Laura Mamo

Biomedicalization: Technoscientific Transformations of Health, Illness, and U.S. Biomedicine

The first social transformation of American medicine institutionally established medicine by the end of World War II. In the next decades, medicalization-the expansion of medical jurisdiction, authority, and practices into new realms-became widespread. Since about 1985, dramatic changes in both the organization and practices of contemporary biomedicine, implemented largely through the integration of technoscientific innovations, have been coalescing into what the authors call biomedicalization, a second transformation of American medicine. Biomedicalization describes the increasingly complex, multisited, multidirectional processes of medicalization, both extended and reconstituted through the new social forms of highly technoscientific biomedicine. The historical shift from medicalization to biomedicalization is one from control over biomedical phenomena to transformations of them. Five key interactive processes both engender biomedicalization and are produced through it: (1) the political economic reconstitution of the vast sector of biomedicine; (2) the focus on health itself and the elaboration of risk and surveillance biomedicines; (3) the increasingly technological and scientific nature of biomedicine; (4) transformations in how biomedical knowledges are produced, distributed, and consumed, and in medical information management; and (5) transformations of bodies to include new properties and the production of new individual and collective technoscientific identities.

Why Justice? Introduction to the Special Issue on Entanglements of Science, Ethics, and Justice

This special issue of Science, Technology, & Human Values assembles papers that consider relations among science, ethics, and justice. The papers are drawn from a 2011 National Science Foundation-sponsored workshop that brought together interdisciplinary scholars to consider, incorporate, and attend to the meanings, uses, and social consequences of ethical questions and justice ideals in technoscientific projects. The papers included in this special issue examine key areas that emerged from this workshop, including public participation, the production of knowledge, what counts as consent, ownership of biomaterials, and others. Together, the papers raise questions about new directions and articulations of power, justice, and inequalities in science and technology studies.

Development of a privacy and security policy framework for a multistate comparative effectiveness research network.

Comparative effectiveness research (CER) conducted in distributed research networks (DRNs) is subject to different state laws and regulations as well as institution-specific policies intended to protect privacy and security of health information. The goal of the Scalable National Network for Effectiveness Research (SCANNER) project is to develop and demonstrate a scalable, flexible technical infrastructure for DRNs that enables near real-time CER consistent with privacy and security laws and best practices. This investigation began with an analysis of privacy and security laws and state health information exchange (HIE) guidelines applicable to SCANNER participants from California, Illinois, Massachusetts, and the Federal Veteran’s Administration. A 7-member expert panel of policy and technical experts reviewed the analysis and gave input into the framework during 5 meetings held in 2011–2012. The state/federal guidelines were applied to 3 CER use cases: safety of new oral hematologic medications; medication therapy management for patients with diabetes and hypertension; and informational interventions for providers in the treatment of acute respiratory infections. The policy framework provides flexibility, beginning with a use-case approach rather than a one-size-fits-all approach. The policies may vary depending on the type of patient data shared (aggregate counts, deidentified, limited, and fully identified datasets) and the flow of data. The types of agreements necessary for a DRN may include a network-level and data use agreements. The need for flexibility in the development and implementation of policies must be balanced with responsibilities of data stewardship.

Queering the Fertility Clinic

A sociologist examines contemporary engagements of queer bodies and identities with fertility biomedicine. Drawing on social science, media culture, and the author’s own empirical research, three questions frame the analysis: 1. In what ways have queers on the gendered margins moved into the center and become implicated or central users of biomedicine’s fertility offerings? 2. In what ways is Fertility Inc. transformed by its own incorporation of various gendered and queered bodies and identities? And 3. What are the biosocial and bioethical implications of expanded queer engagements and possibilities with Fertility Inc.? The author argues that “patient” activism through web 2.0 coupled with a largely unregulated free-market of assisted reproduction has included various queer identities as “parents-in-waiting.” Such inclusions raise a set of ethical tensions regarding how to be accountable to the many people implicated in this supply and demand industry.

Queer Intimacies and Structural Inequalities New Directions in Stratified Reproduction

This article examines queer intimacies produced by and within a growing industry in assisting human reproduction. Queer users of fertility biomedicine such as gay men, gender queer, and transgender people are constituted within expanded biomedical fertility services in ways similar to their heterosexual counterparts, reproduce more than humans: they reproduce consumer marketplaces, normativities, notions of belonging, and intensifying inequalities. Yet as they negotiate and, at times, reinforce these contours, they also participate in new kinship forms as they demand inclusion in one of the most durable and supported social practices: having children.

Keeping an Eye on Power in Maintaining Racial Oppression and Race-Based Violence

Keeping an Eye on Power in Maintaining Racial Oppression and Race-Based Violence Katrina Karkazis, Laura Mamo & Ugo Edu To cite this article: Katrina Karkazis, Laura Mamo & Ugo Edu (2016) Keeping an Eye on Power in Maintaining Racial Oppression and Race-Based Violence, The American Journal of Bioethics, 16:4, 25-27, DOI: 10.1080/15265161.2016.1145291 To link to this article: http://dx.doi.org/10.1080/15265161.2016.1145291

Intimate Possibilities: The Beyond Bullying Project and Stories of LGBTQ Sexuality and Gender in US Schools

In this article, Jen Gilbert, Jessica Fields, Laura Mamo, and Nancy Lesko explore the Beyond Bullying Project, a multimedia, storytelling project that invited students, teachers, and community members in three US high schools to enter a private booth and share stories of lesbian, gay, bisexual, trans, and queer (LGBTQ) sexuality and gender. While recent policy making and educational research have focused on links between LGBTQ sexuality and gender, bullying, and other risks to educational and social achievement, Beyond Bullying aimed to identify the ordinary stories of LGBTQ sexuality and gender that circulate in schools and that an interventionist framing may obscure. After offering an overview of the method in Beyond Bullying, this article connects narratives of LGBTQ desire, family, and school life to the intimate possibilities—who students and teachers are, who they want to be, and the social worlds they want to build—available to them in schools.

Tending toward friendship: LGBTQ sexualities in US schools

In 2014, Beyond Bullying, a research project examining LGBTQ sexualities and lives at school, installed private storytelling booths in three US high schools. Students, teachers, and staff were invited to use the booths to share stories about LGBTQ sexualities—their stories often invoked the pleasures and disappointments of being and having a friend. This article analyzes narratives of friendship as told in the Beyond Bullying storytelling booths. Drawing on Foucault’s (1996) interview, ‘Friendship as a way of life,’ we explore participants’ stories of friendship as heralding ‘new relational modes’ that chart a liminal space between family and sexuality. These relational modes of friendship disrupt the familiar trope of the ‘ally’ in anti-bullying programs and complicate what empirical research on LGBTQ youth calls, ‘peer social support.’ Theorizing friendship allows LGBTQ sexuality in schools to reside in an ethics of discomfort, which accommodates complex social relations and varied forms of desire, intimacy, and yearning.