Débora Cristina de Arruda

A família em expansão: experienciando intercorrências na gestação e no parto do bebê prematuro com muito baixo peso

This is a descriptive study, of a qualitative nature which used ethnography and the content analysis principle to reveal how the family in expansion may deal with the intercurrences during pregnancy and childbirth of a very low weight premature baby. The informants were eight mothers of very low weight premature babies who received care at the Neonatal Intensive Care Unit of the University Hospital of Maringá between 1998 and 2000. Data was collected from December 2005 to June 2006 through recorded semi-structured interviews in the homes of the families. The results revealed that the pregnancies as well as their complications appeared in unusual ways, altering the family structure and dynamics. The reported experiences allowed for the identification of three categories: the pregnancy changing the life of a woman and her family; being surprised by the complications of the pregnancy; and the complications leading to a premature labor. RESUMEN: El presente artículo es un estudio descriptivo de naturaleza cualitativa que utilizó los principios de la etnografía y del análisis de contenido para develar cómo ha sido para la familia en expansión, convivir con Interocurrencias durante la gestación y el parto del bebé nacido prematuro y con bajo peso. Los informantes del estudio han sido ocho madres de niños y que han pasado por hospitalización en Unidad de Terapia Intensiva Neonatal del Hospital Universitario de Maringa, de 1998 a 2000. Los datos fueron recolectados en el periodo de diciembre del 2005 hasta junio del 2006, a través de entrevistas parcialmente elaboradas, grabadas y realizadas en el domicilio de las familias. Los resultados obtenidos han revelado que tanto los embarazos como sus complicaciones surgieron de manera inusitada, cambiando la estructura y la dinámica familiar. Las vivencias relatadas han permitido la identificación de tres categorías: el embarazo cambiando la vida de la mujer/familia; siendo sorprendidos por las complicaciones del embarazo; las complicaciones desencadenando el trabajo de parto prematuro. PALAVRAS-CHAVE: Família. Prematuro. Gravidez de alto risco.This is a descriptive study, of a qualitative nature which used ethnography and the content analysis principle to reveal how the family in expansion may deal with the intercurrences during pregnancy and childbirth of a very low weight premature baby. The informants were eight mothers of very low weight premature babies who received care at the Neonatal Intensive Care Unit of the University Hospital of Maringa between 1998 and 2000. Data was collected from December 2005 to June 2006 through recorded semi-structured interviews in the homes of the families. The results revealed that the pregnancies as well as their complications appeared in unusual ways, altering the family structure and dynamics. The reported experiences allowed for the identification of three categories: the pregnancy changing the life of a woman and her family; being surprised by the complications of the pregnancy; and the complications leading to a premature labor.

Experiência da família ao conviver com sequelas decorrentes da prematuridade do filho

El objetivo del estudio fue describir como es la experiencia de la familia de convivir con las secuelas de la prematuridad en los primeros anos de vida del nino. Se trata de un estudio cualitativo que fue desarrollado en la ciudad de Maringa, PR, Brasil, junto a ocho familias de ninos nacidos en los anos de 1998 a 2000. Los datos foueron recogidos por medio de entrevistas realizadas de enero a junio de 2006 en los domicilios de los respondentes. Las familias revelaron la angustia y el sufrimiento vivenciado al descubrir, a los pocos, las limitaciones, diferencias y secuelas decurrentes de la prematuridad y la larga trayectoria en busca de una mejor comprension de las secuelas a lo largo de la infancia.The objective of the study was to describe the experience of the family that lives with the sequels of prematurity in the first years of a childs life. That was qualitative study developed in Maringá, PR, Brazil, with eight families of children born from 1998 to 2008 at a University Hospital. Data was collected through open interviews carried out at the home of the families in the period from January to June 2006. The families of premature babies revealed the anguish and the suffering experienced when they found little by little, the limitations, differences and current sequels of prematurity. They emphasized that this experience can be translated as a long path in search of a better understanding of the whole process.

Bebê de risco: acompanhando o crescimento infantil no primeiro ano de vida

Objective: To monitor the growth of high-risk babies in the first year of life. Methods: Analytical, cohort study, conducted with 237 babies born in Maringa - PR, between May 1 to October 31, 2008, under the Program for the Surveillance of At-Risk Infants. Results: Growth changes were present in 188 (79.3%) infants and occurred mainly after the first trimester of life. A slower than expected growth rate showed statistical association with maternal age of less than 18 years, education of less than 8 years, presence of congenital anomalies, and birth weight greater than or equal to 2,500g born at term. Conclusion: The evaluation of growth in at-risk infants should include a multidimensional analysis, considering the biological and maturational aspects of each specific risk condition, and adaptation of the baby and his/her family on this evolutionary path.

