Laura Filomena Santos de Araújo

Cuidado familiar à idosa em condição crônica por sofrimento psíquico

Resumen Este estudio tiene por objeto comprender qué repercusiones la búsqueda, la producción y la gestión de la atención a una persona anciana en condición crónica por el sufrimiento psíquico ocasiona en la vida de su familia. Considerándose que esa condición crónica exige atención permanente y progresiva, buscamos comprender el desgaste y las implicaciones que esta atención ocasiona a la familia. Se trata de un Estudio de Caso que utilizó la historia de vida focal como estrategia metodológica operacional con la entrevista en profundidad, con los miembros de la familia de una persona anciana con sufrimiento psíquico. Como forma de organización y análisis de los datos, utilizamos el Itinerario Terapéutico y sus herramientas. El estudio nos invita a reflexionar que la atención producida repercute no solo sobre la anciana con sufrimiento psíquico, pero también en la manera de vivir de cada cuidador y de la familia como un todo. Palabras clave: Sufrimiento psíquico. Enfermería. Familia 1Enfermeira, Mestre em Enfermagem pela Faculdade de Enfermagem da Universidade Federal de Mato Grosso (FAEN/UFMT), integrante do Grupo de Pesquisa “Enfermagem, Saúde, e Cidadania” (GPESC). Cuiabá – MT. Brasil. Email: marilenehiller@hotmail.com;2Enfermeira, Professora Doutora da FAEN/ UFMT, líder do GPESC. Cuiabá – MT. Brasil. Email: roseney@terra.com.br;3Enfermeira, Professora Doutora da FAEN/UFMT, membro do GPESC. Cuiabá – MT. Brasil. Email: laurafil1@yahoo.com.br PESQUISA RESEARCH INVESTIGACIÓN The objective of this study is to understand the repercussion of the search, production and management of care to an elderly person suffering with a psychic chronic condition has on the life of the family. Considering that such chronic condition requires a progressive and permanent care, we aimed to understand the wear and the implications that such care causes to the family. It handles of a Case Study, utilizing the History of the Focal Life as a methodological strategy turned operational by in-depth interviews with the members of the family of an elderly person under psychic suffering. As a form to organize and analyze the data we used the Therapeutic Itinerary and its tools. The study invites us to reflect that the care produced has a repercussion not only on the aged person under psychic suffering but also on the way of life of each nurse and of the family as a whole.Este estudio tiene por objeto comprender que repercusiones la busqueda, la produccion y la gestion de la atencion a una persona anciana en condicion cronica por el sufrimiento psiquico ocasiona en la vida de su familia. Considerandose que esa condicion cronica exige atencion permanente y progresiva, buscamos comprender el desgaste y las implicaciones que esta atencion ocasiona a la familia. Se trata de un Estudio de Caso que utilizo la historia de vida focal como estrategia metodologica operacional con la entrevista en profundidad, con los miembros de la familia de una persona anciana con sufrimiento psiquico. Como forma de organizacion y analisis de los datos, utilizamos el Itinerario Terapeutico y sus herramientas. El estudio nos invita a reflexionar que la atencion producida repercute no solo sobre la anciana con sufrimiento psiquico, pero tambien en la manera de vivir de cada cuidador y de la familia como un todo.

Produção, fluxo e análise de dados do sistema de informação em saúde: um caso exemplar

