Jaqueline Fernandes Pontes

Facilidades e dificuldades da família no cuidado à criança com paralisia cerebral

This is a qualitative research and exploratory-descriptive study aimed at finding out the familys abilities and difficulties in caring for children with cerebral palsy. Data was collected from seven families, between March and April 2009, through semi-structured interviews. The analysis followed the principles of thematic interpretation. The diffculties are more evident than the abilities and bring repercussions to daily life activities. Dealing with difficulties to control seizures, spasticity, changes in postural tone, occurrence of primitive reflexes, result in the complexity to perform simple tasks like feeding, bathing, locomotion, because children become increasingly dependent on caregivers. Over time, the difficulties give way to the routine and adaptation to the childs daily life. Strengthening relationships with families by improving their bonds and developing quality and comprehensive actions, promotes the welfare of the family/child with cerebral palsy.Pesquisa qualitativa, exploratoria, descritiva, que objetivou apreender as facilidades e as dificuldades da familia no cuidado as criancas com paralisia cerebral. Os dados foram coletados com sete familias, entre marco e abril de 2009, por meio de entrevista semiestruturada. A analise seguiu os principios da interpretacao tematica. As dificuldades sao mais evidenciadas que as facilidades e trazem repercussoes nas atividades de vida diaria. Lidar com convulsoes de dificil controle, espasticidade, alteracoes de tonus postural, presenca de reflexos primitivos implicam na complexidade em tarefas simples, como alimentacao, banho, locomocao, pois as criancas ficam, cada dia, mais dependentes dos cuidadores. Com o tempo, as dificuldades cedem lugar a rotina e a adaptacao a vida diaria da crianca. Estreitar relacoes com a familia, melhorando o vinculo e desenvolvendo acoes de qualidade e integrais, promovem o bemestar da familia/crianca com paralisia cerebral.

Dor e funcionalidade na atenção básica à saúde

Musculoskeletal pain and functionality are linked to the individual health and, thus, influence the mode of interaction between individuals and between them and the environment that surrounds them. However, there are not many studies that question such health issues concerning the population in general, especially when we look at these issues from the basic care point of view. The aim of this article is to present initial data on the subject of pain and functionality in individuals with musculoskeletal complaints enrolled in a primary care unit and prompt a discussion on how complete the services provided by these units are. This study was carried out in a primary care unit and various households, among subjects aging 20 years or older. A functionality assessment tool and a Visual Analogue Scale were applied, and social and demographic issues were also considered. By using these tools, it was made an attempt to evaluate the profile of individuals in association with their degree of musculoskeletal pain and the degree of functionality in the activities of their daily lives, ages and occupations. We found a predominance of women in both groups: 84.37% and 81.25%, respectively. Nearly half of all people with musculoskeletal pain were housewives, and the average age between groups was over 55.

Força muscular respiratória e perfil postural e nutricional em crianças com doenças neuromusculares

INTRODUCTION: Neuromuscular diseases that affect childrens are degenerative and chronic disorders that lead to functional, muscular and nutritional impairments. OBJECTIVE: Assess respiratory strength, postural and nutritional profile in childrens with neuromuscular disorder followed in on ambulatory outpatients clinics. MATERIALS AND METHODS: Patients with neuromuscular diseases were assessed in relation to respiratory muscle strength (PImax and PEmax), postural profile, walk capacity and nutrition assessment that includes body mass index, muscular mass and body fat percentage. RESULTS: Forty-one patients were included in the study. Male childrens were predominant in the group, 82,9% (n = 34) of them, while female were 17,1% (n = 7). The mean age was 9,65 ± 3,11 years. The most common disorder was Duchenne Miotonic Dystrophy, found in 43.9% (n = 18) of the children, followed by Spinal Muscular Atrophy, 9,75% (n = 4), Congenital muscular dystrophy, 7,31% (n = 3), Erbs scapulohumeral Dystrophy, Polyneuropathy and Congenital Myopathy, all in 4,9% (n = 2), while Progressive Muscular Dystrophy, Myasthenia Gravis, Charcoot Marie Toot, Emery Dreifuss was found in 2,43% (n = 1) of them. We found a decrease in respiratory muscle strength (PImax = 81 ± 24,3 cmH2O, 91% predict and PEmax = 70 ± 29,6 cmH2O, 72% predict), more evident in expiratory muscles. Lumbar hyperlordosis were found in 26 (64%) of the patients, 9 patients (22%) lost their ability to walk. In relation to nutritional profile, 90% (n = 30) showed one high incidence of muscular reserve loss and 52% (n = 13) of the patients body fat was bellow acceptable range. CONCLUSION: Multidisciplinary evaluation of children neuromuscular diseases may assist in establishing early Physical Therapy intervention to improve the quality of life of both patients and caregivers.

