Fiona Mayne

Meaningful informed consent with young children: looking forward through an interactive narrative approach

Ideas about ethical research with young children are evolving at a rapid rate. Not only can young children participate in the informed consent process, but researchers now also recognize that the process must be meaningful for them. As part of a larger study, this article reviews childrens rights and informed consent literature as the foundation for the development of a new conceptual model of meaningful early childhood informed consent. Based on this model, an ‘interactive narrative’ approach is presented as a means to inform three- to eight-year-old children about what their participation might involve and to assist them to understand and respond as research participants. For use with small groups, this approach revolves around a storybook based on research-related factual images delivered via interactive (re)telling. This narrative approach to informed consent is unique in its holistic design which seeks to address the specific needs of young children in research.

Using interactive nonfiction narrative to enhance competence in the informed consent process with 3-year-old children

ABSTRACT Ensuring young children’s competence to participate meaningfully in the informed consent process is a troublesome ethical issue. Evolving recognition of the influence of context and relationship, researcher perspective, and researcher responsibility to provide adequate support has advanced understanding of how this might be achieved. Here, we report the findings of the pilot trial of a new approach that used an ‘interactive nonfiction narrative’ to enhance young children’s capacity to provide meaningful informed consent. This innovative approach employs (re)telling strategies and technology (interactive) to convey factual information about the research (nonfiction) via a story (narrative) to promote participant understanding. Case studies of two 3-year-old boys and their mothers captured participants’ understanding of the informing and consent process. Data collection in the child’s home took place over 11 weeks and included conversations with children and semi-structured interviews with parents on three occasions, together with videos of children interacting with the informing story. We found that children understood many of the key concepts, including the research problem and how they could ‘help’ (participate). Children also understood that they could cease their participation, with one boy exercising his right to opt out towards the end of the study.

Factors Affecting the Use and Outcomes of Interactive Science Exhibits in Community Settings

ABSTRACT This article reports an investigation into the use of 12 Do-It-Yourself (DIY) Interactive Science Exhibits, borrowed by two community venues—a regional Hall of Fame and a metropolitan Library—as part of a science centers outreach program. Data were generated through interviews with venue staff, interviews with adults and surveys of children who visited the exhibits, and observations of visitor behavior around the exhibits. All children and most adults enjoyed using the exhibits, and adults thought the exhibits would raise peoples (particularly childrens) awareness of science and teach scientific ideas. Venue staff were pleased with the outcomes of the exhibit loan; however, the potential educational effectiveness of the exhibits was limited by issues relating to location and the visitors’ agendas. There were problems in attracting people to the exhibits and encouraging visitors, particularly adults, to engage with them. Suggestions are made to increase the effectiveness of using interactive exhibits in community settings.

A hierarchical model of children’s research participation rights based on information, understanding, voice, and influence

ABSTRACT This paper introduces a hierarchical model of children’s (3- to 8-year olds) research participation rights that builds on work by Roger Hart and integrates key participation rights drawn from UNCRC Article 12: information, understanding, voice, and influence. It provides insight into the various levels of information that can be provided to children, the understanding that results, the scope given to them to express their views, and the degree to which their voices ultimately exert influence in research contexts. Each of these four elements plays a unique role in upholding and enhancing children’s rights in research and emphasises the need for rights to be woven into the fabric of a research project from its conception. Considering children’s rights of research participation in a more integrated manner, as suggested by the hierarchy, has the potential to improve participation experiences for children and to value them as citizens with meaningful rights.