Os Sistemas de Informacao em Saude, tem sido utilizados como ferramentas capazes de armazenar a producao de dados para subsidiar a avaliacao em saude. Indagamos como esses dados sao produzidos e analisados e como o usuario e visualizado no sistema. Trata-se de um Estudo de Caso que possibilitou analisar a configuracao da rede de informacao em saude a partir do desenho analitico sobre a producao, fluxo e analise dos dados nos diferentes niveis de atencao a saude em relacao ao Sistema de Informacao da Atencao Basica e Sistema de Cadastro Nacional de Portadores de Hipertensao e Diabetes. Evidenciamos que os dados que compoem esses Sistemas de Informacao em Saude nao estao sendo analisados, consequentemente, nao permitem a analise situacional em saude e/ou producao de informacoes para o planejamento da assistencia e resolutividade das acoes de saude.Information Systems in Health has been used as a tool capable of storing the production data and information to support assessment in health. We ask how these data are produced and interpreted and how the user is displayed in the System. This is a Case Study that has examined the configuration of the network of health information from the design analysis on the production and flow of data generated and analyzed in different levels of health care in the Information System of Primary Care System and National Register of Persons with Hypertension and Diabetes. Show that the data that comprise those in Health Information Systems do not allow the situational analysis on health and/or production of information on the planning of care and resolution of health actions. DESCRIPTORS: Single Health System. Health services. Information services. PRODUCCIÓN, FLUJO Y ANÁLISIS DE DATOS DEL SISTEMA DE INFORMACIÓN PARA LA SALUD: UN CASO EJEMPLAR RESUMEN: Los Sistemas de Información en Salud han sido utilizados como una herramienta capaz de almacenar la producción de datos e información para apoyar la evaluación en salud. Para el presente estudio, investigamos cómo esos datos se producen y se interpretan, y cómo se muestra al usuario en el sistema. Es un Estudio de Caso en el que se ha examinado la configuración de la red de información para la salud, desde el diseño de análisis de la producción y el flujo de los datos generados y analizados en los diferentes niveles de atención a la salud en el Sistema de Información de Atención Primaria y del Registro Nacional de las Personas con Hipertensión y Diabetes. Los resultados muestran que los datos que componen esos Sistemas de Información en Salud no permiten el análisis de la situación en materia de salud y/o producción de información para la planificación de la atención y resolución de las acciones de salud. DESCRIPTORES: Sistema Único de Salud. Servicios de salud. Servicios de información.

A busca por cuidado empreendida por usuário com diabetes mellitus: um convite à reflexão sobre a integralidade em saúde

Estudo de caso que objetivou compreender a trajetoria empreendida por um usuario com Diabetes mellitus, proveniente do municipio de Sorriso-MT, ao buscar atendimento as suas necessidades de saude, bem como analisar a logica que o direcionou nessa busca, tendo por perspectiva o principio da integralidade da atencao a saude. A coleta de dados foi realizada pela entrevista em profundidade e nos permitiu desenhar o Itinerario Terapeutico empreendido pelo usuario na sua busca por cuidados. Dos dados emergiram tres agrupamentos de sentido, delineados como a evolucao da propria experiencia de adoecimento do usuario e a busca por cuidados, a sua percepcao do que seja cuidado e a negacao da sua condicao cronica. Compreender essa vivencia pessoal e subjetiva do adoecimento nos possibilita entender que a integralidade da atencao a saude depende de praticas profissionais que considerem o modo como as pessoas reconstroem suas vidas frente a condicao cronica por Diabetes mellitus.

Cuidado familiar na experiência do adoecimento crônico de um jovem

This study aimed at understanding family caregiving for a young person with chronic illness since childhood. He had a kidney disease and cancer. The researchers used a comprehensive approach as situational analysis from his life history. During fieldwork, researchers carried out in-depth interviews and direct observation aiming at apprehending elements they had heard, seen and experienced. These elements were then registered in a field diary. After vertical and horizontal reading, the corpus of analysis was identified and different aspects that permeated the narrative were highlighted. A genogram of the individual and his family was built. The individual’s chronic condition changed family life: they were compelled to look after him in a synergy of actions and constant motion that provided some support. New routines were created and other ways of overcoming the new obstacles were developed.

