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Dive into the research topics where Liselot Kerpershoek is active.

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Featured researches published by Liselot Kerpershoek.


Aging & Mental Health | 2018

Needs and quality of life of people with middle-stage dementia and their family carers from the European Actifcare study. When informal care alone may not suffice

Liselot Kerpershoek; Marjolein E. de Vugt; Claire A. G. Wolfs; Bob Woods; Hannah Jelley; Martin Orrell; Astrid Stephan; Anja Bieber; Gabriele Meyer; Geir Selbæk; Ron Handels; Anders Wimo; Louise Hopper; Kate Irving; Maria Marques; Manuel Gonçalves-Pereira; Elisa Portolani; Orazio Zanetti; Frans R.J. Verhey

ABSTRACT Objective: The Actifcare (Access to timely formal care) study investigated needs of people with dementia and their families during the phase in which formal care is being considered, and examined whether higher need levels are related to lower quality of life (QOL). Method: From eight European countries 451 people with dementia and their carers participated. Needs were measured with the Camberwell Assessment of Need for the Elderly. QOL was measured with the QOL-AD, and carer quality of life was measured with the CarerQol. The relationship between needs and QOL was analysed with multiple regression analyses. Results: Needs were expressed in the domains of psychological distress, daytime activities, company and information. People with dementia rated their unmet needs significantly lower than their carers: the mean number of self-rated unmet needs was 0.95, whereas the mean proxy ratings were 1.66. For met needs, the self-rated mean was 5.5 and was 8 when proxy-rated. The level of needs reported was negatively associated with QOL for both. Conclusion: The study results show that informal carers reported almost twice as many needs as people with dementia. The domains in which needs are expressed should be the primary focus for interventions to support QOL. The perspectives of people with dementia are informative when identifying needs.


BMC Geriatrics | 2018

Barriers and facilitators to the access to and use of formal dementia care: findings of a focus group study with people with dementia, informal carers and health and social care professionals in eight European countries

Astrid Stephan; Anja Bieber; Louise Hopper; Rachael Joyce; Kate Irving; Orazio Zanetti; Elisa Portolani; Liselot Kerpershoek; Frans R.J. Verhey; Marjolein E. de Vugt; Claire A. G. Wolfs; Siren Eriksen; Janne Røsvik; Maria Marques; Manuel Gonçalves-Pereira; Britt-Marie Sjölund; Hannah Jelley; Bob Woods; Gabriele Meyer

BackgroundPeople with dementia and informal carers often access formal care late in the process of dementia. The barriers and facilitators to service use from the perspectives of different stakeholders involved are not well understood. Thus, we aimed to explore the barriers and facilitators of access to and utilisation of formal care from the perspectives of people with dementia, their informal carers and health and social care professionals.MethodFocus groups with people with dementia, informal carers and professionals were conducted in eight European countries. Recruitment targeted people with dementia, informal carers with experience of formal care and professionals involved in providing (access to) formal care. Qualitative content analysis using open coding was used on a national level. Cross-national synthesis was based on the translated national reports.ResultsOverall, 55 focus groups with 261 participants were conducted, involving 51 people with dementia, 96 informal carers and 114 professionals. Sixteen categories describing barriers and facilitators were identified, referring to three global themes: Aspects related to 1) individuals involved, 2) the system or 3) overarching aspects. The attitudes and beliefs of people with dementia and their carers may have a major impact, and they often serve as barriers. Formal care was perceived as a threat to the individual independence of people with dementia and was thus avoided as long as possible. A healthcare professional serving as a constant key contact person could be an essential facilitator to overcome these barriers. Contact should be initiated proactively, as early as possible, and a trusting and consistent relationship needs to be established. Beyond that, the findings largely confirm former research and show that barriers to accessing and using formal care still exist across Europe despite a number of national and European initiatives.ConclusionFurther investigations are needed to elaborate how the concept of a key contact person could be integrated with existing case management approaches and how the independence and autonomy of people with dementia can be strengthened when formal care needs to be accessed and used. These may be meaningful facilitators regarding enhanced access to formal care for people with dementia and their families.