The family in expansion: experiencing intercurrences during pregnancy and childbirth of a very low weight premature baby

This is a descriptive study, of a qualitative nature which used ethnography and the content analysis principle to reveal how the family in expansion may deal with the intercurrences during pregnancy and childbirth of a very low weight premature baby. The informants were eight mothers of very low weight premature babies who received care at the Neonatal Intensive Care Unit of the University Hospital of Maringá between 1998 and 2000. Data was collected from December 2005 to June 2006 through recorded semi-structured interviews in the homes of the families. The results revealed that the pregnancies as well as their complications appeared in unusual ways, altering the family structure and dynamics. The reported experiences allowed for the identification of three categories: the pregnancy changing the life of a woman and her family; being surprised by the complications of the pregnancy; and the complications leading to a premature labor. RESUMEN: El presente artículo es un estudio descriptivo de naturaleza cualitativa que utilizó los principios de la etnografía y del análisis de contenido para develar cómo ha sido para la familia en expansión, convivir con Interocurrencias durante la gestación y el parto del bebé nacido prematuro y con bajo peso. Los informantes del estudio han sido ocho madres de niños y que han pasado por hospitalización en Unidad de Terapia Intensiva Neonatal del Hospital Universitario de Maringa, de 1998 a 2000. Los datos fueron recolectados en el periodo de diciembre del 2005 hasta junio del 2006, a través de entrevistas parcialmente elaboradas, grabadas y realizadas en el domicilio de las familias. Los resultados obtenidos han revelado que tanto los embarazos como sus complicaciones surgieron de manera inusitada, cambiando la estructura y la dinámica familiar. Las vivencias relatadas han permitido la identificación de tres categorías: el embarazo cambiando la vida de la mujer/familia; siendo sorprendidos por las complicaciones del embarazo; las complicaciones desencadenando el trabajo de parto prematuro. PALAVRAS-CHAVE: Família. Prematuro. Gravidez de alto risco.This is a descriptive study, of a qualitative nature which used ethnography and the content analysis principle to reveal how the family in expansion may deal with the intercurrences during pregnancy and childbirth of a very low weight premature baby. The informants were eight mothers of very low weight premature babies who received care at the Neonatal Intensive Care Unit of the University Hospital of Maringa between 1998 and 2000. Data was collected from December 2005 to June 2006 through recorded semi-structured interviews in the homes of the families. The results revealed that the pregnancies as well as their complications appeared in unusual ways, altering the family structure and dynamics. The reported experiences allowed for the identification of three categories: the pregnancy changing the life of a woman and her family; being surprised by the complications of the pregnancy; and the complications leading to a premature labor.

At-risk infants: monitoring children's growth in the first year of life

Objective: To monitor the growth of high-risk babies in the first year of life. Methods: Analytical, cohort study, conducted with 237 babies born in Maringa - PR, between May 1 to October 31, 2008, under the Program for the Surveillance of At-Risk Infants. Results: Growth changes were present in 188 (79.3%) infants and occurred mainly after the first trimester of life. A slower than expected growth rate showed statistical association with maternal age of less than 18 years, education of less than 8 years, presence of congenital anomalies, and birth weight greater than or equal to 2,500g born at term. Conclusion: The evaluation of growth in at-risk infants should include a multidimensional analysis, considering the biological and maturational aspects of each specific risk condition, and adaptation of the baby and his/her family on this evolutionary path.

Bebé de riesgo: acompañando el crecimiento infantil en el primer año de vida

Objective: To monitor the growth of high-risk babies in the first year of life. Methods: Analytical, cohort study, conducted with 237 babies born in Maringa - PR, between May 1 to October 31, 2008, under the Program for the Surveillance of At-Risk Infants. Results: Growth changes were present in 188 (79.3%) infants and occurred mainly after the first trimester of life. A slower than expected growth rate showed statistical association with maternal age of less than 18 years, education of less than 8 years, presence of congenital anomalies, and birth weight greater than or equal to 2,500g born at term. Conclusion: The evaluation of growth in at-risk infants should include a multidimensional analysis, considering the biological and maturational aspects of each specific risk condition, and adaptation of the baby and his/her family on this evolutionary path.

