Clarissa Bohrer da Silva

Cotidiano de adolescentes com o vírus da imunodeficiência humana em tratamento

Aim: to describe the daily living of adolescents infected with HIV in treatment. Methods: qualitative research developed in the first semester of 2012, in a teaching hospital in the southern region of Brazil, with eight adolescents from 13 to 19 years old. Data were produced through Sensitivity and Creativity Dynamics called Talking Map. For data treatment, we developed content analysis. Results: four thematic nuclei emerged: from rebellion to acceptance of diagnosis and treatment; understanding the reasons for treatment; wanting to taking treatment and receiving help; difficulties of following the routine of ingesting medicine always, all day and every day. Conclusions: we concluded the importance of knowing the daily living through the adolescents to develop strategies of health and supporting education, promoted through nursing care during health interdisciplinary assistance glimpsing autonomy to the adolescents on caring for oneself.

Atenção à saúde de crianças e adolescentes com HIV: avaliação da longitudinalidade

Resumo Objetivo Avaliar a presenca do atributo longitudinalidade da Atencao Primaria a Saude, na experiencia de profissionais dos municipios de procedencia de criancas e adolescentes com HIV, acompanhados em servico especializado. Metodos Estudo transversal realizado em 25 municipios do Rio Grande do Sul com 527 profissionais da saude. Utilizou-se questionario de caracterizacao e o instrumento Primary Care Assessment Tool-Brasil, versao Profissionais. Foram utilizados Teste Qui-Quadrado de Pearson e Regressao de Poisson. Resultados A longitudinalidade apresentou-se satisfatoria (p=6,96). Associaram-se ao alto [...]

Avaliação da atenção primária à saúde para HIV/AIDS: relato da produção de dados da pesquisa

Objetivo: relatar a experiencia de coleta de dados desenvolvida por estudantes do programa de pos-graduacao e de graduacao em Enfermagem utilizando o PCATool-Brasil para a avaliacao da saude de criancas e adolescentes com HIV, bem como ressaltar a importância dessa etapa para alcancar consistencia em seus resultados. Metodo : relato de experiencia da coleta de dados de uma pesquisa quantitativa de delineamento transversal com instrumento PCATool-Brasil, aplicado aos profissionais da atencao primaria a saude e aos cuidadores/familiares de criancas e adolescentes vivendo com HIV. Resultados : descreve como foi a aproximacao com o campo de coleta de dados, a capacitacao e a certificacao dos coletadores da pesquisa e apresentar os elementos facilitadores e dificultadores da coleta. Consideracoes finais: os elementos expressos durante a aplicacao do instrumento indicaram que existem fatores que podem interferir na conducao da pesquisa. Para minimiza-los e importante o planejamento da etapa de campo e da execucao do estudo.

Qualidade da Atenção Primária à Saúde de crianças e adolescentes vivendo com HIV

Objetivo: avaliar a qualidade de atenção à saúde da criança e adolescente vivendo com HIV, entre os diferentes tipos de serviço de Atenção Primária à Saúde, de Santa Maria, Rio Grande do Sul. Método: estudo transversal, desenvolvido com 118 profissionais da Atenção Primária à Saúde. Utilizou-se o Instrumento de Avaliação da Atenção Primária, versão Profissionais. Para verificação das variáveis associadas ao alto escore, foi utilizada a Regressão de Poisson. Resultados: os profissionais da Estratégia Saúde da Família, quando comparados aos de Unidades Básicas de Saúde, obtiveram maior grau de orientação à atenção primária, tanto pelo escore geral quanto derivado, assim como nos atributos integralidade e orientação comunitária. Especialização em Atenção Primária à Saúde, outro emprego, vínculo estatutário mostraram-se associados à qualidade da atenção. Conclusão: destaca-se a Estratégia Saúde da Família com maior qualidade de atenção à saúde da criança e adolescente vivendo com HIV, entretanto, a cobertura ainda é baixa. Evidencia-se a necessidade de ampliação dessa cobertura, bem como investimento na qualificação profissional direcionada para Atenção Primária e na efetivação dos profissionais, por meio de concurso público, além de programa de aperfeiçoamento que reconheça a demanda do cuidado, nesses cenários, às crianças e adolescentes infectadas pelo HIV.Abstract Objective: to evaluate the quality of health care for children and adolescents living with HIV, among the different types of Primary Health Care services of Santa Maria, Rio Grande do Sul. Method: cross-sectional study, developed with 118 Primary Health Care professionals. The Primary Care Evaluation Instrument, Professional version, was used. For verification of the variables associated with the high score, Poisson Regression was used. Results: the professionals of the Family Health Strategy, when compared to those of the Primary Health Units, obtained a greater degree of orientation to primary care, both for the overall score and for the derived attributes score, as well as for the integrality and community orientation attributes. A specialization in Primary Health Care, other employment and a statutory work contract were associated with quality of care. Conclusion: the Family Health Strategy was shown to provide higher quality health care for children and adolescents living with HIV, however, the coverage is still low. The need was highlighted to expand this coverage and invest in vocational training directed toward Primary Care and making the professionals effective, through public selection procedure, as well as an improvement program that recognizes the care requirements, in these settings, of children and adolescents infected with HIV.

