Crhis Netto de Brum

Cotidiano de adolescentes com o vírus da imunodeficiência humana em tratamento

Aim: to describe the daily living of adolescents infected with HIV in treatment. Methods: qualitative research developed in the first semester of 2012, in a teaching hospital in the southern region of Brazil, with eight adolescents from 13 to 19 years old. Data were produced through Sensitivity and Creativity Dynamics called Talking Map. For data treatment, we developed content analysis. Results: four thematic nuclei emerged: from rebellion to acceptance of diagnosis and treatment; understanding the reasons for treatment; wanting to taking treatment and receiving help; difficulties of following the routine of ingesting medicine always, all day and every day. Conclusions: we concluded the importance of knowing the daily living through the adolescents to develop strategies of health and supporting education, promoted through nursing care during health interdisciplinary assistance glimpsing autonomy to the adolescents on caring for oneself.

Vulnerabilidade ao adoecimento de crianças com hiv/aids em transição da infância para a adolescência

OBJECTIVE: To identify situations of vulnerability to sickening of patients with HIV/AIDS during the transition from childhood to adolescence. METHODS: Qualitative research with thematic content analysis of a database of interviews held with 11 subjects from 12 to 14 years old, infected by vertical transmission and with diagnosis disclosure. RESULTS: On the individual level, the following were observed: knowing the diagnosis and not being able to talk about it; a negative reaction to the diagnosis; taking on the responsibility for self-care; and, difficulties in taking the medications. On the social plane: orphanhood and/or the falling-ill of a family member; telling other people of the diagnosis; the need for help to remember to take the medication; and, dating and beginning a sex life. CONCLUSION: The importance is highlighted of a multidisciplinary team which has been trained to meet this populations specific health needs, so as to promote autonomy in self-care and social integration.

Revelação do diagnóstico de HIV dos pais

The aim was to assess scientific evidence available in the literature about the factors that influence the decision to disclose the parents’ HIV diagnosis to their children. The type study is integrative review in the Medline and Lilacs databases, using the words [HIV or aids] and [crianca or adolescente] and [revelacao]. 14 articles were selected. Factors influencing the decision to disclose the diagnosis were: the cognitive ability and maturity of the child, the strengthening of family ties, the information provided to the child about the disease, parental illness and death, the discovery by third parties, stigma and prejudice, negative reactions from the children, the way to talk about the disease with the child, and the fear of losing parental power. Therefore, a process of preparation for disclosure of the diagnosis, shared among family members who take care of the child and health professionals who maintain ties with the family, was identified.

Revelação do diagnóstico de HIV para o adolescente: modos de ser cotidiano

Objetivo: Comprender el significado de la revelacion del diagnostico del virus de la inmunodeficiencia humana para el adolescente. Metodos: Investigacion fenomenologica sostenida por el referencial teorico-metodologico de Martin Heidegger. Participaron de la entrevista fenomenologica 12 adolescentes en servicio especializado de un hospital universitario del sur de Brasil, entre Noviembre de 2011 y Febrero de 2012. Resultados: Fueron construidas dos unidades de significacion: saber del diagnostico antes que la familia y/o los profesionales de salud les cuenten a ellos, aunque no se comprenda como ocurrio la transmision y la necesidad de tratamiento; vivir como una persona comun, puesto que diferente es el virus, y convivir con medicaciones y la rutina hospitalaria. Estas unidades de significacion formaron el hilo conductor de la interpretacion, la cual ha desnudado los sentidos. Conclusion: El enfermero tiene la posibilidad de promover el movimiento vivido a traves de consultas y grupos con estos adolescentes.Objective: Understand the meaning of the disclosure of the diagnosis of the human immunodeficiency virus for the teenager. Methods: Phenomenological research with theoretical-methodological framework of Martin Heidegger. It was developed a phenomenological interview with twelve teenagers in a referral service in a teaching hospital in the South of Brazil, from november 2011 to february 2012. Results: Were set up two units of meaning: The unveiled that they already knew the diagnosis. Told them and they knew how the transmission happened; Known as the transmission of the virus and in need of treatment; Be a normal person, the different is the virus, have to take medicine and go to the hospital. These units of meaning were the thread of interpretation, which desvelaran way. Conclusion: The nurse has the possibility to promote the experience movement through consultations and groups with these teenagers.

