Beatriz Sánchez-Herrera

Soporte social con el uso de TIC's para cuidadores familiares de personas con enfermedad crónica

OBJECTIVE The study was aimed at determining the effectiveness of social support using information and communication technology (ICT) for family caregivers regarding people suffering chronic disease. MATERIALS AND METHODS This descriptive exploratory study involving 144 family caregivers for people suffering from chronic disease was carried out in Bogota during 2008 and 2009. It was carried out in three phases: planning and designing ICT strategies (including a pilot trial and selecting the target population), implementing the ICTs in support of the target population and data analysis regarding implementing the ICTs, with a description of the indicators of structure and process for ICT use and results of ICT use in providing social support. G. Hilberts Social support in chronic disease inventory (SSCI) was used for measurements, including the following categories: personal interaction, guide, feedback, tangible help and social interaction. RESULTS ICT-based intervention was effective and proved positive for social support for most family caregivers. While analysing the different categories, the guide, information and instruction and personal interaction received high scores while feedback and social interaction received lower ones. CONCLUSIONS Identifying and designing appropriate ICTs for family caregivers should be continued and supported in different contexts and tools such as internet and on-line social support networks should continue being explored.

Modelo para abordar la carga del cuidado de la enfermedad crónica en Colombia

Resumen es: Con base en la experiencia, investigacion y revision de literatura, se construyo una propuesta de modelo para abordar la carga del cuidado de la enfermed...

Habilidad de cuidado de cuidadores familiares de niños con cáncer

Objective To describe the caring ability of family caregivers of children with cancer. Method This is a descriptive, exploratory study with a quantitative approach. A sample of 85 family caregivers of children with cancer was taken. After a characterization, they respondd to the Caring Ability Inventory adapted for family caregivers of people with chronic non-communicable disease. Results The family caregivers werecharacterized by age, gender, socioeconomic level, education level, family relationship with the care receiver, social support, time of experience, and burden of care generated by the degree of the receivers illness. The overall caring ability was described, as well as the ability of each dimension, including knowledge, courage, and patience. Conclusions The principal family caregivers of children with cancer were mainly the mothers of the children with cancer. 70.6 % of them do not possess sufficient ability to take care of their children with cancer. 31.8 % of the group had a lower ability level. This finding, together with the demands of coping with the fact of having a child with cancer, can be a great burden to family caregivers and generate risk for the ill children under their care.

Commitment and a sense of humanity for the adaptation of patients during hospital care

OBJECTIVE To develop a nursing practice model for the Clinic of the University of the La Sabana that supports the adaptive process of patients during and after their hospital experience. METHODOLOGY This is a descriptive, methodological study implemented in different phases: (1) characterization of the context, (2) identification of the need for a nursing practice model for strengthening care, (3) literature review, (4) description of the model, and (5) validation. RESULTS The context of a university hospital and international trends in the development of a professional nursing discipline require theoretical guidance for the ongoing improvement of the practice of nursing. The decision to apply Roys conceptual model of adaptation clarifies the need for a complementary nursing practice model that brings this macro theory closer to the assistance reality. It is also necessary to make the vocation of service, knowledge and leadership of nursing visible whenever the human adaptive process is a priority. CONCLUSION The University of La Sabana nursing practice model is a model focused on the commitment and humane treatment for the adaptation of patients during hospital care. It represents a consensus on the essentials of the nursing practice, which seek to support the adaptive process in order to have more comprehensive welfare and consequent improvement of the patient.

Carga de la enfermedad crónica para los sujetos implicados en el cuidado

Objective: to determine the meaning given to the concept of burden of chronic non-communicable disease among patients, family caregivers, health care professionals and health service institutions. Methodology: a systematic review conducted using the following databases: LILACS, Sage, Willey Online Library, Scopus, Bireme, Scielo, ScienceDirect, PubMed, Proquest and Cuiden. Results: a total of 538 papers were found, 58 of which were selected for analysis. These papers formed three categories: physical burden, psychosocial burden and additional financial effort. Conclusions: the meaning of the burden of chronic disease is built by patients and their caregivers on the basis of their experience and the effects of the illness on their private life, i.e. the impact at the personal or family levels. Health professionals and institutions acknowledge the importance of the experience of the disease for the patient and family, but they both give priority to its economic impact at an institutional and health system level.

Caracterización del talento humano en salud que atiende a personas con enfermedad crónica: construcción de una encuesta

The objective of this work, is provide conceptual elements that constitute an integrated vision of care conditions required by the human talent in health HTH) that caters to people with chronic disease (CD) and their families, and that are translated into a tool for gathering information of survey type that allow characterization. This research was conducted in three phases: 1) Review of the literature. 2) Structuring a proposed survey 3) Refinement of the final version of the survey. As results, based on the conceptual framework it was possible to reach a comprehensive vision that served as the basis for the development of a survey to identify the conditions of HTH to care for people with chronic illness and their families. This instrument, called GCPC-A-THS (in Spanish), contains 37 items distributed in 6 additional dimensions that include aspects of care such as: sociodemographic variables of HTH, caring ability, information and communication technologies (ICTs) as a means of support to care, continuity, security and also includes some items related to the level of professional satisfaction. The work done made it possible to achieve a comprehensive view of the characteristics and conditions required by the HTH for care to people with chronic illness and their families.

Caring ability of family caregivers of children with cancer

Objective To describe the caring ability of family caregivers of children with cancer. Method This is a descriptive, exploratory study with a quantitative approach. A sample of 85 family caregivers of children with cancer was taken. After a characterization, they respondd to the Caring Ability Inventory adapted for family caregivers of people with chronic non-communicable disease. Results The family caregivers werecharacterized by age, gender, socioeconomic level, education level, family relationship with the care receiver, social support, time of experience, and burden of care generated by the degree of the receivers illness. The overall caring ability was described, as well as the ability of each dimension, including knowledge, courage, and patience. Conclusions The principal family caregivers of children with cancer were mainly the mothers of the children with cancer. 70.6 % of them do not possess sufficient ability to take care of their children with cancer. 31.8 % of the group had a lower ability level. This finding, together with the demands of coping with the fact of having a child with cancer, can be a great burden to family caregivers and generate risk for the ill children under their care.