La calidad de la Atención Primaria de la Salud de niños y adolescentes que viven con HIV

Objetivo: avaliar a qualidade de atenção à saúde da criança e adolescente vivendo com HIV, entre os diferentes tipos de serviço de Atenção Primária à Saúde, de Santa Maria, Rio Grande do Sul. Método: estudo transversal, desenvolvido com 118 profissionais da Atenção Primária à Saúde. Utilizou-se o Instrumento de Avaliação da Atenção Primária, versão Profissionais. Para verificação das variáveis associadas ao alto escore, foi utilizada a Regressão de Poisson. Resultados: os profissionais da Estratégia Saúde da Família, quando comparados aos de Unidades Básicas de Saúde, obtiveram maior grau de orientação à atenção primária, tanto pelo escore geral quanto derivado, assim como nos atributos integralidade e orientação comunitária. Especialização em Atenção Primária à Saúde, outro emprego, vínculo estatutário mostraram-se associados à qualidade da atenção. Conclusão: destaca-se a Estratégia Saúde da Família com maior qualidade de atenção à saúde da criança e adolescente vivendo com HIV, entretanto, a cobertura ainda é baixa. Evidencia-se a necessidade de ampliação dessa cobertura, bem como investimento na qualificação profissional direcionada para Atenção Primária e na efetivação dos profissionais, por meio de concurso público, além de programa de aperfeiçoamento que reconheça a demanda do cuidado, nesses cenários, às crianças e adolescentes infectadas pelo HIV.Abstract Objective: to evaluate the quality of health care for children and adolescents living with HIV, among the different types of Primary Health Care services of Santa Maria, Rio Grande do Sul. Method: cross-sectional study, developed with 118 Primary Health Care professionals. The Primary Care Evaluation Instrument, Professional version, was used. For verification of the variables associated with the high score, Poisson Regression was used. Results: the professionals of the Family Health Strategy, when compared to those of the Primary Health Units, obtained a greater degree of orientation to primary care, both for the overall score and for the derived attributes score, as well as for the integrality and community orientation attributes. A specialization in Primary Health Care, other employment and a statutory work contract were associated with quality of care. Conclusion: the Family Health Strategy was shown to provide higher quality health care for children and adolescents living with HIV, however, the coverage is still low. The need was highlighted to expand this coverage and invest in vocational training directed toward Primary Care and making the professionals effective, through public selection procedure, as well as an improvement program that recognizes the care requirements, in these settings, of children and adolescents infected with HIV.

Quality of Primary Health Care for children and adolescents living with HIV.

