Mayse Itagiba Rooke

Resiliência Familiar e Desenvolvimento Humano: Análise da Produção Científica

Studies on family resilience have increased in recent years, but they are still scarce. The main goal of this study is to present an overview of national and international scientific production in the area of family resilience by analyzing abstracts published between 1990 and 2011 according to the following criteria: research topics, sample size, instruments/techniques used for data collection. The databases PsycInfo, SpringerLink, Wiley Online Library and BVS- Psi were searched, and 140 publications were found, being 43% research articles, 29% theoretical papers/literature review, 18% books/book chapters and 10% theses/dissertations. The results suggest the need to expand the studies on family resilience, and to use a greater number of participants and of instruments/techniques combined for data collection.

Indicativos de resiliência familiar em famílias de crianças com síndrome de Down

This study aims to characterize and analyze family resilience in families of children with Down syndrome. Five families consisting of father, mother, and children, one child with Down syndrome, participated in this research. The instruments used were: the Characterization of Family System Questionnaire, which was answered by the mother; the Coping Strategies Inventory, which was responded by both parents separately; and interviews conducted with parents and typically developing children. The families were visited three times. Results indicate that in the face of bad events, mainly health problems related to Down syndrome, the families showed ability to make meaning or sense of adversity, and to organize themselves in a cooperative way with dialogue and closer ties. Family resilience was observed in all families investigated. The most frequently used coping strategy was positive reappraisal, while the less frequently used was escape-avoidance.

Relação Fraternal e Síndrome de Down: Um Estudo Comparativo

As relacoes fraternais em familias com filhos com e sem sindrome de Down (SD) tem sido pouco investigadas no Brasil. Este estudo descreve o funcionamento familiar e compara os relatos de pais e maes sobre a relacao fraternal em dois tipos de familias, identificando similaridades e diferencas nos relatos destes. Participaram do estudo oito (n = 8) familias compostas por mae, pai e dois filhos, sendo que em quatro delas havia somente membros com desenvolvimento tipico (DT) e nas demais (n = 4) havia um membro com sindrome de Down (F-SD), totalizando oito diades de irmaos, de ambos os sexos (masculino - SD - n=2, DT - n=2; feminino - SD - n=2, DT - n=2), com idades entre cinco a 15 anos. Utilizaram-se o Questionario de Caracterizacao do Sistema Familiar, que foi respondido pelas maes; e entrevistas semiestruturadas , cujos genitores responderam. Os resultados indicam similaridades na rotina diaria das familias, sendo as maes as principais responsaveis pelas tarefas domesticas e cuidados com os filhos, em ambos os tipos de familias. As relacoes fraternais foram descritas, pelos pais e maes, como Mistas e Amistosas em ambos os tipos de familias, caracterizando, portanto, como sendo positivas. O filho com DT foi indicando como lider na maioria das familias com um membro com SD e nas familias com as diades com DT, a maioria dos genitores indicou o filho mais velho. Os dados encontrados sugerem coerencia com os da literatura atual.