Prática de enfermagem na condição crônica decorrente de hanseníase

This study aimed at knowing how the nursing care in the prevention of Hansen’s Disease as well as of its complications is carried out in order to meet the principles of integrality and resolutivity at two units from the Health Family Strategy in DiamantinoMT. This is a case study and it is a qualitative research, wich happened in the year of 2007. The analysis corpus consisted of direct observation of the nursing care practices; the production of images of these practices; and of analysis of documents. The data analysis revealed the importance of the nursing care practices to the health services. We have also observed that these practices are carried out together with the other members of the health staff indicating to nurses that there is a way of working wich brings the possibility of widening the understanding of people’s health needs and of providing an integral health care. DESCRIPTORS: Nursing. Leprosy. Comprehensive health care. Family health program. PRÁCTICA DE ENFERMERÍA EN LA CONDICIÓN CRONICA DE HANSENÍASE RESUMÉN: El objetivo de este estúdio fue comprender cómo se efectiva la práctica de la atención de enfermería en la prevención de la Hanseníase y sus complicaciones con el fin de responder a los principios de integridad y resolutividad en dos unidades del Estrategia de Salud de la Familia en Diamantino-MT en el año 2007. Se trata de una pesquisa en la modalidad estudio de caso, carácter cualitativo. La composición del cuerpo de análisis incluyó la observación directa de las prácticas de atención de enfermería; producción de imagen de la misma; análisis documental. El análisis de los datos mostró la pertinencia de la práctica de la atención de enfermería para los servicios de la salud. Observamos también que esta práctica es compartida con otros miembros del equipo de salud, apuntando a una forma de actuar de la enfermería en que hay posibilidad de ampliar la comprensión de las necesidades de salud, de las personas asistidas y proporcionar la integralidad de la atención de la salud. DESCRIPTORES: Enfermería. Lepra. Atención integral de salud. Programa de salud familiar.El objetivo de este estudio fue comprender como se efectiva la practica de la atencion de enfermeria en la prevencion de la Hanseniase y sus complicaciones con el fin de responder a los principios de integridad y resolutividad en dos unidades del Estrategia de Salud de la Familia en Diamantino-MT en el ano 2007. Se trata de una pesquisa en la modalidad estudio de caso, caracter cualitativo. La composicion del cuerpo de analisis incluyo la observacion directa de las practicas de atencion de enfermeria; produccion de imagen de la misma; analisis documental. El analisis de los datos mostro la pertinencia de la practica de la atencion de enfermeria para los servicios de la salud. Observamos tambien que esta practica es compartida con otros miembros del equipo de salud, apuntando a una forma de actuar de la enfermeria en que hay posibilidad de ampliar la comprension de las necesidades de salud, de las personas asistidas y proporcionar la integralidad de la atencion de la salud.

DISTINCT TEMPORALITIES IN THE BREAST CANCER DISEASE PROCESS

Comprehensive approach study aimed understanding the reflections and contrasts between personal time and medical therapy protocol time in the life of a young woman with breast cancer. Addressed as a situational study and grounded in Beth’s life story about getting sick and dying of cancer at age 34, the study’s data collection process employed interviews, observation and medical record analysis. The construction of the analytic-synthetic box based on the chronology of Beth’s clinical progression, treatment phases and temporal perception of occurrences enabled us to point out a linear medical therapy protocol time identified by the diagnosis and treatment sequencing process. On the other hand, Beth’s experienced time was marked by simultaneous and non-linear events that generated suffering resulting from the disease. Such comprehension highlights the need for healthcare professionals to take into account the time experienced by the patient, thus providing an indispensable cancer therapeutic protocol with a personal character.Comprehensive approach study aimed understanding the reflections and contrasts between personal time and medical therapy protocol time in the life of a young woman with breast cancer. Addressed as a situational study and grounded in Beths life story about getting sick and dying of cancer at age 34, the studys data collection process employed interviews, observation and medical record analysis. The construction of the analytic-synthetic box based on the chronology of Beths clinical progression, treatment phases and temporal perception of occurrences enabled us to point out a linear medical therapy protocol time identified by the diagnosis and treatment sequencing process. On the other hand, Beths experienced time was marked by simultaneous and non-linear events that generated suffering resulting from the disease. Such comprehension highlights the need for healthcare professionals to take into account the time experienced by the patient, thus providing an indispensable cancer therapeutic protocol with a personal character.

A experiência de uma família que vivencia a condição crônica por anemia falciforme em dois adolescentes

Estudo sobre a experiencia de uma familia que vivencia a condicao cronica por anemia falciforme e que, ao tentar utilizar o SUS, necessitou, em algumas situacoes, acionar uma instância mediadora formal para garantir seu direito a saude. O objetivo deste estudo foi compreender como os servicos de saude tem participado do cuidado a pessoas com anemia falciforme e suas familias. Estudo qualitativo com coleta de dados realizada por meio de Historia de Vida Focal e operacionalizada por entrevista em profundidade. Evidenciou-se que, mesmo existindo Politicas e Programas de atencao a saude, cabe tambem aos profissionais se comprometerem para garantir o direito a saude dessas pessoas.