Objetivo: avaliar a qualidade de atenção à saúde da criança e adolescente vivendo com HIV, entre os diferentes tipos de serviço de Atenção Primária à Saúde, de Santa Maria, Rio Grande do Sul. Método: estudo transversal, desenvolvido com 118 profissionais da Atenção Primária à Saúde. Utilizou-se o Instrumento de Avaliação da Atenção Primária, versão Profissionais. Para verificação das variáveis associadas ao alto escore, foi utilizada a Regressão de Poisson. Resultados: os profissionais da Estratégia Saúde da Família, quando comparados aos de Unidades Básicas de Saúde, obtiveram maior grau de orientação à atenção primária, tanto pelo escore geral quanto derivado, assim como nos atributos integralidade e orientação comunitária. Especialização em Atenção Primária à Saúde, outro emprego, vínculo estatutário mostraram-se associados à qualidade da atenção. Conclusão: destaca-se a Estratégia Saúde da Família com maior qualidade de atenção à saúde da criança e adolescente vivendo com HIV, entretanto, a cobertura ainda é baixa. Evidencia-se a necessidade de ampliação dessa cobertura, bem como investimento na qualificação profissional direcionada para Atenção Primária e na efetivação dos profissionais, por meio de concurso público, além de programa de aperfeiçoamento que reconheça a demanda do cuidado, nesses cenários, às crianças e adolescentes infectadas pelo HIV.Abstract Objective: to evaluate the quality of health care for children and adolescents living with HIV, among the different types of Primary Health Care services of Santa Maria, Rio Grande do Sul. Method: cross-sectional study, developed with 118 Primary Health Care professionals. The Primary Care Evaluation Instrument, Professional version, was used. For verification of the variables associated with the high score, Poisson Regression was used. Results: the professionals of the Family Health Strategy, when compared to those of the Primary Health Units, obtained a greater degree of orientation to primary care, both for the overall score and for the derived attributes score, as well as for the integrality and community orientation attributes. A specialization in Primary Health Care, other employment and a statutory work contract were associated with quality of care. Conclusion: the Family Health Strategy was shown to provide higher quality health care for children and adolescents living with HIV, however, the coverage is still low. The need was highlighted to expand this coverage and invest in vocational training directed toward Primary Care and making the professionals effective, through public selection procedure, as well as an improvement program that recognizes the care requirements, in these settings, of children and adolescents infected with HIV.

Ética na pesquisa com adolescentes que vivem com HIV/Aids

Ethics in research on adolescents living with HIV/AIDS The article have sought to portray the experience of ensuring observance of the ethical aspects involved in data gathering with adolescents living with HIV/Aids. Data gathering in two studies is reported: one , using a quantitative approach with a cross-sectional design, with 23 adolescents, and another with a qualitative focus, with 8 adolescents. For both, the criteria for participation included current use of anti-retroviral therapy, awareness of their diagnosis, and being subject to outpatient monitoring at a specialized care service. Guaranteeing the ethical principles ‒ autonomy, doing no harm, beneficence and justice involved: how to approach the adolescents to invite them to participate in the survey, the adolescents’ fears regarding the research, the protection of family members and caregivers, the revelation of the diagnosis to the adolescent and to third parts, and confidentiality. The report of our experience aims to contribute to the discussion of issues involving the guarantee of ethical aspects in research.ResumenEl presente trabajo tiene como objetivo informar la experiencia de garantizar los aspectos eticos involucrados en la etapa de recoleccion de datos de los adolescentes que viven con el VIH/SIDA. Esto es un relato de la reco-leccion de datos de dos investigaciones; una de un enfoque cuantitativo y diseno cruzado con 23 adolescentes y otra de enfoque