Family experience of dealing with sequels of the prematurity of a child

El objetivo del estudio fue describir como es la experiencia de la familia de convivir con las secuelas de la prematuridad en los primeros anos de vida del nino. Se trata de un estudio cualitativo que fue desarrollado en la ciudad de Maringa, PR, Brasil, junto a ocho familias de ninos nacidos en los anos de 1998 a 2000. Los datos foueron recogidos por medio de entrevistas realizadas de enero a junio de 2006 en los domicilios de los respondentes. Las familias revelaron la angustia y el sufrimiento vivenciado al descubrir, a los pocos, las limitaciones, diferencias y secuelas decurrentes de la prematuridad y la larga trayectoria en busca de una mejor comprension de las secuelas a lo largo de la infancia.The objective of the study was to describe the experience of the family that lives with the sequels of prematurity in the first years of a childs life. That was qualitative study developed in Maringá, PR, Brazil, with eight families of children born from 1998 to 2008 at a University Hospital. Data was collected through open interviews carried out at the home of the families in the period from January to June 2006. The families of premature babies revealed the anguish and the suffering experienced when they found little by little, the limitations, differences and current sequels of prematurity. They emphasized that this experience can be translated as a long path in search of a better understanding of the whole process.

Experiencia de la familia ao convivir con sequelas decorrentes de la prematuridad del hijo

El objetivo del estudio fue describir como es la experiencia de la familia de convivir con las secuelas de la prematuridad en los primeros anos de vida del nino. Se trata de un estudio cualitativo que fue desarrollado en la ciudad de Maringa, PR, Brasil, junto a ocho familias de ninos nacidos en los anos de 1998 a 2000. Los datos foueron recogidos por medio de entrevistas realizadas de enero a junio de 2006 en los domicilios de los respondentes. Las familias revelaron la angustia y el sufrimiento vivenciado al descubrir, a los pocos, las limitaciones, diferencias y secuelas decurrentes de la prematuridad y la larga trayectoria en busca de una mejor comprension de las secuelas a lo largo de la infancia.The objective of the study was to describe the experience of the family that lives with the sequels of prematurity in the first years of a childs life. That was qualitative study developed in Maringá, PR, Brazil, with eight families of children born from 1998 to 2008 at a University Hospital. Data was collected through open interviews carried out at the home of the families in the period from January to June 2006. The families of premature babies revealed the anguish and the suffering experienced when they found little by little, the limitations, differences and current sequels of prematurity. They emphasized that this experience can be translated as a long path in search of a better understanding of the whole process.

La familia en expansión: experimentando intercurrencias en la gestación y en el parto del bebé prematuro con poco peso

This is a descriptive study, of a qualitative nature which used ethnography and the content analysis principle to reveal how the family in expansion may deal with the intercurrences during pregnancy and childbirth of a very low weight premature baby. The informants were eight mothers of very low weight premature babies who received care at the Neonatal Intensive Care Unit of the University Hospital of Maringá between 1998 and 2000. Data was collected from December 2005 to June 2006 through recorded semi-structured interviews in the homes of the families. The results revealed that the pregnancies as well as their complications appeared in unusual ways, altering the family structure and dynamics. The reported experiences allowed for the identification of three categories: the pregnancy changing the life of a woman and her family; being surprised by the complications of the pregnancy; and the complications leading to a premature labor. RESUMEN: El presente artículo es un estudio descriptivo de naturaleza cualitativa que utilizó los principios de la etnografía y del análisis de contenido para develar cómo ha sido para la familia en expansión, convivir con Interocurrencias durante la gestación y el parto del bebé nacido prematuro y con bajo peso. Los informantes del estudio han sido ocho madres de niños y que han pasado por hospitalización en Unidad de Terapia Intensiva Neonatal del Hospital Universitario de Maringa, de 1998 a 2000. Los datos fueron recolectados en el periodo de diciembre del 2005 hasta junio del 2006, a través de entrevistas parcialmente elaboradas, grabadas y realizadas en el domicilio de las familias. Los resultados obtenidos han revelado que tanto los embarazos como sus complicaciones surgieron de manera inusitada, cambiando la estructura y la dinámica familiar. Las vivencias relatadas han permitido la identificación de tres categorías: el embarazo cambiando la vida de la mujer/familia; siendo sorprendidos por las complicaciones del embarazo; las complicaciones desencadenando el trabajo de parto prematuro. PALAVRAS-CHAVE: Família. Prematuro. Gravidez de alto risco.This is a descriptive study, of a qualitative nature which used ethnography and the content analysis principle to reveal how the family in expansion may deal with the intercurrences during pregnancy and childbirth of a very low weight premature baby. The informants were eight mothers of very low weight premature babies who received care at the Neonatal Intensive Care Unit of the University Hospital of Maringa between 1998 and 2000. Data was collected from December 2005 to June 2006 through recorded semi-structured interviews in the homes of the families. The results revealed that the pregnancies as well as their complications appeared in unusual ways, altering the family structure and dynamics. The reported experiences allowed for the identification of three categories: the pregnancy changing the life of a woman and her family; being surprised by the complications of the pregnancy; and the complications leading to a premature labor.