Adesão ao tratamento antirretroviral para o HIV e sua inter-relação com a vulnerabilidade programática

Objective: To analyze the scientific production from the aspects of programmatic vulnerability and their relationship in adherence to antiretroviral treatment for HIV/ AIDS. Method: Narrative review of the literature. Data collection took place in February 2014 in the databases MEDLINE and LILACS and subjected to thematic content analysis. Results: A total of 16 productions, of which point out the aspects of programmatic vulnerability and their interrelation in the membership: 1) the commitment and responsibility of professionals and staff; 2) access to health services; and 3) organization of services. Conclusion: The health services intend has to promote the adherence may to establish its practices assistances with commitment and responsibility, ensuring a service organization, as well as their access. Descriptors: Nursing, Acquired immunodeficiency syndrome, HIV, Medication adherence, Health vulnerability.

Ética na pesquisa com adolescentes que vivem com HIV/Aids

Ethics in research on adolescents living with HIV/AIDS The article have sought to portray the experience of ensuring observance of the ethical aspects involved in data gathering with adolescents living with HIV/Aids. Data gathering in two studies is reported: one , using a quantitative approach with a cross-sectional design, with 23 adolescents, and another with a qualitative focus, with 8 adolescents. For both, the criteria for participation included current use of anti-retroviral therapy, awareness of their diagnosis, and being subject to outpatient monitoring at a specialized care service. Guaranteeing the ethical principles ‒ autonomy, doing no harm, beneficence and justice involved: how to approach the adolescents to invite them to participate in the survey, the adolescents’ fears regarding the research, the protection of family members and caregivers, the revelation of the diagnosis to the adolescent and to third parts, and confidentiality. The report of our experience aims to contribute to the discussion of issues involving the guarantee of ethical aspects in research.ResumenEl presente trabajo tiene como objetivo informar la experiencia de garantizar los aspectos eticos involucrados en la etapa de recoleccion de datos de los adolescentes que viven con el VIH/SIDA. Esto es un relato de la reco-leccion de datos de dos investigaciones; una de un enfoque cuantitativo y diseno cruzado con 23 adolescentes y otra de enfoque cualitativo con 8 adolescentes. Para ambas, los criterios de participacion de los adolescen-tes incluyen: estar en uso de la terapia anti-retroviral, saber sobre su diagnostico y estar bajo tratamiento de servicio especializado. La garantia de principios eticos ‒ autonomia, no maleficencia, beneficencia y justicia involucro: la forma de abordaje para participar en la investigacion, temores de los adolescentes con respecto a la investigacion, proteccion de los miembros familiares y cuidadores, la revelacion del diagnostico al adoles-cente y a terceras partes, y sigilo. El estudio pretende contribuir a la discusion de cuestiones relacionadas con la garantia de aspectos eticos en la investigacion.Palabras-clave: Sindrome de Inmunodeficiencia Adquirida. VIH. Salud de los adolescentes. Etica de la investigacion. Enfermeria.Resumo Etica na pesquisa com