cualitativo con 8 adolescentes. Para ambas, los criterios de participacion de los adolescen-tes incluyen: estar en uso de la terapia anti-retroviral, saber sobre su diagnostico y estar bajo tratamiento de servicio especializado. La garantia de principios eticos ‒ autonomia, no maleficencia, beneficencia y justicia involucro: la forma de abordaje para participar en la investigacion, temores de los adolescentes con respecto a la investigacion, proteccion de los miembros familiares y cuidadores, la revelacion del diagnostico al adoles-cente y a terceras partes, y sigilo. El estudio pretende contribuir a la discusion de cuestiones relacionadas con la garantia de aspectos eticos en la investigacion.Palabras-clave: Sindrome de Inmunodeficiencia Adquirida. VIH. Salud de los adolescentes. Etica de la investigacion. Enfermeria.Resumo Etica na pesquisa com adolescentes que vivem com HIV/AidsCom o presente trabalho, objetivou-se relatar a experiencia de garantir os aspectos eticos envolvidos na etapa de coleta de dados com adolescentes que vivem com HIV/aids. Trata-se de relato de coleta de dados de duas pesquisas: uma, de abordagem quantitativa e delineamento transversal, com 23 adolescentes, e outra, de enfoque qualitativo, com 8 adolescentes. Para ambas, os criterios de participacao dos adolescentes incluiram: estar em uso de terapia antirretroviral, ter conhecimento de seu diagnostico e manter seguimento ambulato-rial em servico especializado. A garantia dos principios eticos – autonomia, nao maleficencia, beneficencia e justica – envolveram: a forma de abordagem para participar da pesquisa, os receios dos adolescentes quanto a pesquisa, a protecao dos familiares/cuidadores, a revelacao do diagnostico ao adolescente e a terceiros e o sigilo. O relato da experiencia pretende contribuir para a discussao acerca das questoes que envolvem a garantia dos aspectos eticos nas pesquisas.Palavras-chave: Sindrome da imunodeficiencia adquirida. HIV. Saude do adolescente. Etica em pesquisa. Enfermagem.AbstractEthics in research on adolescents living with HIV/AIDS The article have sought to portray the experience of ensuring observance of the ethical aspects involved in data gathering with adolescents living with HIV/Aids. Data gathering in two studies is reported: one , using a quantitative approach with a cross-sectional design, with 23 adolescents, and another with a qualitative fo-cus, with 8 adolescents. For both, the criteria for participation included current use of anti-retroviral therapy, awareness of their diagnosis, and being subject to outpatient monitoring at a specialized care service. Guaran-teeing the ethical principles ‒ autonomy, doing no harm, beneficence and justice involved: how to approach the adolescents to invite them to participate in the survey, the adolescents’ fears regarding the research, the protection of family members and caregivers, the revelation of the diagnosis to the adolescent and to third parts, and confidentiality. The report of our experience aims to contribute to the discussion of issues involving the guarantee of ethical aspects in research.Keywords: Acquired Immunodeficiency Syndrome. HIV. Adolescent health. Research ethics. Nursing.Abstract The article have sought to portray the experience of ensuring observance of the ethical aspects involved in data gathering with adolescents living with HIV/Aids. Data gathering in two studies is reported: one , using a quantitative approach with a cross-sectional design, with 23 adolescents, and another with a qualitative fo-cus, with 8 adolescents. For both, the criteria for participation included current use of anti-retroviral therapy, awareness of their diagnosis, and being subject to outpatient monitoring at a specialized care service. Guaran-teeing the ethical principles ‒ autonomy, doing no harm, beneficence and justice involved: how to approach the adolescents to invite them to participate in the survey, the adolescents’ fears regarding the research, the protection of family members and caregivers, the revelation of the diagnosis to the adolescent and to third parts, and confidentiality. The report of our experience aims to contribute to the discussion of issues involving the guarantee of ethical aspects in research.