Mediação nas redes para o cuidado de pessoa e família que vivencia o câncer colorretal

The objective was to analyze how mediation affects the experience of seeking care in case of illness due to the chronic condition caused by colorectal cancer. A comprehensive research approach was used through the Focal Life History, put in practice through an in-depth interview. The study subjects were a person and his family, who experienced illness due to this chronic condition, as well people from their healthcare network, considered as mediators, totaling six interviewed subjects. The mediators acted by facilitating the ill persons access to health assets and resources. The logic these mediators imprinted in the search for care differs from the logic of public health services, but they influence each other through the bonds of friendship that permeate mediators and public servants. Mediation was observed as something positive in the users perspective, due to the dynamics it guarantees for care search networks.ABSTRACT: The objective was to analyze how mediation affects the experience of seeking care in case of illness due to the chronic condition caused by colorectal cancer. A comprehensive research approach was used through the Focal Life History, put in practice through an in-depth interview. The study subjects were a person and his family, who experienced illness due to this chronic condition, as well people from their healthcare network, considered as mediators, totaling six interviewed subjects. The mediators acted by facilitating the ill person’s access to health assets and resources. The logic these mediators imprinted in the search for care differs from the logic of public health services, but they influence each other through the bonds of friendship that permeate mediators and public servants. Mediation was observed as something positive in the user’s perspective, due to the dynamics it guarantees for care search networks. DESCRIPTORS : Social networking. Family. Social support. Family relations. Health care.

Ética em Pesquisa e a Terapia Comunitária Integrativa

This study discusses ethical issues in research involving human beings and seeks to understand the relationship between qualitative research and the ethical care guidelines for Integrative Community Therapy (ICT) circles based on Resolution 466/12 of the National Health Council of the Ministry of Health of Brazil. This is documentary research, which analyzed Resolution 466/12 and ICT circles seeking to make a connection between the ethical guidelines contained in both. The analysis of the corpus was directed toward the construction of the following results: the persons perception, cultural diversity and community. It also brings in consideration of the influence of the ethical dimension of the ICT circles on qualitative research. We conclude that ICT circles are innovative in the sense of the diversity of participants and respect for cultural and social differences. Thus, ICT circles promote acquisition of quality information for social research as well as compliance with the ethical guidelines outlined in Resolution No. 466/12.Este estudo discute os aspectos eticos em pesquisa envolvendo seres humanos e busca compreender a relacao entre os cuidados eticos da roda de Terapia Comunitaria Integrativa baseados na Resolucao no466/12, do Conselho Nacional de Saude, do Ministerio da Saude do Brasil. Trata-se de uma pesquisa documental, onde foram analisadas a Resolucao no466/12 e a roda de TCI buscando fazer uma relacao entre os cuidados eticos contidos em ambas. A analise do corpus orientou para a construcao dos seguintes resultados: percepcao da pessoa, da diversidade cultural e da coletividade. Traz, tambem, consideracoes a dimensao etica de Roda de TCI em pesquisa. Concluimos que roda de TCI e inovadora no sentido da diversidade de seus participantes e o respeito as diferencas culturais e sociais. Garante-se, por esta forma, a riqueza de informacoes que dela advem para pesquisas sociais, bem como, os cuidados eticos, dentre eles, os regulamentados pela Resolucao n° 466/12.

GENOGRAM AND ECO-MAP AS TOOLS FOR UNDERSTANDING FAMILY CARE IN CHRONIC ILLNESS OF THE YOUNG

Este estudo objetivou compreender a organizacao familiar em nucleos de cuidado e redes de sustentacao e apoio tecidas por familia de jovem que vivenciaram, na infância, doenca renal e, na adolescencia, o câncer. Estudo de situacao, utilizando historia de vida, operacionalizada por entrevista em profundidade e observacao. Para organizacao e analise dos dados, empregou-se as ferramentas analiticas genograma e ecomapa. O genograma mostrou a composicao familiar e as relacoes estabelecidas entre seus entes e os nucleos de cuidado, potencializando o cuidado continuado e prolongado exigido pelo jovem. O ecomapa contrastou a atuacao pontual e desvinculada da rede de apoio com a forma implicada, afetiva e continuada com que a rede de sustentacao participou da experiencia de adoecimento do jovem. Tais ferramentas permitem aos profissionais da saude conhecer a organizacao familiar para o cuidado, os recursos e redes com que conta para sustenta-la e ampara-la na experiencia de adoecimento cronico.The aim of this study was to understand family organization in care nucleus and supporting networks for families of young patients who experienced childhood kidney disease and adolescent cancer. It is a situational study using the history of life by means of in-depth interviews and observation. A genogram and an eco-map were used as analytical tools for data organization and analysis. The genogram showed family composition and the relationships established among its members and the care nucleus, strengthening the continuing and prolonged care required by the youth. The eco-map contrasted the punctual and unlinked work of the supporting network with the implicated, affective, and continuing work from the base network participation in the illness experienced by the youth. These tools allow health professionals to know the family organization in care, and the resources and networks with which they count on for support through the experience of a chronic illness.