adolescentes que vivem com HIV/AidsCom o presente trabalho, objetivou-se relatar a experiencia de garantir os aspectos eticos envolvidos na etapa de coleta de dados com adolescentes que vivem com HIV/aids. Trata-se de relato de coleta de dados de duas pesquisas: uma, de abordagem quantitativa e delineamento transversal, com 23 adolescentes, e outra, de enfoque qualitativo, com 8 adolescentes. Para ambas, os criterios de participacao dos adolescentes incluiram: estar em uso de terapia antirretroviral, ter conhecimento de seu diagnostico e manter seguimento ambulato-rial em servico especializado. A garantia dos principios eticos – autonomia, nao maleficencia, beneficencia e justica – envolveram: a forma de abordagem para participar da pesquisa, os receios dos adolescentes quanto a pesquisa, a protecao dos familiares/cuidadores, a revelacao do diagnostico ao adolescente e a terceiros e o sigilo. O relato da experiencia pretende contribuir para a discussao acerca das questoes que envolvem a garantia dos aspectos eticos nas pesquisas.Palavras-chave: Sindrome da imunodeficiencia adquirida. HIV. Saude do adolescente. Etica em pesquisa. Enfermagem.AbstractEthics in research on adolescents living with HIV/AIDS The article have sought to portray the experience of ensuring observance of the ethical aspects involved in data gathering with adolescents living with HIV/Aids. Data gathering in two studies is reported: one , using a quantitative approach with a cross-sectional design, with 23 adolescents, and another with a qualitative fo-cus, with 8 adolescents. For both, the criteria for participation included current use of anti-retroviral therapy, awareness of their diagnosis, and being subject to outpatient monitoring at a specialized care service. Guaran-teeing the ethical principles ‒ autonomy, doing no harm, beneficence and justice involved: how to approach the adolescents to invite them to participate in the survey, the adolescents’ fears regarding the research, the protection of family members and caregivers, the revelation of the diagnosis to the adolescent and to third parts, and confidentiality. The report of our experience aims to contribute to the discussion of issues involving the guarantee of ethical aspects in research.Keywords: Acquired Immunodeficiency Syndrome. HIV. Adolescent health. Research ethics. Nursing.Abstract The article have sought to portray the experience of ensuring observance of the ethical aspects involved in data gathering with adolescents living with HIV/Aids. Data gathering in two studies is reported: one , using a quantitative approach with a cross-sectional design, with 23 adolescents, and another with a qualitative fo-cus, with 8 adolescents. For both, the criteria for participation included current use of anti-retroviral therapy, awareness of their diagnosis, and being subject to outpatient monitoring at a specialized care service. Guaran-teeing the ethical principles ‒ autonomy, doing no harm, beneficence and justice involved: how to approach the adolescents to invite them to participate in the survey, the adolescents’ fears regarding the research, the protection of family members and caregivers, the revelation of the diagnosis to the adolescent and to third parts, and confidentiality. The report of our experience aims to contribute to the discussion of issues involving the guarantee of ethical aspects in research.