Ethics in research on adolescents living with HIV/AIDS

Ethics in research on adolescents living with HIV/AIDS The article have sought to portray the experience of ensuring observance of the ethical aspects involved in data gathering with adolescents living with HIV/Aids. Data gathering in two studies is reported: one , using a quantitative approach with a cross-sectional design, with 23 adolescents, and another with a qualitative focus, with 8 adolescents. For both, the criteria for participation included current use of anti-retroviral therapy, awareness of their diagnosis, and being subject to outpatient monitoring at a specialized care service. Guaranteeing the ethical principles ‒ autonomy, doing no harm, beneficence and justice involved: how to approach the adolescents to invite them to participate in the survey, the adolescents’ fears regarding the research, the protection of family members and caregivers, the revelation of the diagnosis to the adolescent and to third parts, and confidentiality. The report of our experience aims to contribute to the discussion of issues involving the guarantee of ethical aspects in research.ResumenEl presente trabajo tiene como objetivo informar la experiencia de garantizar los aspectos eticos involucrados en la etapa de recoleccion de datos de los adolescentes que viven con el VIH/SIDA. Esto es un relato de la reco-leccion de datos de dos investigaciones; una de un enfoque cuantitativo y diseno cruzado con 23 adolescentes y otra de enfoque cualitativo con 8 adolescentes. Para ambas, los criterios de participacion de los adolescen-tes incluyen: estar en uso de la terapia anti-retroviral, saber sobre su diagnostico y estar bajo tratamiento de servicio especializado. La garantia de principios eticos ‒ autonomia, no maleficencia, beneficencia y justicia involucro: la forma de abordaje para participar en la investigacion, temores de los adolescentes con respecto a la investigacion, proteccion de los miembros familiares y cuidadores, la revelacion del diagnostico al adoles-cente y a terceras partes, y sigilo. El estudio pretende contribuir a la discusion de cuestiones relacionadas con la garantia de aspectos eticos en la investigacion.Palabras-clave: Sindrome de Inmunodeficiencia Adquirida. VIH. Salud de los adolescentes. Etica de la investigacion. Enfermeria.Resumo Etica na pesquisa com adolescentes que vivem com HIV/AidsCom o presente trabalho, objetivou-se relatar a experiencia de garantir os aspectos eticos envolvidos na etapa de coleta de dados com adolescentes que vivem com HIV/aids. Trata-se de relato de coleta de dados de duas pesquisas: uma, de abordagem quantitativa e delineamento transversal, com 23 adolescentes, e outra, de enfoque qualitativo, com 8 adolescentes. Para ambas, os criterios de participacao dos adolescentes incluiram: estar em uso de terapia antirretroviral, ter conhecimento de seu diagnostico e manter seguimento ambulato-rial em servico especializado. A garantia dos principios eticos – autonomia, nao maleficencia, beneficencia e justica – envolveram: a forma de abordagem para participar da pesquisa, os receios dos adolescentes quanto a pesquisa, a protecao dos familiares/cuidadores, a revelacao do diagnostico ao adolescente e a terceiros e o sigilo. O relato da experiencia pretende contribuir para a discussao acerca das questoes que envolvem a garantia dos aspectos eticos nas pesquisas.Palavras-chave: Sindrome da imunodeficiencia adquirida. HIV. Saude do adolescente. Etica em pesquisa. Enfermagem.AbstractEthics in research on adolescents living with HIV/AIDS The article have sought to portray the experience of ensuring observance of the ethical aspects involved in data gathering with adolescents living with HIV/Aids. Data gathering in two studies is reported: one , using a quantitative approach with a cross-sectional design, with 23 adolescents, and another with a qualitative fo-cus, with 8 adolescents. For both, the criteria for participation included current use of anti-retroviral therapy, awareness of their diagnosis, and being subject to outpatient monitoring at a specialized care service. Guaran-teeing the ethical principles ‒ autonomy, doing no harm, beneficence and justice involved: how to approach the adolescents to invite them to participate in the survey, the adolescents’ fears regarding the research, the protection of family members and caregivers, the revelation of the diagnosis to the adolescent and to third parts, and confidentiality. The report of our experience aims to contribute to the discussion of issues involving the guarantee of ethical aspects in research.Keywords: Acquired Immunodeficiency Syndrome. HIV. Adolescent health. Research ethics. Nursing.Abstract The article have sought to portray the experience of ensuring observance of the ethical aspects involved in data gathering with adolescents living with HIV/Aids. Data gathering in two studies is reported: one , using a quantitative approach with a cross-sectional design, with 23 adolescents, and another with a qualitative fo-cus, with 8 adolescents. For both, the criteria for participation included current use of anti-retroviral therapy, awareness of their diagnosis, and being subject to outpatient monitoring at a specialized care service. Guaran-teeing the ethical principles ‒ autonomy, doing no harm, beneficence and justice involved: how to approach the adolescents to invite them to participate in the survey, the adolescents’ fears regarding the research, the protection of family members and caregivers, the revelation of the diagnosis to the adolescent and to third parts, and confidentiality. The report of our experience aims to contribute to the discussion of issues involving the guarantee of ethical aspects in research.

