narratives that conveyed present-day identities and artistic endeavors. The narratives revealed the complexity of the journey through marital breakdown and depression into health, and showed that therapeutic art-making could best be understood, not as a stand-alone experience, but as given meaning within the context of wider personal and social resources. Participants looked back on therapeutic art-making that occurred two decades earlier and still described this as a significant turning point in their personal development. Art as an adjunct to counselling/therapy was not only symbolically self-expressive but provided opportunity for decision-making, agency and a reformulated self-image.

The lived experience of people with mental health and substance misuse problems: Dimensions of belonging:

Introduction People with co-occurring mental health and substance misuse problems are among the most excluded in society. A need to feel connected to others has been articulated in the occupational science literature although the concept of belonging itself has not been extensively explored within this paradigm. This paper reports findings from research that explored the meaning and experience of belonging for four people living with dual diagnosis in the United Kingdom. Method Researchers employed an interpretative phenomenological approach to the study. Four semistructured interviews were carried out. The interviews were guided by questions around the meaning of belonging, barriers to belonging and how belonging and not belonging impacted on participants’ lives. Data analysis facilitated the identification of themes across individual accounts and enabled comparisons. Findings Data analysis identified four themes – belonging in family, belonging in place, embodied understandings of belonging and barriers to belonging. Conclusion The findings add further insights into the mutable nature of belonging. A link between sense of belonging and attachment theory has been proposed, along with a way to understand the changeable and dependent nature of belonging through ‘dimensions of belonging’.

Determining the Effectiveness of a Short-Term Anxiety Management Course

The effectiveness of a 6-week anxiety management course at a mental health day hospital was researched. The author was motivated to research these sessions due to her own observations of the clients progress in the groups. There was also an increasing demand for anxiety management groups with many clients being referred by general practitioners. The subjects were 37 clients. The diagnosis of the clients varied but anxiety must have been identified as a problem. Four of the 6-week courses were run over a period of 10 months. The course was evaluated using three questionnaires: the Hospital Anxiety and Depression (HAD) Scale, the Spielberger Questionnaire (state and trait) and the Fear Questionnaire. The clients completed the questionnaires four times: pre-treatment, at the beginning and at the end of the course, and at 2 months post-treatment. A control group was used. The data collected from the questionnaires were analysed using paired t-tests. The results showed that the anxiety management course was effective, with a statistically significant reduction in symptoms by the end of the course. The control group did not show significant change. It was the HAD Scale that showed the statistically significant positive change. The state section of the Spielberger Questionnaire followed the same pattern as the HAD Scale and showed a reduction in symptoms, although it was not statistically significant. The results of the Fear Questionnaire suggested that the clients phobias were not treated by the anxiety management course. A client satisfaction questionnaire was used and participants made positive comments about the value of the course.

Strategies of Adapting and Replacing Artistic Leisure Occupations to Maintain Participation and Identity: A Qualitative Study of Women With Arthritis

This qualitative study explored older womens qualitative accounts regarding their strategies for maintaining or adapting their participation in visual art-making in the context of arthritis. Ten participants were interviewed, aged 62–81 years, all having lived with arthritis for at least 7 years. Interpretative phenomenological analysis identified four convergent themes. Participants described adapting their strategies of art-making in ways that maintained the aesthetic quality of their artwork while also accommodating their arthritis. They described devising more accessible creative spaces. Planning, design, and anticipating new creative activities enhanced choice and control during flares in symptoms. Positive attitudes toward self-managing illness informed the practical adaptations described.