Ethics in research on adolescents living with HIV/AIDS

Ethics in research on adolescents living with HIV/AIDS The article have sought to portray the experience of ensuring observance of the ethical aspects involved in data gathering with adolescents living with HIV/Aids. Data gathering in two studies is reported: one , using a quantitative approach with a cross-sectional design, with 23 adolescents, and another with a qualitative focus, with 8 adolescents. For both, the criteria for participation included current use of anti-retroviral therapy, awareness of their diagnosis, and being subject to outpatient monitoring at a specialized care service. Guaranteeing the ethical principles ‒ autonomy, doing no harm, beneficence and justice involved: how to approach the adolescents to invite them to participate in the survey, the adolescents’ fears regarding the research, the protection of family members and caregivers, the revelation of the diagnosis to the adolescent and to third parts, and confidentiality. The report of our experience aims to contribute to the discussion of issues involving the guarantee of ethical aspects in research.ResumenEl presente trabajo tiene como objetivo informar la experiencia de garantizar los aspectos eticos involucrados en la etapa de recoleccion de datos de los adolescentes que viven con el VIH/SIDA. Esto es un relato de la reco-leccion de datos de dos investigaciones; una de un enfoque cuantitativo y diseno cruzado con 23 adolescentes y otra de enfoque cualitativo con 8 adolescentes. Para ambas, los criterios de participacion de los adolescen-tes incluyen: estar en uso de la terapia anti-retroviral, saber sobre su diagnostico y estar bajo tratamiento de servicio especializado. La garantia de principios eticos ‒ autonomia, no maleficencia, beneficencia y justicia involucro: la forma de abordaje para participar en la investigacion, temores de los adolescentes con respecto a la investigacion, proteccion de los miembros familiares y cuidadores, la revelacion del diagnostico al adoles-cente y a terceras partes, y sigilo. El estudio pretende contribuir a la discusion de cuestiones relacionadas con la garantia de aspectos eticos en la investigacion.Palabras-clave: Sindrome de Inmunodeficiencia Adquirida. VIH. Salud de los adolescentes. Etica de la investigacion. Enfermeria.Resumo Etica na pesquisa com adolescentes que vivem com HIV/AidsCom o presente trabalho, objetivou-se relatar a experiencia de garantir os aspectos eticos envolvidos na etapa de coleta de dados com adolescentes que vivem com HIV/aids. Trata-se de relato de coleta de dados de duas pesquisas: uma, de abordagem quantitativa e delineamento transversal, com 23 adolescentes, e outra, de enfoque qualitativo, com 8 adolescentes. Para ambas, os criterios de participacao dos adolescentes incluiram: estar em uso de terapia antirretroviral, ter conhecimento de seu diagnostico e manter seguimento ambulato-rial em servico especializado. A garantia dos principios eticos – autonomia, nao maleficencia, beneficencia e justica – envolveram: a forma de abordagem para participar da pesquisa, os receios dos adolescentes quanto a pesquisa, a protecao dos familiares/cuidadores, a revelacao do diagnostico ao adolescente e a terceiros e o sigilo. O relato da experiencia pretende contribuir para a discussao acerca das questoes que envolvem a garantia dos aspectos eticos nas pesquisas.Palavras-chave: Sindrome da imunodeficiencia adquirida. HIV. Saude do adolescente. Etica em pesquisa. Enfermagem.AbstractEthics in research on adolescents living with HIV/AIDS The article have sought to portray the experience of ensuring observance of the ethical aspects involved in data gathering with adolescents living with HIV/Aids. Data gathering in two studies is reported: one , using a quantitative approach with a cross-sectional design, with 23 adolescents, and another with a qualitative fo-cus, with 8 adolescents. For both, the criteria for participation included current use of anti-retroviral therapy, awareness of their diagnosis, and being subject to outpatient monitoring at a specialized care service. Guaran-teeing the ethical principles ‒ autonomy, doing no harm, beneficence and justice involved: how to approach the adolescents to invite them to participate in the survey, the adolescents’ fears regarding the research, the protection of family members and caregivers, the revelation of the diagnosis to the adolescent and to third parts, and confidentiality. The report of our experience aims to contribute to the discussion of issues involving the guarantee of ethical aspects in research.Keywords: Acquired Immunodeficiency Syndrome. HIV. Adolescent health. Research ethics. Nursing.Abstract The article have sought to portray the experience of ensuring observance of the ethical aspects involved in data gathering with adolescents living with HIV/Aids. Data gathering in two studies is reported: one , using a quantitative approach with a cross-sectional design, with 23 adolescents, and another with a qualitative fo-cus, with 8 adolescents. For both, the criteria for participation included current use of anti-retroviral therapy, awareness of their diagnosis, and being subject to outpatient monitoring at a specialized care service. Guaran-teeing the ethical principles ‒ autonomy, doing no harm, beneficence and justice involved: how to approach the adolescents to invite them to participate in the survey, the adolescents’ fears regarding the research, the protection of family members and caregivers, the revelation of the diagnosis to the adolescent and to third parts, and confidentiality. The report of our experience aims to contribute to the discussion of issues involving the guarantee of ethical aspects in research.