Dificultades y facilidades de la familia en el cuidado a los niños con parálisis cerebral

This is a qualitative research and exploratory-descriptive study aimed at finding out the familys abilities and difficulties in caring for children with cerebral palsy. Data was collected from seven families, between March and April 2009, through semi-structured interviews. The analysis followed the principles of thematic interpretation. The diffculties are more evident than the abilities and bring repercussions to daily life activities. Dealing with difficulties to control seizures, spasticity, changes in postural tone, occurrence of primitive reflexes, result in the complexity to perform simple tasks like feeding, bathing, locomotion, because children become increasingly dependent on caregivers. Over time, the difficulties give way to the routine and adaptation to the childs daily life. Strengthening relationships with families by improving their bonds and developing quality and comprehensive actions, promotes the welfare of the family/child with cerebral palsy.Pesquisa qualitativa, exploratoria, descritiva, que objetivou apreender as facilidades e as dificuldades da familia no cuidado as criancas com paralisia cerebral. Os dados foram coletados com sete familias, entre marco e abril de 2009, por meio de entrevista semiestruturada. A analise seguiu os principios da interpretacao tematica. As dificuldades sao mais evidenciadas que as facilidades e trazem repercussoes nas atividades de vida diaria. Lidar com convulsoes de dificil controle, espasticidade, alteracoes de tonus postural, presenca de reflexos primitivos implicam na complexidade em tarefas simples, como alimentacao, banho, locomocao, pois as criancas ficam, cada dia, mais dependentes dos cuidadores. Com o tempo, as dificuldades cedem lugar a rotina e a adaptacao a vida diaria da crianca. Estreitar relacoes com a familia, melhorando o vinculo e desenvolvendo acoes de qualidade e integrais, promovem o bemestar da familia/crianca com paralisia cerebral.

Family's abilities and difficulties in caring for children with cerebral palsy

This is a qualitative research and exploratory-descriptive study aimed at finding out the familys abilities and difficulties in caring for children with cerebral palsy. Data was collected from seven families, between March and April 2009, through semi-structured interviews. The analysis followed the principles of thematic interpretation. The diffculties are more evident than the abilities and bring repercussions to daily life activities. Dealing with difficulties to control seizures, spasticity, changes in postural tone, occurrence of primitive reflexes, result in the complexity to perform simple tasks like feeding, bathing, locomotion, because children become increasingly dependent on caregivers. Over time, the difficulties give way to the routine and adaptation to the childs daily life. Strengthening relationships with families by improving their bonds and developing quality and comprehensive actions, promotes the welfare of the family/child with cerebral palsy.Pesquisa qualitativa, exploratoria, descritiva, que objetivou apreender as facilidades e as dificuldades da familia no cuidado as criancas com paralisia cerebral. Os dados foram coletados com sete familias, entre marco e abril de 2009, por meio de entrevista semiestruturada. A analise seguiu os principios da interpretacao tematica. As dificuldades sao mais evidenciadas que as facilidades e trazem repercussoes nas atividades de vida diaria. Lidar com convulsoes de dificil controle, espasticidade, alteracoes de tonus postural, presenca de reflexos primitivos implicam na complexidade em tarefas simples, como alimentacao, banho, locomocao, pois as criancas ficam, cada dia, mais dependentes dos cuidadores. Com o tempo, as dificuldades cedem lugar a rotina e a adaptacao a vida diaria da crianca. Estreitar relacoes com a familia, melhorando o vinculo e desenvolvendo acoes de qualidade e integrais, promovem o bemestar da familia/crianca com paralisia cerebral.