BMC Health Services Research | 2016

Access to timely formal dementia care in Europe: protocol of the Actifcare (ACcess to Timely Formal Care) study

Liselot Kerpershoek; Marjolein E. de Vugt; Claire A. G. Wolfs; Hannah Jelley; Martin Orrel; Bob Woods; Astrid Stephan; Anja Bieber; Gabriele Meyer; Knut Engedal; Geir Selbæk; Ron Handels; Anders Wimo; Louise Hopper; Kate Irving; Maria Marques; Manuel Gonçalves-Pereira; Elisa Portolani; Orazio Zanetti; Frans R.J. Verhey


BMC Health Services Research | 2017

Perspectives of policy and political decision makers on access to formal dementia care : expert interviews in eight European countries

Anja Broda; Anja Bieber; Gabriele Meyer; Louise Hopper; Rachael Joyce; Kate Irving; Orazio Zanetti; Elisa Portolani; Liselot Kerpershoek; Frans R.J. Verhey; Marjolein E. de Vugt; Claire A. G. Wolfs; Siren Eriksen; Janne Røsvik; Maria Marques; Manuel Gonçalves-Pereira; Britt Marie Sjölund; Bob Woods; Hannah Jelley; Martin Orrell; Astrid Stephan


Aging & Mental Health | 2017

Caregiver profiles in dementia related to quality of life, depression and perseverance time in the European Actifcare study: the importance of social health.

Eveline P.C.J. Janssen; Marjolein E. de Vugt; Sebastian Köhler; Claire A. G. Wolfs; Liselot Kerpershoek; Ron Handels; Martin Orrell; Bob Woods; Hannah Jelley; Astrid Stephan; Anja Bieber; Gabriele Meyer; Knut Engedal; Geir Selbæk; Anders Wimo; Kate Irving; Louise Hopper; Maria Marques; Manuel Gonçalves-Pereira; Elisa Portolani; Orazio Zanetti; Frans R.J. Verhey


Zeitschrift Fur Gerontologie Und Geriatrie | 2018

Access to community care for people with dementia and their informal carers: Case vignettes for a European comparison of structures and common pathways to formal care

Anja Bieber; Astrid Stephan; H. Verbeek; Frans R.J. Verhey; Liselot Kerpershoek; Claire A. G. Wolfs; M.E. de Vugt; Robert T. Woods; Janne Røsvik; Geir Selbæk; Britt-Marie Sjölund; Anders Wimo; Louise Hopper; Kate Irving; Maria Marques; Manuel Gonçalves-Pereira; Elisa Portolani; Orazio Zanetti; Gabriele Meyer


Journal of Alzheimer's Disease | 2018

Quality of Life, Care Resource Use, and Costs of Dementia in 8 European Countries in a Cross-Sectional Cohort of the Actifcare Study

Ron Handels; Anders Sköldunger; Anja Bieber; Rhiannon Tudor Edwards; Manuel Gonçalves-Pereira; Louise Hopper; Kate Irving; Hannah Jelley; Liselot Kerpershoek; Maria Marques; Gabriele Meyer; Mona Michelet; Elisa Portolani; Janne Rsvik; Geir Selbæk; Astrid Stephan; Marjolein E. de Vugt; Claire A. G. Wolfs; Bob Woods; Orazio Zanetti; Frans R.J. Verhey; Anders Wimo


BMC HEALTH SERVICES RESEARCH , 16 (ARTN 620) (2016) | 2016

Access to timely formal dementia care in Europe: protocol of the Actifcare (ACcess to Timely Formal Care) study(vol 16, 423, 2016)

Liselot Kerpershoek; M de Vugt; Claire A. G. Wolfs; Hannah Jelley; Martin Orrell; Bob Woods; Astrid Stephan; Anja Bieber; Gabriele Meyer; Knut Engedal; Geir Selbæk; Ron Handels; Anders Wimo; Louise Hopper; Kate Irving; Maria Marques; Manuel Gonçalves-Pereira; Elisa Portolani; Orazio Zanetti; Frans R.J. Verhey


Archive | 2015

Access to formal dementia care: Results from a systematic review and a European focus group study

A. Stephen; Frans R.J. Verhey; M. de Vugt; Claire A. G. Wolfs; C. Handels; Ron Handels; H. Verbeek; Liselot Kerpershoek; Anja Bieber; Gabriele Meyer; M.G. Pereira; Maria Marques; H. Barrios; C. Balsinha; Robert T. Woods; Anders Wimo; G. Selbaeck; Kate Irving; Orazio Zanetti


Archive | 2015

Background and rationale of the Actifcare project

Frans R.J. Verhey; M. de Vugt; Claire A. G. Wolfs; Ron Handels; H. Verbeek; Liselot Kerpershoek; Astrid Stephan; Anja Bieber; Gabriele Meyer; M.G. Pereira; Maria Marques; H. Barrios; C. Balsinha; Robert T. Woods; Anders Wimo; G. Selbaeck; Kate Irving; Orazio Zanetti

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Kate Irving

Dublin City University

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Maria Marques

Universidade Nova de Lisboa

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