Stephanie Daley

Development of a framework for recovery in older people with mental disorder.

To evaluate whether a conceptual framework of recovery developed for working age adults holds value for users of older peoples mental health services, including those with dementia.

Factors associated with the quality of life of family carers of people with dementia: A systematic review

Family carers of people with dementia are their most important support in practical, personal, and economic terms. Carers are vital to maintaining the quality of life (QOL) of people with dementia. This review aims to identify factors related to the QOL of family carers of people with dementia.

A roadmap to advance dementia research in prevention, diagnosis, intervention, and care by 2025

National and global dementia plans have focused on the research ambition to develop a cure or disease‐modifying therapy by 2025, with the initial focus on investment in drug discovery approaches. We set out to develop complementary research ambitions in the areas of prevention, diagnosis, intervention, and care and strategies for achieving them.

FACTORS INFLUENCING QUALITY OF LIFE IN FAMILY CARERS OF PEOPLE WITH DEMENTIA

lowest degree of depressive symptoms (B1⁄4 -0.753, SE1⁄4 .367, p< .05). On the other hand, social support from friends and community cohesion does not have as significant an effect on the depressive symptoms of spousal caregivers. Conclusions:These findings suggest that spousal caregiver’s positive social support from family members is the most important for ameliorating their depressive symptoms, and thus, community welfare centers need to develop a supportive family program to gain positive relationship with other family members.

A SYSTEMATIC REVIEW OF FACTORS ASSOCIATED WITH QUALITY OF LIFE OF FAMILY CARERS OF PEOPLE WITH DEMENTIA: AN INTERNATIONAL PERSPECTIVE

The purposes of this study were to examine risk domains of family caregivers for patients with dementia and to investigate associations between characteristics of patients with dementia and risk domains of family caregiversMethods:This is a descriptive, correlational, and cross-sectional study using convenience sample from 25 district dementia support centers in Seoul, South Korea. The questionnaires for family caregivers included risk appraisal and demographic and caregiving information. Data on patients with dementia of family caregivers completing the questionnaires included duration and type of dementia, CDR (Clinical Dementia Rating), MMSE (Mini Mental State Examination), and demographic information. Results: In comprehensive assessment of risk in family caregivers of patients with dementia, caregiving burden of patients with dementia was identified as the most significant risk among five risk domains of family caregivers: information, safety, burden, social support, and health. This finding is consistent with previous studies which indicated that caregivers of patients with dementia have moderate or severe levels of burden and may partially explain burden of caregivers as integrated response to physical, psychological, emotional, social, and financial stressors on caregiving. Conclusions:Burden in caregiving of patients with dementia is the most significant risk domains of family caregivers, followed by social support and health risk of family caregivers. Gender and health-related quality of life of patients with dementia are significant factors of information, burden, and health risk of family caregivers for caregiving. Gender, age, marital status, education, income, employment, having certified care worker, and neuroticism of family caregivers are associated with risk of information, safety, social support, and health of family caregivers in caring for patients with dementia. *This research was supported by research fund by Seoul Dementia Center and Basic Science Research Program through the National Research Foundation of Korea (NRF) funded by the Ministry of Science, ICT and future Planning(NRF. 2013R1A2A2A01069090).

PARTICIPATING IN UNDERGRADUATE HEALTHCARE PROFESSIONAL DEMENTIA EDUCATION: THE EXPERIENCE OF PEOPLE WITH DEMENTIA AND THEIR CARERS

Background:The Neuroscience Group of Antioquia (GNA) developed a Home Health program to assist patients and families with neurodegenerative diseases whose health status does not allow them to receive care at the GNA center. It is a scheduled visit, free of charge and performed by psychologists, nurses and physicians who offer comprehensive care, education in caretaking and good interactions among the healthcare team, patient, family and social environment.Methods:A statistical analysis was performed, and it allowed us to establish central tendency measures for the variables: sex, geographic location, housing, reason for consultation, diagnosis, stage of the disease, behavioral problems, type of caregiver and postmortem brain donation.Results:A total of 70 patients were visited during 2016: 68.6% were female, 84.3% were living with their relatives and 15.7% in nursing homes , 58.6% were residing in Medellin and 41.4% in other municipalities of Colombia. Among the people who assumed the role of caregiver 27.1% were the patient’s siblings and 24.3% the patient’s children. The diagnoses were: genetic Alzheimer’s Disease due to PSEN1 E280A mutation (70.4%), sporadic Alzheimer’s disease (14.1%) and other neurodegenerative diseases (7%) such as Parkinson’s Disease, Dystonia, Lateral Amyotrophic Sclerosis and Huntington’s Disease. The main reasons for consultation were tonic-clonic seizures and/or myoclonus (28.5%), behavioral problems (65.7%), and severe stage of dementia (96.7%). Of all deceased patients in 2016, 75% donated their brain to the “Neurobanco” of GNA – only brain bank in Colombia. Conclusions:The Home Health program had bilateral benefits; it allowed patients and their families to improve their quality of life, and families of deceased patients helped science advancement through brain donation. The program also improved the participation in different research projects, including clinical trials and tissue donation.

The use of section 135(1) of the Mental Health Act in a London borough

Purpose – The purpose of this paper is to determine the incidence of the use of section 135(1) of the Mental Health Act 1983 in a London borough and describe the main features of the population subject to that section. Design/methodology/approach – Uses of section 135(1), hospital stay, and demographic data were gathered from service and patient records over one year. Means, medians, modes and standard deviation were calculated for interval data. Nominal data were cross-tabulated and the chi square test applied where appropriate. Study data were compared to census and national hospital data; the significance of proportional population differences were calculated using the Z-test. Findings – In total, 63 uses of section 135(1) were recorded. It was primarily used with people with psychotic diagnoses (79 per cent), and was used predominantly in black populations, and among people aged 40-54. People admitted to hospital after section 135(1) use who had psychosis diagnoses had median spells in hospital that w...

Implementing the Dementia Carers Support Initiative of the National Institute for Health and Care Excellence in a sub-Saharan African Setting

Global estimates suggest that by 2040, over 71% of people living with dementia worldwide will reside in low- and middle-income countries, especially in sub-Saharan Africa. In this region, informal caregivers, who are mostly close family members, may number over nine times the number of dementia patients. This group of carers often lacks the support they require for their exceptional effort. The United Kingdom’s National Institute for Health and Care Excellence (NICE) provides access to tailored psychosocial interventions as part of a comprehensive support for carers of patients with dementia. This paper appraises organizational considerations in introducing this initiative into the resource-poor health care delivery system typical of many sub-Saharan African settings. It concludes that one initial step in that direction may be the introduction—through a developmental change management framework led by all stakeholders—of a tailored carers’ information package into the routine care for dementia.