Ética en la investigación con adolescentes que viven con el VIH/SIDA

Ethics in research on adolescents living with HIV/AIDS The article have sought to portray the experience of ensuring observance of the ethical aspects involved in data gathering with adolescents living with HIV/Aids. Data gathering in two studies is reported: one , using a quantitative approach with a cross-sectional design, with 23 adolescents, and another with a qualitative focus, with 8 adolescents. For both, the criteria for participation included current use of anti-retroviral therapy, awareness of their diagnosis, and being subject to outpatient monitoring at a specialized care service. Guaranteeing the ethical principles ‒ autonomy, doing no harm, beneficence and justice involved: how to approach the adolescents to invite them to participate in the survey, the adolescents’ fears regarding the research, the protection of family members and caregivers, the revelation of the diagnosis to the adolescent and to third parts, and confidentiality. The report of our experience aims to contribute to the discussion of issues involving the guarantee of ethical aspects in research.ResumenEl presente trabajo tiene como objetivo informar la experiencia de garantizar los aspectos eticos involucrados en la etapa de recoleccion de datos de los adolescentes que viven con el VIH/SIDA. Esto es un relato de la reco-leccion de datos de dos investigaciones; una de un enfoque cuantitativo y diseno cruzado con 23 adolescentes y otra de enfoque cualitativo con 8 adolescentes. Para ambas, los criterios de participacion de los adolescen-tes incluyen: estar en uso de la terapia anti-retroviral, saber sobre su diagnostico y estar bajo tratamiento de servicio especializado. La garantia de principios eticos ‒ autonomia, no maleficencia, beneficencia y justicia involucro: la forma de abordaje para participar en la investigacion, temores de los adolescentes con respecto a la investigacion, proteccion de los miembros familiares y cuidadores, la revelacion del diagnostico al adoles-cente y a terceras partes, y sigilo. El estudio pretende contribuir a la discusion de cuestiones relacionadas con la garantia de aspectos eticos en la investigacion.Palabras-clave: Sindrome de Inmunodeficiencia Adquirida. VIH. Salud de los adolescentes. Etica de la investigacion. Enfermeria.Resumo Etica na pesquisa com adolescentes que vivem com HIV/AidsCom o presente trabalho, objetivou-se relatar a experiencia de garantir os aspectos eticos envolvidos na etapa de coleta de dados com adolescentes que vivem com HIV/aids. Trata-se de relato de coleta de dados de duas pesquisas: uma, de abordagem quantitativa e delineamento transversal, com 23 adolescentes, e outra, de enfoque qualitativo, com 8 adolescentes. Para ambas, os criterios de participacao dos adolescentes incluiram: estar em uso de terapia antirretroviral, ter conhecimento de seu diagnostico e manter seguimento ambulato-rial em servico especializado. A garantia dos principios eticos – autonomia, nao maleficencia, beneficencia e justica – envolveram: a forma de abordagem para participar da pesquisa, os receios dos adolescentes quanto a pesquisa, a protecao dos familiares/cuidadores, a revelacao do diagnostico ao adolescente e a terceiros e o sigilo. O relato da experiencia pretende contribuir para a discussao acerca das questoes que envolvem a garantia dos aspectos eticos nas pesquisas.Palavras-chave: Sindrome da imunodeficiencia adquirida. HIV. Saude do adolescente. Etica em pesquisa. Enfermagem.AbstractEthics in research on adolescents living with HIV/AIDS The article have sought to portray the experience of ensuring observance of the ethical aspects involved in data gathering with adolescents living with HIV/Aids. Data gathering in two studies is reported: one , using a quantitative approach with a cross-sectional design, with 23 adolescents, and another with a qualitative fo-cus, with 8 adolescents. For both, the criteria for participation included current use of anti-retroviral therapy, awareness of their diagnosis, and being subject to outpatient monitoring at a specialized care service. Guaran-teeing the ethical principles ‒ autonomy, doing no harm, beneficence and justice involved: how to approach the adolescents to invite them to participate in the survey, the adolescents’ fears regarding the research, the protection of family members and caregivers, the revelation of the diagnosis to the adolescent and to third parts, and confidentiality. The report of our experience aims to contribute to the discussion of issues involving the guarantee of ethical aspects in research.Keywords: Acquired Immunodeficiency Syndrome. HIV. Adolescent health. Research ethics. Nursing.Abstract The article have sought to portray the experience of ensuring observance of the ethical aspects involved in data gathering with adolescents living with HIV/Aids. Data gathering in two studies is reported: one , using a quantitative approach with a cross-sectional design, with 23 adolescents, and another with a qualitative fo-cus, with 8 adolescents. For both, the criteria for participation included current use of anti-retroviral therapy, awareness of their diagnosis, and being subject to outpatient monitoring at a specialized care service. Guaran-teeing the ethical principles ‒ autonomy, doing no harm, beneficence and justice involved: how to approach the adolescents to invite them to participate in the survey, the adolescents’ fears regarding the research, the protection of family members and caregivers, the revelation of the diagnosis to the adolescent and to third parts, and confidentiality. The report of our experience aims to contribute to the discussion of issues involving the guarantee of ethical aspects in research.

