William N. Myhill

Developing Accessible Cyberinfrastructure-Enabled Knowledge Communities in the National Disability Community: Theory, Practice, and Policy

Since publication of the Atkins Commission report in 2003, the national scientific community has placed significant emphasis on developing cyberinfrastructure-enabled knowledge communities, which are designed to facilitate enhanced efficiency and collaboration in geographically distributed networks of researchers. This article suggests that the new cyberinfrastructure movement may not fully benefit those participants with disabilities, unless closer attention is paid to legal mandates and universal design principles. Many technology-enhanced learning communities provide geographically distributed collaboration opportunities that expand the inclusion of diverse peoples and help close the digital divide. However, to date, most collaboratory efforts have not emphasized the need for access among people with disabilities nor meeting minimum standards for technological accessibility. To address these concerns, this article reports on two pilot collaboratory studies that explore the role advanced information, communication, and collaboration technologies play in enhancing geographically distributed collaboration among specific research and applied networks within the national disability community. Universal design principles inform the design of the collaboratory and its use and our efforts to ensure access for all. Data for this article come from Web-based surveys, interviews, observations, computer logs, and detailed, mixed-methods accessibility testing. Emerging results suggest that with deliberate and systematic efforts, cyberinfrastructure can be more accessible and generate benefits among persons with disabilities. The authors provide lessons learned and recommendations for future research, policy, law, and practice.

Developing Accessible Libraries and Inclusive Librarians in the 21st Century: Examples from Practice

Abstract Purpose Accessibility and inclusion are at the very core of what libraries are all about and libraries and librarians have an essential, catalytic role to play in facilitating the full participation of people with disabilities in society. Inclusive librarians ensure that their library’s facilities, services, programs, collections, and technology are designed in ways in which all people, regardless of their ability, have an opportunity to participate in and use them. The purpose of this chapter is to raise librarian awareness to the importance of providing effective, well-designed, inclusive programs and services to patrons with disabilities and ensuring that all libraries are physically and virtually accessible to everyone. Methodology/approach The chapter provides a brief review of the history and current state of accessible and inclusive libraries, including the laws and policies governing it and identifies some of the major barriers to successful accessibility and inclusion (including insufficient time and money, externally controlled decision-making, unawareness of existing services, and inadequate training). Findings The chapter offers a variety of practical strategies for overcoming those barriers, with potential or actual examples of how librarians have/can put them into action. Originality/value The chapter concludes with descriptions of special national, regional, and state initiatives, including Syracuse University’s Project ENABLE (Expanding Non-discriminatory Access By Librarians Everywhere), Florida State University’s Project PALS (Panhandle Autism Library Services), and the Illinois State Library’s Targeting Autism projects, all designed to help librarians ensure that their library’ facilities, programs, and services are accessible and inclusive.

Tax subsidization of personal assistance services

BACKGROUND Personal assistance services (PAS) is the term used to describe the range of assistance, services, and supports many people with disabilities and older Americans need to remain in their homes and communities. The Americans with Disabilities Act requires that people with disabilities receive essential services in the communities of their choice rather than in institutional settings. PAS availability often determines whether persons with disabilities become institutionalized or remain in their communities. PAS, however, are not inexpensive or broadly available. Strategies are needed to improve their availability to people with disabilities and the elderly. We sought to analyze 8 provisions of the Internal Revenue Code for their utility to make PAS more affordable and available. METHODS The authors conducted a legal analysis of 8 statutory provisions, as interpreted by regulations, court decisions, and other authoritative sources. RESULTS Each of the tax provisions analyzed covers some PAS expenses incurred by an individual or family. Favorable tax treatment is impacted by the nature and amount of expenses and by the location and conditions of services. The current limitations and complexities of legal interpretations and the fact that many individuals with disabilities are uninformed about these tax provisions present challenges and opportunities. CONCLUSIONS As the need for PAS grows, reform of tax policy is an important complement to health care and long-term services and supports for people with disabilities. To increase utilization of current beneficial tax provisions that subsidize the cost of PAS, individuals with disabilities and tax preparers must become better informed about using these provisions.