Ética en la investigación con adolescentes que viven con el VIH/SIDA

Ethics in research on adolescents living with HIV/AIDS The article have sought to portray the experience of ensuring observance of the ethical aspects involved in data gathering with adolescents living with HIV/Aids. Data gathering in two studies is reported: one , using a quantitative approach with a cross-sectional design, with 23 adolescents, and another with a qualitative focus, with 8 adolescents. For both, the criteria for participation included current use of anti-retroviral therapy, awareness of their diagnosis, and being subject to outpatient monitoring at a specialized care service. Guaranteeing the ethical principles ‒ autonomy, doing no harm, beneficence and justice involved: how to approach the adolescents to invite them to participate in the survey, the adolescents’ fears regarding the research, the protection of family members and caregivers, the revelation of the diagnosis to the adolescent and to third parts, and confidentiality. The report of our experience aims to contribute to the discussion of issues involving the guarantee of ethical aspects in research.ResumenEl presente trabajo tiene como objetivo informar la experiencia de garantizar los aspectos eticos involucrados en la etapa de recoleccion de datos de los adolescentes que viven con el VIH/SIDA. Esto es un relato de la reco-leccion de datos de dos investigaciones; una de un enfoque cuantitativo y diseno cruzado con 23 adolescentes y otra de enfoque cualitativo con 8 adolescentes. Para ambas, los criterios de participacion de los adolescen-tes incluyen: estar en uso de la terapia anti-retroviral, saber sobre su diagnostico y estar bajo tratamiento de servicio especializado. La garantia de principios eticos ‒ autonomia, no maleficencia, beneficencia y justicia involucro: la forma de abordaje para participar en la investigacion, temores de los adolescentes con respecto a la investigacion, proteccion de los miembros familiares y cuidadores, la revelacion del diagnostico al adoles-cente y a terceras partes, y sigilo. El estudio pretende contribuir a la discusion de cuestiones relacionadas con la garantia de aspectos eticos en la investigacion.Palabras-clave: Sindrome de Inmunodeficiencia Adquirida. VIH. Salud de los adolescentes. Etica de la investigacion. Enfermeria.Resumo Etica na pesquisa com adolescentes que vivem com HIV/AidsCom o presente trabalho, objetivou-se relatar a experiencia de garantir os aspectos eticos envolvidos na etapa de coleta de dados com adolescentes que vivem com HIV/aids. Trata-se de relato de coleta de dados de duas pesquisas: uma, de abordagem quantitativa e delineamento transversal, com 23 adolescentes, e outra, de enfoque qualitativo, com 8 adolescentes. Para ambas, os criterios de participacao dos adolescentes incluiram: estar em uso de terapia antirretroviral, ter conhecimento de seu diagnostico e manter seguimento ambulato-rial em servico especializado. A garantia dos principios eticos – autonomia, nao maleficencia, beneficencia e justica – envolveram: a forma de abordagem para participar da pesquisa, os receios dos adolescentes quanto a pesquisa, a protecao dos familiares/cuidadores, a revelacao do diagnostico ao adolescente e a terceiros e o sigilo. O relato da experiencia pretende contribuir para a discussao acerca das questoes que envolvem a garantia dos aspectos eticos nas pesquisas.Palavras-chave: Sindrome da imunodeficiencia adquirida. HIV. Saude do adolescente. Etica em pesquisa. Enfermagem.AbstractEthics in research on adolescents living with HIV/AIDS The article have sought to portray the experience of ensuring observance of the ethical aspects involved in data gathering with adolescents living with HIV/Aids. Data gathering in two studies is reported: one , using a quantitative approach with a cross-sectional design, with 23 adolescents, and another with a qualitative fo-cus, with 8 adolescents. For both, the criteria for participation included current use of anti-retroviral therapy, awareness of their diagnosis, and being subject to outpatient monitoring at a specialized care service. Guaran-teeing the ethical principles ‒ autonomy, doing no harm, beneficence and justice involved: how to approach the adolescents to invite them to participate in the survey, the adolescents’ fears regarding the research, the protection of family members and caregivers, the revelation of the diagnosis to the adolescent and to third parts, and confidentiality. The report of our experience aims to contribute to the discussion of issues involving the guarantee of ethical aspects in research.Keywords: Acquired Immunodeficiency Syndrome. HIV. Adolescent health. Research ethics. Nursing.Abstract The article have sought to portray the experience of ensuring observance of the ethical aspects involved in data gathering with adolescents living with HIV/Aids. Data gathering in two studies is reported: one , using a quantitative approach with a cross-sectional design, with 23 adolescents, and another with a qualitative fo-cus, with 8 adolescents. For both, the criteria for participation included current use of anti-retroviral therapy, awareness of their diagnosis, and being subject to outpatient monitoring at a specialized care service. Guaran-teeing the ethical principles ‒ autonomy, doing no harm, beneficence and justice involved: how to approach the adolescents to invite them to participate in the survey, the adolescents’ fears regarding the research, the protection of family members and caregivers, the revelation of the diagnosis to the adolescent and to third parts, and confidentiality. The report of our experience aims to contribute to the discussion of issues involving the guarantee of ethical aspects in research.