Revelación del diagnóstico de VIH para el adolescente: modos de ser en el cotidiano

Objetivo: Comprender el significado de la revelacion del diagnostico del virus de la inmunodeficiencia humana para el adolescente. Metodos: Investigacion fenomenologica sostenida por el referencial teorico-metodologico de Martin Heidegger. Participaron de la entrevista fenomenologica 12 adolescentes en servicio especializado de un hospital universitario del sur de Brasil, entre Noviembre de 2011 y Febrero de 2012. Resultados: Fueron construidas dos unidades de significacion: saber del diagnostico antes que la familia y/o los profesionales de salud les cuenten a ellos, aunque no se comprenda como ocurrio la transmision y la necesidad de tratamiento; vivir como una persona comun, puesto que diferente es el virus, y convivir con medicaciones y la rutina hospitalaria. Estas unidades de significacion formaron el hilo conductor de la interpretacion, la cual ha desnudado los sentidos. Conclusion: El enfermero tiene la posibilidad de promover el movimiento vivido a traves de consultas y grupos con estos adolescentes.Objective: Understand the meaning of the disclosure of the diagnosis of the human immunodeficiency virus for the teenager. Methods: Phenomenological research with theoretical-methodological framework of Martin Heidegger. It was developed a phenomenological interview with twelve teenagers in a referral service in a teaching hospital in the South of Brazil, from november 2011 to february 2012. Results: Were set up two units of meaning: The unveiled that they already knew the diagnosis. Told them and they knew how the transmission happened; Known as the transmission of the virus and in need of treatment; Be a normal person, the different is the virus, have to take medicine and go to the hospital. These units of meaning were the thread of interpretation, which desvelaran way. Conclusion: The nurse has the possibility to promote the experience movement through consultations and groups with these teenagers.

Disclosure of the HIV diagnosis to the teenager: ways of being everyday

Objetivo: Comprender el significado de la revelacion del diagnostico del virus de la inmunodeficiencia humana para el adolescente. Metodos: Investigacion fenomenologica sostenida por el referencial teorico-metodologico de Martin Heidegger. Participaron de la entrevista fenomenologica 12 adolescentes en servicio especializado de un hospital universitario del sur de Brasil, entre Noviembre de 2011 y Febrero de 2012. Resultados: Fueron construidas dos unidades de significacion: saber del diagnostico antes que la familia y/o los profesionales de salud les cuenten a ellos, aunque no se comprenda como ocurrio la transmision y la necesidad de tratamiento; vivir como una persona comun, puesto que diferente es el virus, y convivir con medicaciones y la rutina hospitalaria. Estas unidades de significacion formaron el hilo conductor de la interpretacion, la cual ha desnudado los sentidos. Conclusion: El enfermero tiene la posibilidad de promover el movimiento vivido a traves de consultas y grupos con estos adolescentes.Objective: Understand the meaning of the disclosure of the diagnosis of the human immunodeficiency virus for the teenager. Methods: Phenomenological research with theoretical-methodological framework of Martin Heidegger. It was developed a phenomenological interview with twelve teenagers in a referral service in a teaching hospital in the South of Brazil, from november 2011 to february 2012. Results: Were set up two units of meaning: The unveiled that they already knew the diagnosis. Told them and they knew how the transmission happened; Known as the transmission of the virus and in need of treatment; Be a normal person, the different is the virus, have to take medicine and go to the hospital. These units of meaning were the thread of interpretation, which desvelaran way. Conclusion: The nurse has the possibility to promote the experience movement through consultations and groups with these teenagers.